Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Joined March 2009
- Tweets 6,779
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27 Aug 2022
Can we give #longford @GardaTraffic @gardainfo massive love (Gerry & Aidan) who escorted me in record time for my #kidneytransplant. There are #angels & #heroes all around us #transplant #recovery #beaumonthospital #kidneytransplant #dublin #organdonation #becomeadonor
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My mam was told I wouldn’t survive more than 4-5 years & here I am at 50. Emotional as my moma isn’t here to see this huge milestone, her hard work & dedication got me here, but she was definitely present….there were signs. Take that 💪 #cysticfibrosis #defyingtheodds #50th
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30 Dec 2025
So grateful to @SimonHarrisTD for ensuring we got the best deal. @VertexPharma modulators have been life changing
30 Dec 2025
So heartened reading this article and with huge gratitude to Jillian McNulty for her incredible advocacy.
We had worked so hard to secure these medicines for Irish patients. Amazing to see the difference it has made for so many CF patients
independent.ie/irish-news/qu…
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6 May 2025
If you’re around Co #Sligo on May 11th please join us on this beautiful walk in memory of mam, weather is set to be glorious, if you can’t join us anything you can spare would be appreciated gofund.me/59604649 #loughtalt #cysticfibrosis #hospice #charitywalk
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8 Apr 2025
Charity walk in Sligo county May 11th dedicated to my precious Mam RIP All funds to Cystic Fibrosis & Hospice. Please share #hospice #cysticfibrosis #sligo #loughtalt #walk #charity
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30 Mar 2025
First #MothersDay Day without you moma 😭 but Derek & Gary have you for their first in decades 💔 Hugs your mammies extra tight everyone #grief #heaven #mammy #bestmammy
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28 Feb 2025
Thank you Prof Gallagher
28 Feb 2025
A legacy of excellence in CF Care 💙
Today, we celebrate Prof Charles Gallagher, who retires after nearly 3 decades of dedication to CF patients, research & education at #SVUH. His impact is immeasurable & his legacy will live on
Thank you, Prof. Gallagher! 👏 #cysticfibrosis
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1 Feb 2025
My best friend, my rock, my dearest moma went home to be with her darling sons Derek & Gary at 1.05 last night, my heart is broken into a million pieces. My mammy was the strongest bravest fighter right until the end for just 16 days. I love you, I’ll miss you forever 💕
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24 Dec 2024
Candle lit for the very special person that saved my life, my 3rd Christmas with my new kidney. Thinking of them and their broken hearted family this Christmas. Make the most of this Christmas everyone, if you haven’t already please #becomeanorgandonor Merry Christmas💕
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24 Dec 2024
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9 Dec 2024
🎉🎉🎉🎉💒💒💒💒 such a great weekend @franmcnulty & @doireannoh 💕
9 Dec 2024
After a beautiful weekend celebrating our wedding, the out of office is on and some time away to celebrate some more!
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8 Dec 2024
The absolute best day, full of immense love, happiness & laughter my brother @franmcnulty marrying his whole world @doireannoh I’ve officially gained such an amazing sister in law #family #weddingday
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6 Nov 2024
Can someone in @svuh please tell me why you have an appointment system for #phlebotomy when you are told to sit outside as there’s people in queue before you, I stressed my appointment is in 5 mins to be told it doesn’t matter sit outside so those without an appt are seen first?
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25 Oct 2024
Just a normal Friday afternoon in #Longford #bankholidayweekend #october #friday #halloween #ghosts @jessicadotie
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10 Oct 2024
#AuroraBorealis living life & fulfilling my bucket list thanks to my precious #donor who saved my life #forevergrateful #becomeadonor #organdonation
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10 Oct 2024
Who’s ready for what’s supposed to be the strongest #aurora in years, it may even top May (pictured below in #Easkey) This is the stuff dreams are made of. Incredibly grateful to my precious #donor to be #alive to fulfil my biggest #bucketlist item yet again #organdonation
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