PCD & Children's Respiratory CNS, @NIHRCommunity & @FNightingaleF scholar, Autism Ambassador and Independent Visitor with @theadvocacypeople. Views my own.

Joined March 2011
191 Photos and videos
This week I received a wonderful scrapbook of well wishes from colleagues I’ve worked with for the last two decades. Today, I’ve added emails, texts, cards and well wishes from patients and families. Thank you PCD & Respiratory, its been a blast 🥰 And on to my next adventure 😁
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Amanda Harris retweeted
This #AskAboutAsthma week, make sure your child has an asthma action plan. You can ask your GP or Nurse to provide you with one, or download free from the @asthmalunguk website!
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Chickenpox is common. Usually it is just unpleasant, but it can be severe or life threatening. A long established vaccine to prevent it will be offered to all children rather than only those who can pay. Immunity by vaccination is safer than by infection.
We're launching a chickenpox vaccination programme which will protect around half a million children each year. From January 2026, eligible children will get an MMRV vaccine to protect against measles, mumps, rubella and chickenpox. Eligibility will be announced in due course.
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Amanda Harris retweeted
The agenda for the 2025 PCD patients conference, organized in collaboration with @EuropeanLung, is now accessible on our website. You can also find the link for registration there. The event is set to take place on November 19th. beat-pcd.squarespace.com/eve…
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Amanda Harris retweeted
🗓️ Join us on 14-15 October 2025 at Hope Church for two days of learning and networking. Plus, join our PAFTAs social at Shoal after day 1 (14th Oct). See you there! Register now 👉 piernetwork.org/pier2025.htm… #PIERConference2025 #PIER2025
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Amanda Harris retweeted
In recognition of PCD Awareness Month, BEAT-PCD and @PCD_UK will host a webinar on patient collaboration in PCD research. Watch for registration details soon, and mark your planner. More info is available on our website: beat-pcd.squarespace.com/eve…
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24 Jun 2025
🚨 NEW: The full list of the 108 Labour MPs who have signed the reasoned amendment to the welfare reform Bill in an attempt to block it completely It marks one of the biggest rebellions against the Government so far, with the Bill’s first vote due next week
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Amanda Harris retweeted
Myeloperoxidase is a green protein contained in neutrophils. So if the sputum is green, patients have a lot of inflammation and are at high risk of exacerbation Simple and clinically useful!
No… Not thinking of repainting a room. One of the best biomarkers for those of us living with bronchiectasis is sputum color! Very handy to keep this chart in mind… #Bronchiectasis #sputum #Phlegm #Mucus
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If you feel down or today seems overwhelming, get outside and reconnect with nature. It helps 🌤️
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You may find lay summaries of this and all our publications on the Living with PCD study website in English, French, German, Spanish, and Italian pcd.ispm.ch/en/publications/
We are pleased to announce the publication of a new article exploring the fertility experiences of people with Primary Ciliary Dyskinesia (PCD) and their family caregivers: ‘Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: onlinelibrary.wiley.com/doi/… @ISPMBern @mgoutaki
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Amanda Harris retweeted
Now economists know how scientists felt when he said “inject bleach”
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If you feel you have something constructive to say, please consider participating in this government consultation. Maybe your input will help shape the practical support those with disabilities will receive once the financial support has been removed. gov.uk/government/consultati…

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24 Mar 2025
Misinformation around disability benefits and “free cars” needs addressing urgently. Here are the clear facts: a thread🧵 Blue Badges •Blue badges DO NOT mean a free car. •A car displaying a blue badge is not necessarily a Motability car. continued…
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Researchers and healthcare staff at @unisouthampton and @UHSFT were a crucial part of the UK’s pandemic response. Discover five ways this work has had a lasting impact 📽️👇
Five years on from Covid, here are five ways we made an impact. From vaccine trials and testing to life-saving equipment, our academics worked with others to play a crucial role in tackling the pandemic. @SouthamptonBRC @UHSFTresearch @UHSFT
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Amanda Harris retweeted
It is with heavy heart that I share the news of the death of Bernhard Rindlisbacher. Bernhard's dedication to the PCD community was unparalleled and I have been extremely lucky to had known him and worked with him pcd.ispm.ch/en/news/ .
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13 Mar 2025
PSA: PIP is not an out-of-work benefit. Here’s why this is important 🧵
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Trump's allies are asked a simple question: "What else could a Russian asset actually possibly do that Trump hasn't yet done?"
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As we winter deepens some advice from an aging Emergency Doctor about how to keep going, sometimes smiling and very occasionally thriving 1, Control the controllable—health policy and funding are not your responsibility, and you do not need to feel guilty or responsible for them
The Government’s ‘Plan for Change’ has failed to deliver a plan and significant change to future-proof Emergency Medicine which is facing one of the most difficult winters yet. It comes as new NHS England data reveals the healthcare system is going into winter under more pressure than ever before. Read @RCEMpresident Dr Adrian Boyle's full response here - tinyurl.com/55fvrk83
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Amanda Harris retweeted
How Musk broke Twitter and helped elect Trump (Location: Tesla European HQ, Amsterdam)
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