Every day we work with MND Association patrons and ambassadors to raise awareness and support. Because every day matters.

Joined October 2013
5,042 Photos and videos
MND Association VIP & Events retweeted
Sir Kev, through the years. 🧔
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I must confess to being a bit emotional this morning at the news of a knighthood for Kevin Sinfield. I’ve always called him ā€˜Sir Kev’ and it’s hard to think of a man more deserving. He showed us all what it is to be a friend. What it means to step up when people need you and he did it all for his mate ā¤ļø After he carried Rob across the line in the Leeds marathon someone sent me this poem anonymously and I kept it on my phone. They called it ā€˜Arise Sir Kev’… When shadows gathered, and hearts would break Kev knew it was time to take… One step, another, through wind and rain, Carrying hope, despite the pain. He never stopped, mile after mile, Driven by loyalty, strength… a smile. For Rob, his friend, he aim was true Showing us all, what friendship can do. Not measured in trophies, applause, or fame… But turning up, again and again. And in every mile he chose to run, He showed us how friendship is truly done.
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MND Association VIP & Events retweeted
Sir Kevin Sinfield has been recognised by the nation after being awarded a Knighthood in the King's Birthday honours having raised over Ā£11 million so far for MND charities with his annual challenges with one more to come this September. @mndassoc @MNDoddie5 @DarbyRimmerMND @LDShospcharity More therhinos.co.uk/article/2348…
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MND Association VIP & Events retweeted
Congratulations Sir Kev. Captain. Leader. Knight ā¤ļøšŸ§”šŸ’™ There is no more deserving MND campaigner, sportsman and selfless human being to be recognised in the Birthday Honours than Sir Kevin Sinfield. Proud to know you. bbc.co.uk/news
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MND Association VIP & Events retweeted
Watch MND Association patron, Kevin Sinfield’s first interview since being awarded a knighthood in the King’s Birthday Honours. He spoke with @sallynugent and @BBCBreakfast about what the honour means, and how Rob Burrow is still his inspiration 🧔

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MND Association VIP & Events retweeted
Congratulations to our patron, Kevin Sinfield, on his well‑deserved knighthood. Kev has been a tireless advocate for the MND community since the diagnosis of his friend, Rob Burrow CBE, in 2019 — raising Ā£11 million for MND charities and vital awareness. Thank you, Sir Kev 🧔
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MND Association VIP & Events retweeted
Are you an early career researcher working in MND in the UK? Why not apply for the @mndassoc Rob Burrow Early Career Researcher Prize? Find out more and applyā¬‡ļø mndassociation.org/research/…
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This summer, the @mndassoc are asking cricket fans to turn their passion for the sport into hope for people with motor neurone disease šŸ™ Find out more about how your club can help šŸ‘‰ mndassociation.org/cricket #Ad
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We remember today our late patron Rob Burrow CBE who did so much for us @mndassoc and the whole MND community. We send our love to all of Rob's family and friends and everyone at @leedsrhinos
Hard to believe it is 2 years since we said goodbye to our own Rob Burrow. He continues to inspire us every day especially in our support of the MND community ā¤ļøšŸ§”šŸ’™
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MND Association VIP & Events retweeted
Dr Brian Dickie, our Chief Scientist, appeared on @SkySports to explain what motor neurone disease is, how it affects people in sport, and the progress we’re making in MND research. Watch here. šŸ”—skysports.com/rugby-union/ne…
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MND Association VIP & Events retweeted
Team LDN 2026, take a bow. To every single person who ran for the fight against motor neurone disease, you’ve done an amazing thing. You should be so proud of yourselves. 241 runners took to the course, supported by a sea of supporters across 2 cheerpoints, a post-race reception, and throughout the track. To everyone who made today what it was and contributed to the phenomenal amount of money raised—thank you. 🧔
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MND Association VIP & Events retweeted
Tune it to @ITV at 17:45 this evening to see @katelawler compete on Celebrity Catchphrase in aid of the fight against motor neurone disease. 🧔 We can't wait to see how she got on. šŸ‘€ #CelebrityCatchphrase
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MND Association VIP & Events retweeted
We're so sorry to hear this sad news - our sympathies are with Geoff's family and everyone @LeedsRhinos who has worked so closely with the Burrow family over so many years.
It is with deep sadness that the club has learnt of the passing of Geoff Burrow, the father of Rob Burrow. Our deepest condolences go to Geoff's wife Irene and the whole Burrow family at this time. May he rest in peace therhinos.co.uk/article/2311…
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MND Association VIP & Events retweeted
With motor neurone disease, every minute matters. That’s why we’re delighted that the Government has committed to introducing a fast‑track passport for people with MND, helping them access vital support services more quickly. Zoe, who has MND and worked closely with the team behind this important win, has shared her reflections.
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MND Association VIP & Events retweeted
The biggest annual conference dedicated to motor neurone disease research in the world will be held in Amsterdam this December. Hosted by the MND Association for the 37th year, we’ll bring together the world’s leading MND scientists to share progress. Read more below.
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MND Association VIP & Events retweeted
A new fast‑track passport for people with MND is at the heart of recommended health and social care reforms announced yesterday. We’ve worked with the Commission and our community to shape these proposals through lived experience. Explore the work so far and read more. šŸ”—
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MND Association VIP & Events retweeted
Our Head of Research, Dr Nick Cole, features in a new BBC documentary exploring a possible link between rugby and neurological conditions. 'Ben Youngs investigates: How safe is rugby?' is available to watch now on BBC iPlayer and screens on BBC One at 22:45 on Tuesday 3 March.
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MND Association VIP & Events retweeted
A week ago today, we marked the start of a new chapter for the MND Association at a launch event alongside our Royal Patron, HRH The Princess Royal, people with MND and our supporters. Thank you to everyone who joined us and helped make the evening so meaningful. šŸ”—mndassociation.org/media/lat…
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MND Association VIP & Events retweeted
A message from MND Association ambassador Charlie Ireland as the Run31 challenge comes to a close. šŸ‘
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