Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.
Joined October 2021
- Tweets 63
- Following 306
- Followers 129
- Likes 416
7 Photos and videos
themnddiaryproject retweeted
17 Jan 2023
🔥🚨PhD position available🚨🔥
Interested in the gut-brain-axis? Want to contribute to #MND #ALS research? Want to come and join our team? Get in touch - informal enquiries welcome 🤗🤓
Supervisors:
@jennagregory488, @NEAnatomist, @MathewHHorrocks
gregorylaboratory.com/opport…
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themnddiaryproject retweeted
10 Jan 2023
We are recruiting more CAHPR/@NIHRresearch Champions!
Are you an AHP interested in Research and Innovation?
We are recruiting to fill roles in several Clinical Research Network (CRN) areas.
Role description: bit.ly/3Xlmc8R
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themnddiaryproject retweeted
21 Dec 2022
In January, we'll be holding at event aimed at improving care for people living with #MND in #NorthernIreland.
If you want your MLAs to be there - please invite them today!
Using this tool it just takes a few clicks ⬇️
ecampaigns.mndassociation.or…
ALT Improving MND care in Northern Ireland
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21 Nov 2022
Morning everyone, I'm looking for healthcare professionals based in the UK who care for people living with #MND to take part in an online focus group as part of the project. Please RT, DM for info or contact me via the blog campuspress.stir.ac.uk/mnddi…
@mndresearch @MNDScotland
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themnddiaryproject retweeted
Catch up on our latest news:
Investigating ‘coping’ among people living with #MND @nicola_glennie Life with an indwelling #catheter @suzhagen PhD success on #antidepressant prescribing bit.ly/3Uln50c
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8 Nov 2022
I'm looking for family/caregivers of people living with #MND in the UK, who would be willing to share their experiences of coping with the challenges MND has brought into their lives. Either in an online group or an individual interview with me. DM for info. Please share.
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themnddiaryproject retweeted
24 Oct 2022
Happy to announce we'll be at the @leedsfilmfest Nov 10 & 11, as part of the Disability Futures section with a panel discussion following the first screening.
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21 Oct 2022
Thanks @mndresearch for the opportunity to tell people about our research. @Emma___France @FionaHarris6 @StirUni @UniWestScotland
20 Oct 2022
Over on the blog today @nicola_glennie talks about her research into the experiences of people living with #MND and factors which may contribute to them feeling a lack of control. She also discusses how her work could improve future care.
Read more ⬇
mndresearch.blog/2022/10/20/…
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19 Oct 2022
macrobertartscentre.org/even…
For those near Stirling @EatYourCatfish showing at @Macrobert at @StirUni on 5th Nov. It's good to see people living with #MND #ALS telling their stories in their own words. I've not seen the film but I imagine it will be emotional viewing. @MNDScotland
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themnddiaryproject retweeted
11 Oct 2022
Can you help us reach 11 new people today? 11 friends? Pls share this petition link & encourage others to sign as we continue to call on UK governments to create a Neuro Taskforce & improve services for everyone with a neuro condition #BackThe1in6 campaigns.mssociety.org.uk/p…
ALT Petition counter resting at 13,489 signatures. We're 1,511 away from our target of 15,000 signatures! 1 in 6 people in the UK live with a neurological condition, but there simply isn't the workforce or services in place to support them. From delays to lifechanging treatment and care, to a lack of mental health support, we need Governments across the UK to back the 1 in 6, and set up a Neuro Taskforce to deliver real change. Sign our petition today!
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themnddiaryproject retweeted
3 Oct 2022
📢 Today we have launched our MND: What Matters survey across Scotland.
We want to hear your #MND experiences to help shape our work and how we develop as a charity.
mndscotland.org.uk/latest/ne…
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themnddiaryproject retweeted
29 Sep 2022
Our friends at @EuansGuide are running their 2022 Access Survey.
The survey asks disabled people what's good and not so good about access at places they visit & raise awareness of access needs.
If you are living with #MND, please consider taking part ⬇️
euansguide.com/get-involved/…
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26 Sep 2022
I'm looking for people who care for someone living with #MND who may be interested in taking part in research. Either in a group session or an individual interview to tell me about their experiences of coping with the challenges MND brings to life. Message for more info.
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themnddiaryproject retweeted
22 Sep 2022
Do you live in #Wales or know somebody who does? 🏴
Invite your Senedd Members to our event where they will hear first-hand from people living with #MND and why access to timely home adaptations is so important.
Act now ⬇️
ecampaigns.mndassociation.or… @mndassocWALES
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3 Aug 2022
Thanks for sharing. This review started the @mnddiaryproject journey which this time next year should have more findings to share about ways to improve evidence based care for #MND in the future. @mndresearch @MNDScotland @MNDoddie5
2 Aug 2022
Delighted that @nicola_glennie has published her @MResStirling dissertation systematic review on perceptions & experiences of control among people living with motor neurone disease tandfonline.com/doi/full/10.…
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themnddiaryproject retweeted
28 Jul 2022
🚨 New blog alert! 🚨
Want to find out more about the inaugural @mndassoc #MNDEncourageUK? Head over to the blog to find out how the event supports #MND early career researchers and brings them together with people living with and affected by MND.
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mndresearch.blog/2022/07/28/…
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28 Jul 2022
It was an excellent event. Bringing #MND researchers and those living with MND as part of their lives together to share ideas and understanding. Thank you @mndresearch events like this are key to future research being a shared process.
27 Jul 2022
Throwback to last week at the #MNDEnCouRageUK! 🔬The event was all about supporting #MND early career researchers and bringing them closer to people living with and affected by MND.
We had an amazing time and hope everyone who attended did too. Blog coming very soon 👀
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22 Apr 2022
More insights about the MND journey from @StarkeyJennie . If others are also blogging let me know and I'll share.
22 Apr 2022
DELAYS, DIY & DONATIONS mndjourney.wordpress.com/202…