Now retired in the Outer Hebrides, love walks, runs, art, felting, sea swims, wild nature - still passionate about dementia justice, voice, autonomy
Joined January 2010
- Tweets 187
- Following 1,237
- Followers 387
- Likes 528
14 Photos and videos
Philly Hare retweeted
14 Jun 2024
(and a cheeky 3, whether you now actively encourage dementia being described as a 'living death' by communicators, journalists etc?)
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12 Jun 2024
Woke up thinking about @WendyPMitchell. Not even 4 months since she left us but feels like forever. The world is definitely a little less bright without her wonderful humour, intelligence, bravery, kindness. Sending love to all who miss her x
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3 Jun 2024
Fun at the beach today! Video by @caroline_walker_stonebalancing instagram.com/reel/C7wwOqzN1β¦
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Philly Hare retweeted
28 May 2024
our #AGoodLifeWithDementia course was observed by @UoY_SBS - a course FOR ppl w dementia designed and developed locally BY ppl w dementia. #transferability #hope #recoverymodel
28 May 2024
π’ Recent findings from the Good Life with Dementia evaluation, highlights how a course run by people with dementia, for people with dementia, can provide support, friendship and hope after a diagnosis.
Read more key messages π york.ac.uk/business-society/β¦
ALT Older people sat around a table talking. Text reads: Good life with dementia. A key message from the findings shows that people with dementia value the safe space a peer-led course provides, to be able to share their experiences and support each other, together.
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Philly Hare retweeted
16 May 2024
'People with dementia at the heart of research' is a ground-breaking new book by @phillyhare and Rachael Litherland. π
Topics include giving up driving, GP dementia reviews, living alone with dementia and using artificial intelligence (AI) platforms: uk.jkp.com/products/people-wβ¦
ALT Green and white poster. Text reads: People with dementia at the heart of research. Black, yellow, red, and cream abstract shapes that look like people are at the bottom of the poster.
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Philly Hare retweeted
14 May 2024
Really great new #ReadingWell list for people with #dementia and #carers We've been delighted to be part of this process by running a #coproduction group of people with dementia and carers to shape the new list.
14 May 2024
We're excited to announce the launch of our new #ReadingWell for dementia booklist this #DementiaActionWeek! π
The expert-endorsed list is designed to support people living with dementia, their families and carers. π
Browse the full booklist at ποΈ reading-well.org.uk
ALT Reading Well for dementia programme title surrounded by illustrations of open books. Text reads: Recommended books chosen by people living with dementia, carers and health professionals, www.reading-well.org.uk Logos for The Reading Agency, Arts Council England and Libraries Connected are displayed.
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13 May 2024
#DAW2024 #DementiaActionWeek
This year more than ever we need to highlight how ppl w #dementia can continue to contribute their skills experience
Have you ordered @Innov_Dementia's new book yet?
uk.jkp.com/products/people-wβ¦
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13 May 2024
#DementiaActionWeek
@HildaHayo (CEO @DementiaUK) says new @Innov_Dementia book is:
"an essential read for researchers academics, challenging the myths misconceptions about the ability of people with #dementia to actively participate in research."
Order from JKP or Amazon
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Philly Hare retweeted
9 May 2024
EVERY week is #DementiaActionWeek and the tutors creating the next #AGoodLifeWithDementia course in Bridlington @East_Riding are honing their messages to share. #peerlearning A course FOR ppl w dementia BY ppl w dementia @elhijodevera @GWStorr
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Philly Hare retweeted
9 May 2024
.@pollykaiser - sorry miss you off this important list!
9 May 2024
"Let's talk about death shall we?"
In #DyingMattersWeek it's a good time to revisit this fabulous resource co-created with #peoplewithdementia from @OldhamDementia with @JacquiBingham @tonyhusband1 @dementiaunited @PennineCareNHS and many others bit.ly/4dtxTmJ
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9 May 2024
.@BBCWomansHour
Huge respect for the views of @thelizcarr
But some ppl w disability do rationally decide it's better to be dead.
We need to give choice to ppl like @WendyPMitchell who had #dementia . She recently had to stop eating &drinking as the only way to end her life
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Philly Hare retweeted
9 May 2024
The way we talk about dying matters.
#DyingMattersWeek
Listen to the experts - dying people, and their closest loved ones.
In the end, it's about giving them an opportunity to control the conversation - listening, respecting, supporting.
Thanks @DyingMatters
6 May 2024
Dying Matters Awareness Week starts today π
Patricia, Mumtaz & Lucy add their voices to this @dyingmatters animation exploring the power of language at the end of someoneβs life.
π Please help share this post. Thank you.
#DMAW24 #TheWayWeTalkAboutDyingMatters @NLondonHospice
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9 May 2024
"My life was for living, but now itβs time for dying"
In #DyingMattersAwarenessWeek I recommend @WendyPMitchell 's final book "One Last Thing"
And her last blog whichmeamitoday.wordpress.coβ¦
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Philly Hare retweeted
7 May 2024
What difference does it make when people with dementia lead their own research? Watch our short film here bit.ly/3WCH8Lg and find out more in our new book about #DementiaEnquirers available from @JKPDementia uk.jkp.com/products/people-wβ¦
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7 May 2024
#DementiaActionWeek
"This inspirational book marks the emergence of a new research culture for dementia studies" (@Richard_Ward_1)
Order YOUR copy of @Innov_Dementia's new book about the groundbreaking #DementiaEnquirers project
Go to uk.jkp.com/products/people-w⦠or Amazon.
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Philly Hare retweeted
24 Apr 2024
I confess, I felt like an imposter at #adi2024 today. I'm just a 3rd Yr PhD student surrounded by amazing people. Everyone appeared to have come with someone. I felt alone, overwhelmed & desperate to have confidence to speak to others more. But, I learned a lot from the speakers.
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