Joined December 2017
- Tweets 197
- Following 62
- Followers 153
- Likes 276
15 Photos and videos
Evidence Based Child Health retweeted
30 Jun 2023
A big thank you to the CF Trust for supporting the GRAMPUS-CF Strategic Research Centre! @CFAware @questionCF @ebChildHealth @cftrust @CF_Foundation cysticfibrosis.org.uk/news/t…
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Evidence Based Child Health retweeted
26 Jun 2023
Great to see this systematic review of gut symptoms in cystic fibrosis published open access today. Flatulence, bloating and fatty stool are the major culprits! tandfonline.com/doi/full/10.…
@ebChildHealth @questionCF @CFAware
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Evidence Based Child Health retweeted
9 Jun 2023
Kudos to Florence Lockwood, medical student at UoN, for a beautiful explanation of faster orocaecal transit time in cystic fibrosis during ETI treatment @ECFS2023 Part of the GIFT-CF 3 study. @ebChildHealth @CFAware @questionCF
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Evidence Based Child Health retweeted
9 Jun 2023
Not the meds? Dr Helen Love warms up her audience with a programme of stretches prior to her giving a great talk at #ECFS2023! @questionCF @cfaware @ebChildHealth
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Evidence Based Child Health retweeted
8 Jun 2023
Thanks @AlanRSmyth for presenting the @questionCF priority refresh poster & adding many links to the newly published poster! I’m so sad to be missing #ECFS2023 in #Vienna but enjoying reading everyone’s Twitter posts. Poster 089 if anyone wants to visit.
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Evidence Based Child Health retweeted
8 Jun 2023
Great talk on multisystem MRI scanning by Alex Yule from the University of Nottingham at #ECFS2023 @questionCF @cftrust @ebChildHealth @CFAware
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Evidence Based Child Health retweeted
8 Jun 2023
Published this week! Our refresh of the JLA top 10 research priorities in cystic fibrosis. Thanks to everyone who took part! @questionCF @cftrust @ebChildHealth @CFAware @ThoraxBMJ #ECFS2023 thorax.bmj.com/content/early…
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Evidence Based Child Health retweeted
7 Jun 2023
Very pleased to see our latest @questionCF paper online just in time for #ECFS2023
Collaboration between @LindAlliance @UoNresearch @cftrust & most importantly the #cysticfibrosis community
A refresh of the top 10 research priorities in cystic fibrosis thorax.bmj.com/content/early…
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Evidence Based Child Health retweeted
31 May 2023
Thanks to the CF Trust for this fantastic support for CF Tummy Tracker! We welcome anyone with CF & aged over 12 years who would like to take part in the CF Tummy Tracker study. Details here: cftummytracker.org @questionCF @CFAware @ebChildHealth
31 May 2023
➡️ ‘CF Tummy Tracker: a patient-reported measure for gut symptoms in CF’ cysticfibrosis.org.uk/get-in…
#ClinicalTrials
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Evidence Based Child Health retweeted
5 Jun 2023
Ryan has helped us understand what gut bacteria do in CF and made a fantastic contribution to our research. Thank you! @CFAware @ebChildHealth @questionCF
5 Jun 2023
We hear the latest in our series of 'researcher profiles' from Ryan, one of our incredible researchers & scientists. Ryan is working within the Trust-funded GRAMPUS SRC, aiming to establish the causes of gut symptoms in people with CF. Read more here - cysticfibrosis.org.uk/news/i…
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Evidence Based Child Health retweeted
5 Jun 2023
Apologies if you have experienced IT glitches with CF Tummy Tracker in recent days. Our QR code died and a gremlin crept into the registration screens! It is now sorted. Please sign up now if you have tried and failed! @questionCF @CFAware @ebChildHealth
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Evidence Based Child Health retweeted
5 May 2023
Great piece from the UK Cystic Fibrosis Trust talking about how we implement the refreshed James Lind research priorities! @ebChildHealth @questionCF @CFAware
cysticfibrosis.org.uk/news/r…
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Evidence Based Child Health retweeted
9 May 2023
Thrilled to be a guest at the King’s garden party at Buckingham Palace today! Many thanks to @cftrust for the recommendation! @ebChildHealth @questionCF @CFAware @cochranecfgd @IPFdoc @NickHartGSTT
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Evidence Based Child Health retweeted
27 Apr 2023
To go straight to CF Tummy Tracker and join a simple study to help us understand the gut symptoms experienced by people with CF, click here: cftummytracker.org @questionCF @CFAware @ebChildHealth @AlexRHorsley
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Evidence Based Child Health retweeted
27 Apr 2023
If you have cystic fibrosis (CF) and you want to take part in clinical research then check out: cysticfibrosis.org.uk/get-in… Find research studies which are suitable for you. Type "tummy" into the search box and you will find CF Tummy Tracker! @questionCF @CFAware @ebChildHealth
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25 Nov 2022
Congratulations to @AlanRSmyth
25 Nov 2022
Thanks to the BTS for presenting me and the other editors in chief @ThoraxBMJ with the BTS Meritorious Service Award at #BTSWinter2022. A brilliant team with @IPFdoc and @NickHartGSTT - thanks to the deputy, associate and stats editors! @ebChildHealth @UoNFacultyMHS
Evidence Based Child Health retweeted
24 Nov 2022
Hugely hugely important and only thanks to an amazing response from the cf community.
And a lot of work by @AlanRSmyth @nicrowbotham @cftrust and others!
23 Nov 2022
Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust
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Evidence Based Child Health retweeted
23 Nov 2022
A little later than planned due to looking after lovely patients, but I’m so #excited to share our refreshed top ten priorities for #cysticfibrosis #research Thank you to everyone who helped at all stages of the process #questionCF #respisbest
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Evidence Based Child Health retweeted
23 Nov 2022
Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust
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Evidence Based Child Health retweeted
17 Nov 2022
Sherie Smith tells the NIHR Nottingham BRC Conference how we did our James Lind top 10 research refresh! @questionCF @ebChildHealth @questionCF
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