Joined March 2015
- Tweets 10,125
- Following 297
- Followers 2,468
- Likes 14,235
565 Photos and videos
Pinned Tweet
20 Apr 2022
Taking another extended Twitter hiatus. For consulting and advocacy-related inquiries, contact me via my website: annalegassie.com/. Be well, all.
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6 Apr 2023
An especially timely CMS update from my favorite health policy queen. I shouldn't need a new PA when switching jobs, plans, or providers. CC: @BCBSMA
5 Apr 2023
BIG NEWS: CMS is finalizing that an approval granted through PA must be valid for as long as medically necessary to avoid disruptions in care in accordance with applicable coverage criteria, the patient’s medical history, and the treating provider’s recommendation.
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6 Apr 2023
Here's a new fun fact I learned today after more than 30 yrs of living w/a chronic illness: by simply changing docs @BCBSMA requires a new prior auth for a drug they've already approved I've been stable on for ~8 yrs while I'm already overdue for treatment and flaring. 1/
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6 Apr 2023
It probably seems like I'm just screaming into the Twitter abyss right now but I want a public record of this before I go to my state reps, the press, and pull every other lever available to me to get access to my treatment in a timely manner 7/ CC: @BCBSMA
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6 Apr 2023
I don't know what else to say other than that in the last 30 yrs @BCBSMA has cost me MONTHS of my life in treatment delays and lost productivity at work doing everything in their power not to pay for the treatments that my doctors have deemed best for me. I'm so exhausted. 8/8
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Anna Evangeline (she/her) retweeted
1 Mar 2023
Check out Anna Ellis, our Associate Director of Patient Affairs & Advocacy, in this @PatientWorthy article, where she shares her insights on how to ensure that patients’ perspectives are included in drug development. Read more here: bit.ly/3EMBJrk #RareDiseaseDay
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Anna Evangeline (she/her) retweeted
1 Feb 2023
Hear from our Associate Director of Patient Affairs & Advocacy, Anna Ellis, on her personal connection to the rare disease community and her commitment to ensuring that patients' voices are heard in drug development. #RareDiseaseDay
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2 Feb 2023
In the last week @BCBSMA tripled my copay on one medication and denied another Rx I’ve been on for 8 yrs citing dosing (they covered this dose for the ‘22 plan year) which I only found out at the time of refill. Y’all are exhausting.
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Anna Evangeline (she/her) retweeted
19 Oct 2022
The X4 team had a blast at the Boston @IDFCommunity Walk for PI this past weekend! We are so proud of this partnership and grateful for the opportunity to support the PI community.
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13 Oct 2022
Looking forward to attending NORD's Breakthrough Summit and presenting my first-ever poster: "The “Living With Chronic Neutropenia” Survey: Experiences and Preferences of People Living With Chronic Neutropenia." #patientadvocacy
13 Oct 2022
X4 will be attending this year’s @RareDiseases (NORD) Rare Diseases & Orphan Product Breakthrough Summit where we will highlight lessons learned from a recent patient survey on living with #ChronicNeutropenia. Check out the full schedule here: bit.ly/3C0z7Fi
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Anna Evangeline (she/her) retweeted
5 Aug 2022
We're thrilled to have powerhouse advocates as faculty for our Advocacy Masterclass including @sixhips @tamikafelder @jennmcnary @CrzyCreoleMommy @BeingCharisBlog @hchang316 @LeilaniRGraham and @RarePOV! Apply now for the FALL 2022 course. ow.ly/q0Jn50KaYrs
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Anna Evangeline (she/her) retweeted
27 Jan 2022
@Medidata's new blog post explores the perspectives of #patientadvocacy experts @sixhips & @sreffey on how meaningful communication with patients can help #medicaldevice companies increase #clinicaltrial success rates. Read more: mdso.io/z0k
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22 Dec 2021
ICYMI: check out the #rheum panel I moderated as part of the inaugural #Automimmune Summit in October! @AutoimmuneAssoc
17 Dec 2021
The #Rheum breakout at the #Autoimmune Summit featured powerhouse advocates and HCPs. The panels discussed the importance of setting boundaries, tips for condition management, clinical trials, and up and coming treatments. Tune in: ow.ly/RkCh50H4fjK
Anna Evangeline (she/her) retweeted
9 Dec 2021
Today, our Senior Manager of Patient Affairs and Advocacy Operations, Anna Legassie, will join other #PatientAdvocacy leaders at a @MassMEDICouncil webinar to discuss the importance of patient engagement to successful #ClinicalTrials. Register here: bit.ly/3HOrkey
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6 Dec 2021
Looking forward to discussing the importance of #PatientEngagement to the success of medical device development with my dear friend @stales this Thu, 12/9!
Join Medidata’s @stales for a discussion on improving patient experience and engagement in #medicaldevice #clinicaltrials. Learn about the patient journey, how it impacts trial design, and how technology can facilitate patient engagement. Register today: mdso.io/sdg
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