Founder of the patient-led Speak Foundation NPO, Jesus follower, UVa grad, & rare disease advocate for Muscular Dystrophy! #believeforacure
Joined December 2009
- Tweets 871
- Following 181
- Followers 277
- Likes 437
193 Photos and videos
Pinned Tweet
22 Sep 2022
This Friday is a monumental event for the LGMD community. Join us in the Externally-led Patient-Focused Drug Development meeting for types 2A, 2C, 2D, 2E, 2F, and 2I. Go to lgmdpfdd.com Friday to view starting at 10:00 EDT.
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By partnering with the Speak Foundation, we are aligning clinical excellence with patient-centered infrastructure in a way that truly meets the needs of this community,” said Dr. Nicholas Johnson, neuromuscular neurologist at VCU Health. businesswire.com/news/home/2…
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Kathryn Bryant Knudson retweeted
26 Aug 2024
The “ALS RespCare Course” is a free, accredited US National Online ALS Respiratory Care Course that covers respiratory care for people living with amyotrophic lateral sclerosis (ALS) and related disorders. Learn more at:
alsrespcare.com/homepage.php
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Kathryn Bryant Knudson retweeted
27 Aug 2024
Thanks to @RepMikeLevin for cosponsoring the SSI Savings Penalty Elimination Act, bipartisan legislation that raises outdated #SSI asset limits to $10k/person & 20k/couple - indexed to inflation moving forward.
Support the bill 👉: votervoice.net/MDA/Campaigns…
ALT The text "MDA Advocacy thanks cosponsors of SSI Savings Penalty Elimination Act" with a jar of coins labeled "savings."
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Kathryn Bryant Knudson retweeted
6 Mar 2024
Carol Abraham, President & Founder of @LgmdAwareness, shares her thoughts on the value of the 2024 MDA Clinical and Scientific Conference: “There is no other conference like this that brings the whole neuromuscular community together in one place." #MDAconference
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Kathryn Bryant Knudson retweeted
19 Sep 2022
If prescribed, why should someone living with NMD start ventilation support at night? These are just a few interrelated reasons.
#BreathingMuscleWeakness
#MuscularDystrophy
#NeuromuscularDisease
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Kathryn Bryant Knudson retweeted
21 Sep 2022
AskBio is a proud sponsor of The Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting, which will give patients living with limb-girdle muscular dystrophy the opportunity to share their perspectives with the FDA and other stakeholders. Register today.
#LgmdAwareness
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19 Aug 2022
Our next issue of LGMD News distributes September 1st! In it, you will find everything you need to know about the upcoming LGMD EL-PFDD meeting, as well as an interview with Dr. Jerry R. Mendell! Sign up to receive it at thespeakfoundation.com/lgmd-…!
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1 Jul 2022
Have a wonderful 4th of July weekend, everyone! 🇺🇸
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29 Jun 2022
We are hearing that our Summer 2022 issue of LGMD News magazine has been hitting mailboxes already! Did you get yours?
Not yet subscribed? Don't miss another issue! Sign up to receive this incredible, FREE resource for the limb-girdle community at thespeakfoundation.com/lgmd-…!
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18 Jun 2022
We are so excited to share with you that our next issue of LGMD News magazine, available FREE to subscribers everywhere, distributes July 1st!
Not yet subscribed? Don't miss another issue! Sign up to receive this incredible resource at thespeakfoundation.com/lgmd-…!
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Kathryn Bryant Knudson retweeted
2 Jun 2022
If you’re located in the US, these are a few of the unused, consumable respiratory supplies that are FREE to those who live with an NMD (no other condition qualifies), and are in need. See inventory at breathewithmd.org/supplies-p….
#BreathingMuscleWeakness
#NeuromuscularDisease
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Kathryn Bryant Knudson retweeted
24 May 2022
The 2022 LGMD Global Advocacy Summit is now available to watch on our YouTube channel at youtube.com/watch?v=c4Q76001…! Within the week, YouTube's auto translate features will be available so you can listen to the programming in any language. Thank you for watching!
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26 May 2022
We are happy to announce that YouTube's auto translate features are now available for our 2022 LGMD Global Advocacy Summit at youtube.com/watch?v=c4Q76001…! You can now watch the programming in any language. 🌍
Thank you for watching!
20 May 2022
ARE YOU READY? The 2022 LGMD Global Advocacy Summit starts TODAY! Join us at 12:00 PM (noon) Eastern Daylight Time (EDT), UTC-4, at malone-media.com/videos/lgmd…, for the livestream event! YOU DON'T WANT TO MISS THIS!