Maker,writer,drawer.Language inventor.Multiple sclerosis since 1984. Published in Transnational Literature Journal, Leaf Journal, King River Press, Setu Journal
Joined April 2021
- Tweets 2,591
- Following 571
- Followers 347
- Likes 8,122
1,034 Photos and videos
The Journey - C Stone 2003
#multiplesclerosis #chronicillness #hope
#poetry #poetrycommunity #writing
17
Posted a video about the first 16 days of my 100 day project (which has lasted to card 502 so far).I'd love if you took a look.
#100dayproject #blackoutpoetry #alteredcards #MultipleSclerosis #chronicillness
youtu.be/n23H2tl9haY?si=V3gT…
17
Short preview of my 100 day projects for the past couple of years.
youtube.com/shorts/PuFyNYA7v…
21
Here's the 3rd part in this series of 4 short videos about my arty writing cards.
youtube.com/shorts/qQIdjwdZ1…
13
Part 2 about my arty writing cards. I'm learning a bit more with each short I film, mainly not to try when my MS fatigue is bad. 😒
#MultipleSclerosis #chronicillness #artwriting #chronicallycreativecat
youtube.com/shorts/O7Mw1YMye…
1
32
Can't do much until my broken finger heals so looking through my studio & found these cards. Closeups in short video.
#MultipleSclerosis #chronicillness #chronicallycreativecat #writing
youtube.com/shorts/mtduHq5kJ…
1
25
Getting a laugh out of paint chips & old magazines.
#MultipleSclerosis #chronicillness #collage #alteredcards #reuse #recycle
youtube.com/shorts/VhmmoZr3v…
26
Yay! Update on my broken finger. I might soon be able to grip a pen or paintbrush.
#MultipleSclerosis #chronicillness #healing
youtube.com/shorts/47t9nmJ3u…
30
Found the video I took of some visitors to my hospital room window. 🐇🐇🐇
youtube.com/shorts/xUz05tjR7…
51
It's been a heck of a year so far! 1st broken bone ever, almost a month in hospital, MS reclassified. Here's a bit about it.
youtu.be/JmAMcP0LcUE?si=e0VP…
#multiplesclerosis #msawareness #chronicillness #chronicallycreativecat
1
39
I made this in 2006, a version of Convergence by Ricky Tims. I stitched on 2300 seed beads by hand! Couldn't do that now. It won a blue ribbon at the state quilt exhibition.
#quilt #Creative #multiplesclerosis
28
I know the feeling. 😒
Feb 4
“I don’t know whether I am extremely sensitive, or whether life is unbearable.”
— Vincent van Gogh
1
187
blue sky
winding
through ancient banksias
leaf bark
scorching
In the summer heat
heat
reflected by
red brick walls
life
flows on
outside my hospital window
In hospital since 13th Jan with chest infection & MS flare-up
#haiku #poem #MultipleSclerosis #chronicillness
1
93
Been in hospital since 13th Jan. Who knew there was so much politics amongst patients in a 4 bed ward??
12
Just noticed that I didn't actually add the video in my list post so here it is. Duh!
#MultipleSclerosis #chronicillness #Creative #handmadebooks #minibook
youtube.com/shorts/xBWYpXNZy…
38
Haven't been around for a while. MS is playing up with double vision making it difficult to do much. I've made some simple 8 page books. Since filming this I had a fall resulting in a broken finger & plaster cast almost to my elbow. The cast I have now is the 3rd in 3 days!
15
30 Nov 2025
We have babies! Blue tongue lizards about 6" long. Will grow to 18-20" long.
42
18 Nov 2025
I wrote this a couple of years ago. I think it's even more relevant now.
1
1
2
24
15 Nov 2025
I don't think I've made a new video since before I went to hospital so if you're interested here's the link:
youtu.be/Hk9_mJT99fs?si=TiFR…
1
2
43
15 Aug 2025
Home from hospital. It felt like forever but was only 9 days. Apparently pneumonia cough can last a while though. Meant to post this before but better late than never. For anyone with hand problems.
#multiplesclerosis #chronicillness #Mobility
youtu.be/_ZFVjast6AE?si=oCaD…
1
84