TEDDY Network is a scientific organization aimed at structuring efforts devoted to the development of medicines tailored for children.
Joined May 2018
- Tweets 233
- Following 215
- Followers 169
- Likes 335
87 Photos and videos
30 Oct 2025
We were happy to participate at the @EFGCP "Better Medicines for Children" Conference! TEDDY experts participated in several sessions and breakout sessions, promoting discussion and expertise exchange. More info ๐ teddynetwork.net/2025/10/20/โฆ
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19 Sep 2025
A huge thank you to all who participated in iCAN Ask the Experts (ATE) event on August 16th!
๐ teddynetwork.net/2025/09/16/โฆ
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September 20 there will be a new ATE: "Shining a Light on Migraine Relief: The Science Behind Avulux Glasses"
๐ Register now: icanresearch.org/event-detaiโฆ
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18 Sep 2025
๐งฌBiotech Week 2025 is just around the corner! @teddy_network is presenting a session titled "The Active Role of TEDDY KIDS in European Paediatric Research"!
๐ Stay tuned! Weโll soon share all the details of TEDDY activities during #biotechweek.
#research #TEDDYKIDS #Biotech
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13 Aug 2025
๐จ iCAN Ask the Experts โ KIDS RAiN ๐จ
Join @ICAN_NGR on August 16th, 2025 for an exclusive webinar with iCAN Youth Members!
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Date: August 16th, 2025
โฐ Time: 8 AM PST, 11 AM PST, 5 PM EST
๐ Platform: Zoom
๐ธ Free!
icanresearch.org/event-detaiโฆ
#Empowerment #PatientEducation
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7 Jul 2025
KIDS Albania organized an #educational visit to the newly inaugurated Pediatric Hospital of the University Hospital Center โMother Teresaโ in Tirana.
They explored the Oncology and Thalassemia units, as well as the Blood Bank. ๐ฉธ
More info here: teddynetwork.net/2025/07/04/โฆ
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TEDDY Network retweeted
22 Jan 2025
The #OrphaDev4Kids is a #EU4Health funded Project and aims to support the development of Orphan #medicaldevices to be used in the paediatric population.
Want to know more about this Project and the other partners?
Stay tuned to our social media channels!
#HealthUnion #technology
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3 Jul 2024
๐ข Join our Paediatric Patient Expert Group (PEG)!
Are you aged from 1๏ธโฃ2๏ธโฃ to 1๏ธโฃ8๏ธโฃ and living with arthritis or multiple sclerosis?
You have until July 10th to apply! ๐โโ๏ธ
invents-he.eu/recruitment/
Why? ๐ค
To make #research more child-centric!
#research #patientcentric
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15 Dec 2023
Our December #newsletter is out! ๐
๐You can learn about all our #activities and #research projects here: mailchi.mp/teddynetwork.net/โฆ
Don't forget to subscribe ๐ฒ to know all about our activities!
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14 Dec 2023
๐ฃDon't miss our General Assembly on December 21st.
In this hybrid event you can learn all about our activities and #acknowledge all the giving voice to the #paediatric population.
๐ป meet.goto.com/801052565
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12 Dec 2023
๐ฃ We are happy to announce that our #representative Annalisa Lundi has been appointed to the ENCePP Steering Group.
Annalisa will continue to #advocate and ensure that the needs of the #paediatric population are acknowledged.
๐ More info: teddynetwork.net/2023/12/07/โฆ
#Research
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1 Nov 2023
๐ข@FondazioneBenzi and @uniba organise XVI Foresight Training Course โRepurposing to cover unmet needs: the current scenario in Europe and the proposed changes to the Pharmaceutical Legislationโ
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๐18 December 2023 in Bari and online
Registrationโก๏ธ tinyurl.com/mr42p7jw
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13 Jul 2023
Our Young Persons Advisory Groups KIDS Albania and KIDS Bari are having a great time at @iCANResearch 2023 Summit!
#rarediseases #research
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26 Jun 2023
Check ๐ the latest @eptri_aisbl podcast about the importance of specific medical devices for the #paediatric population! ๐
26 Jun 2023
A๐episode of our #eptripodcast ๐ is out!
Prof. Paul Dimitri, Director, NIHR Children and Young People MedTech Cooperative talks about the importance of specific medical devices for the #paediatricpopulation.
๐ eptri.eu/podcast/
#eptripodcast #podcast #medicaldevices
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29 May 2023
๐ค Have you registered for the Paediatric #Expert Patients Training Workshop?
You still can!
๐
You have until 31 May!
Today we share Daniele S. experience! See how this #experience influenced Daniele's life.
๐ejprarediseases.org/event/paโฆ
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24 May 2023
๐ค Why should you join the Paediatric Expert Patients Training Workshop?
To day we share Aurora B. experience! ๐
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You have until 31 May 2023 to register!
๐ More info: ejprarediseases.org/event/paโฆ
#rarediseasepatients #raredisease #training #empowerment
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20 May 2023
๐ฉโ๐ฌ๐Today is #InternationalClinicalTrialsDay!
Do you know our #ClinicalTrials Center #game?
It was developed to show the #paediatric population how clinical trials work in a fun and interactive way.
๐ More info: teddynetwork.net/2021/06/29/โฆ
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18 May 2023
๐ฃToday we share Valeria G. experience at the @EJPRareDiseases Paediatric #expert #patients #Training #workshop.
๐
You have until 31 May to register!
๐ More info: ejprarediseases.org/event/paโฆ
#RareDisease #Empowerment
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TEDDY Network retweeted
๐ World Duchenne Awareness Day 2023 Theme Announcement ๐
๐๐๐ฐ๐ต๐ฒ๐ป๐ป๐ฒ: ๐๐ฟ๐ฒ๐ฎ๐ธ๐ถ๐ป๐ด ๐๐ฎ๐ฟ๐ฟ๐ถ๐ฒ๐ฟ๐
On September 7, we promote social inclusion for people with dystrophinopathies.
Learn about the #WDAD2023 activities here: worldduchenneday.org/2023-duโฆ
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16 May 2023
The Intl Summer School #RareDisease #Registries & #FAIRification of #data is a great opportunity to know more about these important topics!
๐โโ๏ธDon't miss this opportunity!
You have until ๐
May 22.
More info and the registration form ๐
ejprarediseases.org/event/inโฆ
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