Big news ! 💥We've teamed up with @BrightMindsBio to bring our real-time seizure detection tech to their phase 2 trial for drug-resistant #epilepsy. Making invisible seizures visible → right from home 📱🧠💡 #digitalhealth #EEG #clinicaltrials 🔗 hubs.la/Q03tk5xR0

@Dr_Rhys's poster attracted a lot of visitors yesterday. 🙏for sparking conversations & new interest in r(20) #epilepsy. Together with @timbuckinx,Trustee, Margaret, r(20) family member rep Ring20 USA & Kentaro Tokumoto (SAB member fm 🇯🇵) r(20) is breaking new ground at #AES2024

How can breathing, sound & music can promote #BrainHealth and combat brain disorders? 🎶🧠 The #BIDays attendees experience firsthand the effects of breathing, sound and music in their bodies.

What a great first day already!

🌍 On November 13-14, join us in Brussels for the #BIDays!✨ Speakers from all over Europe & beyond will cover all kinds of exciting topics within the general theme "Navigating the Brain Across a Lifetime". Check out the programme and register now 👉 braininnovationdays.eu/progr…

Extremely excited to be speaking at the #Brain #Innovation Days about the pioneering @wrepihunter DTx strategy using auditory neuromodulation. Sound as the medicine for brain disorders! 🗓️ 13-14 Nov. 2024 📌 Brussels, Belgium #BIDays Register now: 👉 braininnovationdays.eu/

Big audience for #EEC2024 session on genetic testing. @SarahWeckhuysen very explicitly speaking about the need to do karyotyping if r(20) syndrome is suspected as it is frequently mosaic. #epilepsy #diagnostics #karyotype is still important!

Happy to participate in the great conversations for this important and insightful work!

📅Today is International Phenylketonuria Day! EBC has released Study Insights on "The Value of Education: Digital Care Pathways for Rare Brain Diseases research project – The Case of Phenylketonuria" #PKUDAY2024 #adultPKUawareness 🔍Read the report here: bit.ly/4eL8aqv

It’s so important for companies to understand why people with epilepsy need specific considerations in the workplace. Tragic losses like these should never happen. With a little knowledge, this would’ve been avoided. Make sure you don’t fail your employees epilepsy.org.uk/training

Excited to join @aparitohealth for their upcoming webinar where our CEO @timbuckinx will share insights and perspectives from our work at @wrepihunter ! #dailylifeimpact #epilepsy

With @BBCStoryWorks 📹 & @medtecheurope 🧠 🇪🇺 I share my excitement re #MedTech, its possibilities, the need for managing it well, & how it can and already is leading to improving people’s quality of life 👇🏻. linkedin.com/feed/update/urn… Examples of people and company’s leading when it comes to MedTech and the epilepsies, include: - @SBeniczky, @FiladelfiaGene1, @AllanBayat, @Elegardella, @NazaninAzarine1, at @Filadelfia_DK 🇩🇰 - @krispmelb from the @UNSW 🇦🇺 - @UNEEG_medical 🇩🇰 - @epilepsy_london team from @KingsIoPPN 🇬🇧 - @BenHBrinkmann & @jsirven from @MayoClinic 🇺🇸 - @timbuckinx & the @wrepihunter team 🇧🇪 - @JNys86, @hdanneels & the @byteflies team 🇧🇪 - @SeerMedical 🇦🇺 - Daniel Goldenholz from @bethisraellahey 🇺🇸 - Christine Maher from the @Sydney_Uni 🇦🇺 …& so many more! #epilepsy #neurology #mentalhealth #psychiatry

It’s a wrap! After an open discussion on unmet needs engaging Michelangelo Mancuso (@EANeurology), Anna Jansen (@EPNSnews) and the audience, the concluding remarks from Frédéric Destrebecq bring the event on a rare brain disease ecosystem to a close.

We turn the focus to patients and caregiver priorities, with a personal testimony from Tim Buckinx (@wrepihunter) and interventions from Matt Bolz-Johnson (@eurordis) on #MentalHealth and rare conditions and Orla Galvin (@EUneurology) on rare #neurology.

Super powerful testimony of @timbuckinx at @EU_Brain ‘Towards a Rare Brain Disease Ecosystem’ Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families #RareDiseaseAwareness

The main purpose of #RareDiseasesDay is to raise awareness about rare diseases and their impact on the lives of those affected. Discover the programme & register now 👉 braincouncil.eu/event/toward…

On the occasion of the #RareDiseasesDay, join us to explore what can be done to improve the lives of people living with a rare disease! 📅 29 February 2024 🕙 10:00-14:00 📍 Brussels & Online Discover the programme & register now 👉 braincouncil.eu/event/toward…

🌟 Exciting news! 🌟 Our phase 3 prospective study for absence seizures is featured in the Epilepsia journal Special Issue! 🎉📚 So thankful about the world's leading journal of original scientific research and commentary in epileptology. 🌍💡 🔗 hubs.la/Q02gzZz90

Pain: the common factor in touching music and health entrepreneurship linkedin.com/pulse/pain-comm… via @LinkedIn

What a great event avoiding the typical needle in the haystack inefficiencies! Indeed great conversations!