Former BSL-2/3 Preclinical Researcher, now surviving #LONGCOVID, #MCAS, #EDS, & 20 yrs of #MECFS. Artist, Bio Major, & Dino/Bird Nerd. N95 Respirator Fanboy!๐ท
Joined May 2023
- Tweets 14,610
- Following 2,338
- Followers 1,584
- Likes 11,043
569 Photos and videos
Pinned Tweet
28 Apr 2024
Sorry Iโve been MIA.
Severe 24/7 headache upper backside of head, stiff neck, vertigo/nausea, bad balance walking, xtreme light/sound sensitivity, numbness on all L side of body.
New calcifications inside skull on CT = normal & then FND diagnosis by neuro.
What can be done?
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waysidewhelp retweeted
29 Apr 2024
Bonus if you use eye protection too. Sunglasses/eyeglasses w/ side shields are my fav.
Pro-tip: Put some skin-safe silicone tape inside respie nosebridge area to create a foggless seal for glasses :)
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waysidewhelp retweeted
29 Apr 2024
Advice:
Don ur well-fitting respie b4 you leave ur abode.
Keep it on when in shared public air unless emergency doffing is required (to prevent dehydration, hyperthermia, to have CPR performed on you etc)
Doff ur respie after you get back inside abode.
Wash ur hands.
๐
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29 Apr 2024
Advice:
Don ur well-fitting respie b4 you leave ur abode.
Keep it on when in shared public air unless emergency doffing is required (to prevent dehydration, hyperthermia, to have CPR performed on you etc)
Doff ur respie after you get back inside abode.
Wash ur hands.
๐
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897
29 Apr 2024
Bonus if you use eye protection too. Sunglasses/eyeglasses w/ side shields are my fav.
Pro-tip: Put some skin-safe silicone tape inside respie nosebridge area to create a foggless seal for glasses :)
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waysidewhelp retweeted
29 Apr 2024
Do you all want A Canticle for Liebowitz? Bc this is how you get A Canticle for Liebowitz
29 Apr 2024
Increasingly convinced there was a prelapsarian Tower of Babel moment where everyone used the same plug, but people angered the god of electricity and now we have this
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29 Apr 2024
Checking in w/ all my LC peeps who Iโve missed while MIA. โค๏ธ
How are you feeling today? Be as honest as you want. ๐
The good, the bad, all of it. Anything you want to share/vent/put out there. Speak your mind in the replies.
๐๐๐
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29 Apr 2024
My pain management out of pocket costs are $700/month self pay, since the Pain Management Clinic my PCP is affiliated with refuses to help me so I can use my insurance.
ADHD treatment is $400/month oop selfpay, too.
My special medical diet for MCAS is ~$800/month. No SNAP.
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29 Apr 2024
So I really need to find a way to earn enough money that is accessible to me w/ my new physical & mental limitations with this un-treated chronic infection. Iโm un-hireable in my current health so entrepreneurship is the only way to accomplish this.
Iโm hopeful for success ๐
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waysidewhelp retweeted
29 Apr 2024
Checking in w/ all my LC peeps who Iโve missed while MIA. โค๏ธ
How are you feeling today? Be as honest as you want. ๐
The good, the bad, all of it. Anything you want to share/vent/put out there. Speak your mind in the replies.
๐๐๐
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29 Apr 2024
A helpful change I recently made to my tiny studio apartment in SF is our DIY air circulation set up:
20โ box fan facing inward w/ a Merv13 filter strapped to it (intake)
20โ box fan stacked on top facing outward (exhaust)
Intake on high speed, exhaust low speed.
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29 Apr 2024
Wanna grab a quantitive CO2 monitor next. We already monitor humidity & temp. Humidity over 80% may lead to filtration failure.
While running the box fans are LOUD so I wear earplugs. But staying in the apt during the day no longer worsens my baseline. Win!
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29 Apr 2024
Gonna try Merv14 next replacement filter. Also wanna grab a quiet hepa to replace the loud CRbox for inside the apt filtration (aka our own respiration & any air that leaks in thru our doorway to hallway etc.)
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29 Apr 2024
Been outta commission for a while - how much denial are ppl still in about how SARS-CoV-2 infections negatively affect a hostโs immune function? ๐ซฃ
Anyone know?
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29 Apr 2024
Small Update:
Started 500mg Magnesium Citrate oral gelcaps 1x daily (in evening w/ meal) today.
Gonna trial this for 40 days. According to literature, that is the min timeframe needed to correct severe systemic Mg deficiency.
Will provide weekly updates.
28 Apr 2024
Sorry Iโve been MIA.
Severe 24/7 headache upper backside of head, stiff neck, vertigo/nausea, bad balance walking, xtreme light/sound sensitivity, numbness on all L side of body.
New calcifications inside skull on CT = normal & then FND diagnosis by neuro.
What can be done?
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29 Apr 2024
Special thanks to @dysautonomian for explaining to me the importance of Magnesium in the bodyโs handling of Calcium earlier today. Without you Iโd never have looked into how my symptoms fit so well with a likely severe Mg deficiency presentation!
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29 Apr 2024
Wish me luck! Iโll hopefully be feeling better as the days go by & be more active here again. Missed yaโll so much. Sending love & healing. ๐โค๏ธโค๏ธโ๐ฉน
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