This month, @youralsnetwork is celebrating Pride Month alongside @mikeystonemusic to honor the LGBTQIA community that has been impacted by ALS. Follow us as we pass the mic and allow our talented friend, musician and person living with ALS to share his story. Throughout the month, Mikey will be sharing what pride means to him, and why it is important to the ALS community. Together, we celebrate resilience, advocacy, and the power of community while raising awareness and fostering safe connections for those navigating ALS. Show your pride. Show your support. Let’s cure ALS together!

💙 Double Your Impact for the ALS Community 💙 Did you know many employers will match charitable donations made by their employees at no extra cost to you? That means your gift to the ALS Network could go twice as far in funding critical care, support services, and advocacy for people and families living with #ALS. Visit the Double the Donation website to see if your employer participates: doublethedonation.com/alsnet… Together, we can strengthen support for the ALS community — one matched gift at a time. #ALSNetwork #DoubleYourImpact #MatchingGifts #CureALSTogether

ALS Network’s Champions for Cures and Care is on Saturday, June 20 at 6:00 pm PT at the Hyatt Regency Embarcadero in San Francisco. Our online auction is live! Go grab a sneak peek to start bidding on silent auction items today! Join us as we celebrate extraordinary individuals and organizations whose contributions and efforts advance ALS Network's mission-critical activities. For more visit: alschampions.org #ALS #ALSawareness

Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, June 16, at 12:00 PM PT/9:00 AM HST. For more information or questions, please contact Care Managers Emma Karavardanyan, M.A. at ekaravardanyan@alsnetwork.org or Shannan Sonnicksen, LCSW, MPH, at ssonnicksen@alsnetwork.org.

Brooke’s May Recap: Raised funds for @youralsnetwork ✅ Made people laugh out loud ✅ Made people care ✅ Continued being alarmingly productive ✅ Not bad for 31 days! Thanks, @limpbroozkit! 🩵

Lou Gehrig Day at Giants. Friends. Advocacy. Giants lost, but I got to eat a hot dog. Knock ALS outta the park! #lastnerve #awareness @ALSTDI @End_The_Legacy @youralsnetwork

Thank you @BitcoinRunners! Looks as though you’re more like the Bitcoin Swimmers! Bravo, on behalf of the @halfin ALS/MND Research Fund, #runningbitcoinchallenge, and @youralsnetwork Additional gratitude: @BTCPrague Let’s #cureALS together!

The ALS Network’s clinical trials page makes it easy to explore and participate in ALS research. Clinical trials play a critical role in developing new treatments and improving care for people living with ALS. Whether you're living with ALS, a caregiver, or a healthcare professional, this resource can help you learn about ongoing studies and how to get involved in advancing research. Explore available clinical trials powered by TrialX: alsnetwork.org/clinicaltrial…

Thank you to the @SFGiants for hosting an ALS Awareness Game in honor of #ourALScommunity!

Thank you to Representative Kim (@RepYoungKim) for co-sponsoring the ACT for ALS Reauthorization Act and for continuing to stand with the ALS community. This bipartisan legislation helps accelerate ALS research, strengthen nationwide infrastructure, and move promising therapies forward faster for people living with ALS and their families. Want your Member of Congress to support this important legislation? Take action today: ow.ly/RqQW50ZaGFz

Meet Daniel Potapshyn, M.A., ALS Network Support Group Facilitator. During Pride Month, Daniel is celebrating the growth and impact of the LGBTQ ALS Support Group, which he’s enjoyed facilitating for more than five years. “It has been my pleasure and honor to be the facilitator of the ALS General Support Group for LGBTQ folks and their loved ones and allies for the past 5 plus years,” Daniel shares. Since the group’s first meeting on February 16, 2021, it has grown from serving the ALS Network community to welcoming participants from across the nation. As we recognize Pride Month, we celebrate everyone who has been part of this group—past and present—and the supportive, inclusive community we continue to build together. Learn more at alsnetwork.org/pride-month/. #pridemonth #als

Join us for @youralsnetwork’s Champions for Cures and Care on Saturday, June 20, 2026, at 6:30 PM at Hyatt Regency Embarcadero in San Francisco. This event recognizes exceptional individuals and organizations whose passion and dedication support the ALS community while advancing the ALS Network's urgent mission. Can’t join us in San Francisco? Register today for free access to the Champions for Cures and Care livestream from anywhere! Visit the website and select “Livestream Ticket” in the list of options! alschampions.org #ChampionsforCures #ALS #ALSadvocacy

ALS advocacy is sustaining momentum. Thanks to our community’s ongoing advocacy, Congress continues investing in ALS priorities. Recent House spending bills included several important ALS priorities, including support for ALS research, ACT for ALS, the National ALS Registry and Biorepository, FDA rare neurodegenerative disease programs, and efforts to strengthen care and research for veterans living with ALS. These are meaningful steps forward for the ALS community, but there is still more work ahead as Congress continues the 2027 funding process. Take action and urge your lawmakers to continue supporting federal ALS priorities: ow.ly/J2OG50Z9wIT #ALS #ALSadvocacy #ALSawareness

Pride Month is about visibility. Yet ALS is a disease that can make people feel invisible. Awareness creates connection, and compassion creates change. Learn more about ALS, support those living with it, and help make every voice seen and heard at alsnetwork.org/pride-month. #als #pridemonth

Thank you to Congressman @TeamCalvert for his leadership and continued support of the ALS community as a lead sponsor of the ACT for ALS Reauthorization Act. ACT for ALS has helped accelerate research, expand access to investigational therapies, and strengthen the infrastructure driving progress toward new treatments. Reauthorizing this bipartisan legislation helps ensure that momentum continues for people living with ALS and their families. Ask your Member of Congress to support the ACT for ALS Reauthorization Act today: alsnetwork.quorum.us/campaig…

Our June eNewsletter is in your inbox, or you can view it online! Find out about our efforts in ALS research, care services, and advocacy. Read it today and share it with others! And, we invite you to join us at one or more of our community outreach events this month! Please check our calendar for upcoming events and online support groups. Be sure to visit the News and Stories section - a valuable resource for timely updates about #ALS, our community, and @youralsnetwork. bit.ly/2026-6-eNews

The ALS Network is proud to be a part of a new collaboration with @Everything_ALS, Vision 2030, and the Allen Institute to accelerate ALS scientific discovery and therapeutic development. Backed by an initial $1 million investment, this effort brings together cutting-edge science, technology, and collaboration to drive progress toward effective treatments and ultimately cures for ALS. Partnerships like these demonstrate the power of investing in innovation and uniting the research community around a shared goal of ending #ALS. Read more: ow.ly/ox1X50Z8hmk #ALSResearch #EndALS #ALSCommunity #ALS

Shoutout to Logan for throwing out today's ceremonial first pitch in honor of his grandfather, Leslie Ritchotte, for ALS Awareness Day 💙

Dr. Stella Sarraf is redefining what's possible in neurology for #ALS. In this episode of Impossible Dreams podcast, she discusses the science behind SPG302, her mission to transform ALS care, and the patient-first approach driving her work at her clinical-stage biotechnology companies Spinogenix and Amydis. Watch more at: youtube.com/watch?v=BjhLH-PR…

Applications are now open for the in-person ALS Clinical Research Learning Institute® (CRLI), taking place October 26–27, 2026, in Clearwater Beach, Florida. This two-day program provides education and training for individuals impacted by ALS who are interested in clinical research and therapy development. Graduates will be recognized as NEALS ALS Research Ambassadors and may have opportunities to help shape the future of ALS research. People living with #ALS, caregivers, family members, and genetic carriers are encouraged to apply. Selected participants living with ALS may bring one caregiver or family member, with travel and a two-night hotel stay covered by @NortheastALSConsortium. Application Deadline: July 6, 2026 For more information visit: ow.ly/HqWX50Z7ge7

In case you missed it, you can watch the “ASK ME: Living Fully, Living Well — Palliative Care for ALS” webinar now. This informative presentation features Kara Bischoff, MD, Medical Director, UCSF Palliative Care Program, and is hosted by Steve Goclowski, ALS Network’s Vice President, Care Services. Watch the full webinar at: askme.alsnetwork.org #ICYMI #ALSresearch #ALS