We are a patient-driven organization, dedicated to improving the life expectancy & quality of life for ALK-positive cancer patients worldwide. #StrongerTogether
Joined May 2018
- Tweets 3,701
- Following 918
- Followers 2,887
- Likes 5,963
1,100 Photos and videos
Meet Janice from Strongsville, Ohio. 💙
What fuels her? Her grandkids.
Every breakthrough in ALK-positive cancer research starts with families like Janice's, hoping for more time and more options.
⭐ Help fuel the next breakthrough:
secure.qgiv.com/event/fuelth…
#FuelTheCure
71
Jun 12
What fuels you? ⭐
Ian from Canada is fueled by Family & Research.
Yogesh from India is fueled by Nature.
What unites them is hope for more treatment options and a future free from ALK-positive cancer.
Help fuel the next breakthrough:
secure.qgiv.com/event/fuelth…
#FuelTheCure 🌎
81
Jun 12
Years ago, PRMT5/MTAP research and the BioNTech vaccine trial were only possibilities. Today they are becoming real — because patients helped fuel the science.
Help fuel what comes next.
👉 Donate Now: secure.qgiv.com/event/fuelth…
#FuelTheCure #APAM26 #ALKresearch #FutureFrontiers
2
130
ALKtALK is TONIGHT at 7PM ET!
Join a fellow ALK-positive patient as he shares how AI tools help him navigate cancer care — and how to use them safely alongside your care team.
👉 alkpositive.org/event/alktal…
#ALKtALK #AI
1
144
Two prisoners. Same window.
One saw mud. One saw stars.
When you receive a cancer diagnosis, life can feel exactly like that cell.
Gina Hollenbeck chose to look at the stars — and in her memory, ALK-positive Awareness Month was born. 💙
Donate Now: secure.qgiv.com/event/fuelth…
4
7
243
RT @OncogeneCancer: Living w ALK , ROS1 or other lung cancers can mean learning as you go. Questions like these ones here.
To help w ans…
2
ALK Positive retweeted
Important data.
‼️ Landmark #lungcancer research published today in Cell
Scientists at the Francis Crick Institute and UCL have discovered a 14-protein blood signature that predicts lung cancer more than 5 years before diagnosis, works in never-smokers, and could identify who benefits from prevention treatment.
People with high levels of these proteins were the ones who actually benefited from a drug to damp that inflammation down, cutting their lung cancer risk nearly in half.
This could finally give us something lung cancer has never had: a way to prevent it in the people most at risk.
doi.org/10.1016/j.cell.2026.…
#LCSM
11
27
3,942
#ASCO2026 reinforced what’s possible when patients are part of the process. We connected with researchers, industry partners, and advocates, discussed emerging ALK cancer data, and helped shape future studies. We leave with new ideas, new partnerships, and renewed determination.
1
2
9
661
🚀 June is ALK-positive Awareness Month and #FuelTheCure is LIVE.
$650,000 goal. $60,000 raised. Every gift matched right now.
We are not just funding research. We are fueling the future.
👉 secure.qgiv.com/event/fuelth…
#FuelTheCure #APAM26 #LookingToTheStars
1
1
9
205
May 31
We were thrilled to be live at #ASCO26 to hear Dr @vincentlamMD presenting the results of the ARCHER trial - a prophylactic peptide vaccine targeting ALK.
Thanks @oncodaily for sharing. More research = more hope & life
May 31
We would like to inform you that your post has been published on OncoDaily. Thank you for sharing.
oncodaily.com/voices/vincent…
5
9
622
ALK Positive retweeted
May 31
We would like to inform you that your post has been published on OncoDaily. Thank you for sharing.
oncodaily.com/voices/vincent…
2
1
768
ALK Positive retweeted
#ASCO26 is amazing, but cost time prohibitive for most patients. Look forward to a virtual chat with the powerhouse @ALKPositiveinc patient community to share updates answer questions live from @ASCO! 5/31 6pm CST by Zoom ⬇️
#LCSM @alk_fusion @LUNGevity @YoungLungCancer
May 30
Live from ASCO: ALKtALK with Dr. Christine Lovly
Get real-time updates from the ASCO Annual Meeting and what they mean for the ALK community—straight from a leading researcher and advocate.
📅 May 31, 2026
🕖 7 PM ET
📍 Zoom (broadcast live from ASCO)
4
8
29
1,793
May 30
Live from ASCO: ALKtALK with Dr. Christine Lovly
Get real-time updates from the ASCO Annual Meeting and what they mean for the ALK community—straight from a leading researcher and advocate.
📅 May 31, 2026
🕖 7 PM ET
📍 Zoom (broadcast live from ASCO)
2
8
1,968
ALK Positive retweeted
May 29
May 29
🔬 ALK Positive is heading to #ASCO26 in Chicago! Excited to learn from the latest ALK-positive lung cancer research, connect with the oncology community, and continue advocating for patients and families. If you’re attending, we hope to see you there! 👋
#ALKPositive
2
7
298
ALK Positive retweeted
May 29
🆙 #ASCO26 #LCSM Oral
🔥CROWN: Lorlatinib vs Crizotinib in ALK NSCLC
✅mPFS NR (HR 0.19)
✅7-yr PFS 55% vs 3%
✅44% still on lorlatinib at 7y
✅No new IC progression after 30m
🎙️ @TonyMok9
🔢8502
☑️NCT03052608
🔗 asco.org/abstracts-presentat…
@OncoAlert @Larvol @ASCO @IASLC @ALKPositiveinc
11
16
852
ALK Positive retweeted
May 29
Thank you for amplifying my post! It’s a really important message for oncologists as well. I see far too many of my colleagues pushing for 100mg no matter what it’s doing to the patient.
1
2
207
ALK Positive retweeted
May 29
As impressive as lorlatinib is in the treatment of ALK NSCLC, there’s still room for improvement. Neladalkib can still produce a fair number of responses, including in the brain, post-lorlatinib. Attention patients, this drug can be accessed via an EAP! @ALKPositiveinc #ASCO2026
1
5
9
907
ALK Positive retweeted
May 29
Dose-reduced lorlatinib (50mg or 75mg) works just as well as full-dose lorlatinib (100mg). Don’t be afraid to reduce the dose (or even start at a lower dose) if patients are struggling with or worried about toxicity! @ALKPositiveinc #ASCO2026
2
9
14
1,140