Providing physiotherapy information and advice for adults with Cystic Fibrosis. Our tweets do not replace the specific advice from your own physiotherapist.
We have updated our website today to provide the latest information about Creon availability, and what to do if you are experiencing difficulties in accessing the medications. (1/3)
➡️ ow.ly/saKP50RI1zi
Hot off the press! We have just released the agenda for our meeting to launch the new Standards of Care for people living with #NTM disease.
To take a look and to register to attend this free meeting, please visit: ntmnetworkuk.com/standards-o…@UCLTB@NHSEngland @BTSrespiratory
Publication Alert!📢🚨😀This commentary discusses a RCT that we failed to recruit to.bit.ly/3xb4NrQ
"Why publish something that didn't work?!" some may ask.
"Why hide it?", I say.
We learn many lessons along the way, and these papers help the whole academic community.
Have you checked out our online resources on physiotherapy recently?
🫁 This leaflet talks about physiotherapy and airway clearance with diagrams explaining how CF affects the lungs and information on the different types of airway clearance.
➡️ ow.ly/1bxz50R3mAl
Lung MRI has the potential to help in cystic fibrosis care but we need your help in understanding how this might work. Please complete our survey and share your views: forms.office.com/e/zvqaUWT4Z…#MRI#CysticFibrosis
ALT Do you have cystic fibrosis or care for someone who does?
Are you a CF healthcare professional?
Are you interested in helping develop new technologies for the benefit of people with CF?
If so, we need your help!
The MAGNIFY Strategic Research Centre is funded by the CF Trust to explore the use of lung magnetic resonance imaging (MRI) in CF care. Lung MRI can help in the monitoring and management of CF, as well as in testing new inhaled treatments.
Please click the link in this post to complete our survey and provide your opinions and experience of lung MRI. Your contribution will help to support the use of the technology in CF.
Please contact Dan Beever, PhD student, for further information: daniel.beever@nottingham.ac.uk.
👋 Hi everyone, I'm Catherine Brown, the new ACPCF Public Relations Officer.
I wanted to take the opportunity to introduce myself, ask about you, and ask if there is anything you'd like to see on here :)
Please comment below👀⬇️
#ACPCF#CFPHYSIO#CFTRUST#CYSTICFIBROSIS
Please participate in this online focus group
✅work in UK Adult CF Centre
✅dietitian, physio, CNS or Dr
✅ opportunity to share your views on weight management and CF
@bda_cf@CF_Exercise@CF_physios@cftrust
Sign up to take part here heartlandscf.org/research
Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and @YogaForCF is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here beamfeelgood.com/blogs/beam-…
Today we are thrilled to announce a multi-year co-funding grant with @CFCanada looking into the bacteria Mycobacterium abscessus that causes serious lung infections in people with CF.
You can find out more about this exciting research on our website!
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🎆Happy New Year!
💛We hope you all had a lovely one! We wanted to highlight a great #CFliveevent that our Dietitian Katie is involved in!
💵Eating on a budget might be on your mind this new year so register below on come and see what tips/advice you can get!
Hear from professional chef Luke & others at our next #CFLive event, #Eatingonabudget on 10th Jan.
⭐"I’m looking forward to this CF Live and teaching people how to be thrifty when shopping, what to buy when, & sharing some cooking tips and advice".⭐
ow.ly/SYg650M8kjZ
📢Are you a qualified physiotherapist who works regularly with patients with Cystic Fibrosis interested in the effects of Kaftrio on physiotherapy treatment??
👋We would like to invite you to take part in a focus group to discuss your experiences.
⁉️ Scan the QR code for more.
CFPhysio 4 Kids is now live. This educational resource aims to empower, inform, and support you whilst navigating the CF journey. Thank you CFT for support through a Circle of Care grant to help make this next phase of CFPhysio.com happen.
cfphysio.com
Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF@ebChildHealth@CFAware@ThoraxBMJ@cftrust