Mum to childhood brain tumour/stroke survivor, Carer, Writer, Accessible Medical Records Advocate, ex NHS therapy/diagnostic radiographer aiming to improve care

Joined November 2014
334 Photos and videos
Pinned Tweet
19 Apr 2019
Cancer Mum: So why do Patients and Carers want Health Records? cancermumblog.wordpress.com/…
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Cancer Mum retweeted
Replying to @Johnrashton47
We (patients) don't want AA or PA in our #NHS hospitals and GP surgeries. If AA and PA want to treat patients then get a medical degree.
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Cancer Mum retweeted
We spent thousands so Laura could access treatment abroad & we're definitely not the only ones. It always frustrated me that this information simply wasn't captured anywhere Now @ourbrainbankuk are launching a research project to do just that so pls help ➡️obbuk.qualtrics.com/jfe/form…
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17 Nov 2025
I'm in my useless GPs waiting room. An old man is upset as he'd come in to make an appointment. The cow on reception is telling him he has to do it online at home. I offered to help him& gave him my number. Now they've appeared with an iPad to go through the 'war & peace' e-forms he's got to fill out. Probably starting with "are you pregnant?" HE JUST WANTS AN APPOINTMENT.
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Cancer Mum retweeted
Morning. I'm a bit puzzled at why Rayner is talking about closing allotments. We have a large one in our village that I imagine has been there for decades, very well kept by locals and somewhere they enjoy going to chat and socialise as well as grow their prize marrows and enjoy the outdoors. What the feck is wrong with that? What harm is an allotment doing to our government and our country? People need their hobbies and interests, and they need to mix with other like-minded folk. Honestly, this is just cruel towards good people who are probably retired and don't have a big garden or any garden at home, and just want to do something they enjoy. Anyway, have a great day. 😒
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Cancer Mum retweeted
doctors need to know the sex of their patients for multiple clinical (safety) reasons. Sex is determined at conception and recognised often in utero and described at birth. It's not assigned like a random dicethrow. We know this.
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Cancer Mum retweeted
@BBCNews please correct your article
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4 Jul 2025
Today was helping with an 18 year in an international rowing regatta. - she was getting a tight chest typical of her asthma after the race but her Ventolin inhaler had run out - long standing asthma diagnosis and exercised induced She has to row tomorrow and is away from home Parent goes to Boots and explains situation and asks to buy another inhaler - Boots pharmacist can check her GP medical history online but says she hasn’t had a GP review of her asthma for 6 months and says another inhaler can’t be issued until GP review - ffs Protocol driven healthcare is a complete waste of money and withdraws professionalism from very highly trained people - it stops people thinking and doing the common sense thing - what a shame for anyone involved
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Cancer Mum retweeted
Replying to @bikerpaul68
Agreed. One imagines she received the proper training, but either wasn't paying attention or is not blessed with any common sense, and was unable to use her discretion and recognise that not all situations will fit the standard, software generated protocol. She had all the information required to categorize the situation as at least a category 3: heavy fall to concrete surface, heavy breathing, immobility, shock, anxiety, distress, bleeding from nose, and environmental risks (extreme heat, unhygienic conditions, public thoroughfare). Instead, she triaged it as a low risk category 4 and flagged it for a clinician call back. The problem with computer-generated protocols is that you need an intelligent human being to assess the situation and input key data - the distinction between falling on a carpeted surface indoors and falling on a concrete surface outside being key, as was the age of the woman and fact she was already a falls risk. I despair.
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Cancer Mum retweeted
17 Jun 2025
Why are GP surgeries allowing receptionists to screen whether you need a same day appointment or can wait a week? It’s ridiculous. What are they basing these decisions on as non-clinical staff?
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Cancer Mum retweeted
Replying to @DocDoLi
As they should . They are legally bound to do so .
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Cancer Mum retweeted
‼️CALLING ALL CARERS , PATIENTS AND HEALTHCARE PROFESSIONALS ‼️ Please fill in this short survey regarding physician associates . letstalksnee.co.uk/physician…

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Cancer Mum retweeted
Replying to @AIMS_online
What is it that is causing women to fear physiological birth ? Inadequate dangerous maternity services and ideologs on both sides of the debate #nhsmaternityservices
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2 Jun 2025
If PAs with a 2 year training can work in GP why can’t the FY2s who are about to be unemployed as they are infinitely better trained, able and suitable ? Why is it unsafe for a qualified experienced fully registered doctor to do this but it is safe for a PA?
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Cancer Mum retweeted
Replying to @drkeithsiau
This is sooo true of thyroid function. Especially basic tests done in general practice.
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Cancer Mum retweeted
No patient wants resident doctors to take industrial action. It erodes trust. I would suggest that what pts want, and what therefore you might consider supporting, is good care from highly-skilled, properly rewarded doctors, not inadequately trained ancillary staff ‘having a go’
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Replying to @DrSdeG
My mum is profoundly deaf. It’s flagged on every NHS system but she continuously gets phone calls regardless. It’s caused her a lot of psychological stress as trying to resolve without the phone is incredibly difficult.
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Cancer Mum retweeted
Russell the Hedgehog has gone missing on Holiday..... He's been with Orla for 2 years and has never missed a holiday or dinner together.
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20 May 2025
And listen to the parents/relatives who know the person best!! The disdain towards mothers is unbelievable!!
Replying to @DrJ_Haddock
Rule number 1 of medicine. Always see the patient. Assume nothing, believe nobody, check everything.
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17 May 2025
So many times! And In the SE many specialties provided by London hospitals out of area and yet the Kent and Medway Care Record is a totally separate system with no record sharing.
Replying to @ShaunLintern
Also early appointments given to people living the furthest away, or people with disabilities So easy to check when making the bookings but no-one cares about these small but important details any more
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Cancer Mum retweeted
Nurses demand voice in physician associate review nursingtimes.net/policies-an…
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