Are you a cancer patient, person living with cancer, or cancer survivor interested in improving access to quality supportive care? Do you want to help #MakeCancerLessShitty? If so, we are actively seeking MCLS ambassadors! Learn More: makecancerlessshitty.com/mclโฆ#SuppOnc#SurvOnc
Oral mucositis (OM) can severely impact quality of life - we need to improve quality supportive care to help #MakeCancerLessShitty for all individuals!
Today also happens to be Oral Mucositis Awareness Day #OMAD25#MoreThanASore
Oral Mucositis (cancer mouth sores) is a side effect of cancer treatment that affects 40-75% of people receiving chemotherapy, 75-100% of those undergoing transplants, and almost 100% of people going through radiation treatment for head and neck cancers
Chemo round 164 There are so many strong emotions going through me right now and a lot of things are happening in the world today it's overwhelming at times especially on top of having cancer. What shouldn't be happening is Cancer research and funding getting cut at all
Happy 4 Year Cancerversary to me!
Cancer has taken a lot, but itโs also given me:
๐ Surfing
๐๏ธ Hiking the Dolomites
โต Sailing in Santorini
๐ค Meeting Shania Twain (!!)
Grateful for every moment. Letโs keep making cancer less shitty. ๐ ##MakeCancerLessShitty
Managing 13 pills daily, plus as-needed meds, can be overwhelming. I number each bottleโs lid and mark as-needed ones with a ring for clarity. How do you manage your meds? Share your tips! ๐โจ #nsclc#ChronicIllnessLife#PillBoxOrganization#makecancerlessshitty
There were times I wished for diarrhea due to the severity of the constipation I had -- crazy wish.
Hoping things are as well as possible for you...
Yep, I am surprised the makers of chemo-meds have not re-marketed them as anti-obesity meds like Ozempic. ๐คทโโ๏ธ
#CancerSucks
A few months ago I joined @CancerSuckLess as a group to help raise awareness of the reality of the cancer experience And educate people through my experience with a focus on the reality of the side effects of treatment in effort to show the need for improved care and support
Lost 15lbs in a dayโwho needs a gym when youโve got gut-wrenching constipation and a toilet marathon? ๐ฉ Shoutout to my iron meds for the extra challenge! #toiletgains#keepinitreal#makecancerlessshitty
Through every seasonโholidays, hardships, and even cancerโthis crew has been my rock. ๐ They make the hard days lighter & the good days sweeter. Support like this makes cancer less shitty. Grateful for love, laughter, & strength. โค๏ธ #MakeCancerLessShitty#SupportMatters
Sometimes all we can do is keep trying
Keep trying to be the best we can do
Keep trying to be nicer
Keep trying to be more understanding
Keep trying to love better
Keep trying to educate better
Keep trying to grow as a person
Keep trying to get through the hard days
As we enter the holiday season this year so many memories come back over the last 9 holiday seasons since I was diagnosed with colorectal cancer. Cance changes everything and not just for the patient but the caregivers the support around you friends family and more.
November is National Family Caregivers Month (NFCM) Caregivers play vital roles in lives of cancer patients & survivors, offering us emotional support, practical assistance, and encouragement. Who is part of your caregiver community? How do they help you to #makecancerlessshitty
American Society of Clinical Oncology guideline update on palliative care for patients with cancer: Addressing the reality gap Commentary on Cancer by ACS
The American Society of Clinical Oncology's recommendations for integrating palliative care into oncology are commendable but face significant practical challenges, including workforce shortages, limited resources, and insufficient financial support for necessary research.
While these guidelines provide an aspirational framework, their full implementation may be unattainable for many programs. Practical strategies for adopting these recommendations at cancer centers are proposed, emphasizing the need for financial and quality incentives to drive the broader integration of palliative care into the healthcare system.
@FionnualaCrowle@cardismith@rabob@JournalCancerbuff.ly/3AQh6vG
"The year after beating cancer was harder for me than the year of treatment."
Survivorship is tough and needs to be included in efforts to #MakeCancerLessShitty#SuppOnc#SurvOnc
I say this not to discourage cancer survivors but to equip them.
The year after beating cancer was harder for me than the year of treatment.
Itโs a weird phenomenon.
Regardless, God is good.
@ThanksCancer
We want to #MakeCancerLessShitty for everyone!
We want to hear from all individuals as they share their stories.
We want to reduce toxicities, improve access to supportive care, and protect quality of life for everyone.
We're also on Instagram, Threads, FB, and now BlueSky!
Little things that make the cancer experience better:
๐ Those free soft hats donated to the cancer center
๐ Dozens of survivors whose names Iโll never remember who answered all my questions
๐ Friendly front desk people
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