Joined September 2009
- Tweets 1,014
- Following 268
- Followers 8,016
- Likes 227
67 Photos and videos
27 Sep 2023
I did my annual "F*ck You MS" tower climb and successfully made it to the top! Yay!
20
10
250
6,392
31 Dec 2022
2022 has been an interesting year! As always, ending the year with elevated MS symptoms! Wish I understood why the onset of winter worsens my MS! I wish you all the best possible health and a wealth of happiness in 2023. ❤️
4
18
1,638
6 Dec 2022
There are now three horses that I ride for my lessons! I spent the majority of summer on Saffron, the chestnut (the football at Halloween!) but still sometimes ride Reno the grey (white horse). Most recently, I started riding Cali, the palomino (Barbie’s dream horse lookalike!)
4
20 May 2022
So I had an interesting lesson April 27th. I did my first sitting trot AND my first canter! Sadly, I also had my first fall! I lost my left stirrup when I asked for the canter and I couldn't recover my balance at that speed! Tomorrow I am back in the saddle again! Fingers crossed
2
11
27 Feb 2022
Are there other people out there with MS that would like to try horseback riding? Is it a dream never realized? What were your barriers to riding? Tell me please! #MultipleSclerosis #riding #Horses
5
1
20
8 Feb 2022
I feel the need to break my silence! (I've been concentrating on private conversations with fellow MSers lately!)
I've started a new sport! And the results are so astounding, my wish is that everyone with MS get a chance to do this too! 1/4
1
8
8 Feb 2022
Riding is about balance (the one thing just about everyone with MS can struggle with). My standing balance has improved so much in just 5 weeks, I can stand with my feet close together (without losing my balance) for the first time in 15 years! 3/4
2
7
8 Feb 2022
I've been lucky enough to find a World class teacher, too! (She teaches professionals - even Olympic level riders!) I wish I could make riding financially accessible to everyone with MS. This is a lifelong dream come true! #HorseRiding #MultipleSclerosis 4/4
6
15 Nov 2020
Challenging, because the waves on either side made my dizziness worse, so it was dangerous and difficult. A great challenge! I made it to the end and even climbed some stairs to touch the lighthouse at the end! (I left my walker at the stairs!) (part 2)
3
7
15 Nov 2020
Then I went on a 4km hike at Balls Falls. I used nordic walking poles to assist me with the hike! My great-niece assisted me with both events! The weather was unusually warm and gorgeous and sunny. So not what I usually do, but it was a good fight against MS anyway! (Part 3 of 3)
1
1
7
15 Nov 2020
So I did my annual "Fuck You MS" event this past week. The park that houses the tower I usually climb is closed for the entirety of 2020 due to COVID, so I had to find another challenge. I walked the length of a pier jutting out into Lake Erie. (part 1)
16
28 Sep 2020
Normally I would plan my annual “fuck you MS” tower climb in Dorset, Ontario, which I have done every year since my diagnosis of MS. The park and tower are closed for the entirety of 2020 due to COVID. It is both a mental and physical challenge. Any ideas what I could do instead?
3
9
Multiple Sclerosis retweeted
28 Sep 2020
Enrollment in this study is about to close! Researchers at Kessler Foundation need to hear from a few more individuals who choose to NOT take medications for their multiple sclerosis. Contact Jackie at 973-324-8429 or JLeddy@kesslerfoundation.org for more information.
4
2
Multiple Sclerosis retweeted
12 Aug 2020
Need more individuals with #MS #MultipleSclerosis ! Tell us about your #COVID19 #pandemic #experience. research.njms.rutgers.edu/re…
@KesslerFdn @drvoelbel @MS_HealthUnion
22 Jul 2020
Help researchers study how the #COVID19 #Pandemic has affected those with #Stroke, #MultipleSclerosis or #TraumaticBrainInjury? 30-minute online survey and chance to win a $100 amazon gift card, click below: research.njms.rutgers.edu/re…
@RealTalkMS_jon @Coping_with_MS
3
8
Multiple Sclerosis retweeted
24 May 2020
I totally agree! Keep moving! Aquafit is great, because if you lose your balance, you just get wet. I love cycling! Nordic walking poles can help with walking on uneven surfaces. Toronto Rehab has put together exercises for people with mobility issues. uhn.ca/TorontoRehab/Clinics/…
1
2
3
Multiple Sclerosis retweeted
24 May 2020
People with multiple sclerosis can and should move no matter where they are in the course of the disease. #exercise should be tailored to each patient ideally reaching at least 150 min of #PhysicalActivity a week. #ActiveChallenge2020 washingtonpost.com/health/ex…
2
11
26
18 May 2020
Last fall, I started swimming. I thought since the cycling was going so well, I would try getting my body into shape to do an “aqua bike” in a triathlon. Two months in isolation has put my fitness level back two years! Will have to seriously concentrate on cycling for a bit!
1
4
8 Oct 2019
This looks promising! 'Trojan horse' treatment for MS shows promising results in lab tests | CBC News cbc.ca/news/canada/saskatche…
2
9