ALT DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says ‘We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.’ At the bottom left of the graphic is an image of a research paper.

ALT DecodeME graphic. In the centre it says 'Thank you' in white cursive writing and beneath it 'from DecodeME'.

ALT DecodeME graphic. In the centre it says 'Your data and consent. If you took part in DecodeME, your data will continue to be held securely by the University of Edinburgh. Any consents you gave, for wider use or recontact, remain valid'. Beneath this in a speech bubble it says 'To update your details or consent, please email decodeme.ed.ac.uk'.

ALT DecodeME 'New Blog Post'. Titled: 'What's next for DecodeME?'. 'We shared our initial DNA results over the past few weeks to a wonderful response and widespread media coverage. Now, we are moving into the next phase of the study and have some updates to share.' There is an image of a scientist wearing goggles and pointing to a blackboard with a DNA helix.

ALT DecodeME post titled 'Support future ME/CFS research'. There is a picture of two hands and in between it is a green heart that says 'donate'. At the bottom of the graphic it says 'Donations will be used towards research projects such as the Genetics Centre of Excellence and Sequence ME and Long Covid.

ALT DecodeME 'The Results'. Post reads: 'Our Genetic Results webinar video and transcript are now available!'. Beneath this is an image of a clapperboard and an image of a transcript.

ALT New website! DecodeME's website has moved to the University of Edinburgh's site. Find the link in our bio.

ALT Image of Claire from DecodeME's PPI. Claire has fair skin, brown hair and is grinning. She is quoted saying "For DecodeME to show evidence validating ME as a physiological disease is enormously satisfying. My sense of pride and achievement at being part of this groundbreaking study is immeasurable. This solid scientific data from DecodeME brings new hope. I look forward to seeing where these discoveries lead for people with ME, and their families and carers."

ALT Photo of Tabby, a DecodeME participant, next to the quote: "Knowing that my DNA was a part of this study gives me a real sense of being part of something that is both exciting and could be the start of real change. Ever since my diagnosis I have been reading every bit of research I could find to try to understand this condition, and when I saw the opportunity to contribute to this study, I had to take it!'

ALT Screenshot of BBC Radio 5. Beneath this it says BBC Radio 5 Live, 7th August.

ALT Screenshot of The Guardian article by Ian Sample, 6th of August with headline 'Scientists find link between genes and ME/chronic fatigue syndrome'. Screenshot of The Times article by David Leask, 7th of August with the headline 'Lack of ME research because of 'medical misogyny', says top scientist', please note that this article is behind a paywall.

ALT Screenshot of Science article by Catherine Offord, 6th of August with headline 'Possible genetic clues to ME/ chronic fatigue syndrome identified in massive study'. Screenshot of New Scientist article by Michael Marshall 6th of August with headline 'Key genetic differences found in people with chronic fatigue syndrome'. Please note that this article is behind a paywall.

ALT News coverage. We have been blown away by the public interest in DecodeME's initial DNA findings. Please swipe to check out some of our press coverage. Links to full segments, interviews and articles will be in our bio.

ALT Screenshot of Prof Chris Ponting and DecodeME participant. Beneath this it says 'Channel 4 News at 7pm, 6th August'.

ALT Screenshot of BBC news reporter and Prof Chris Ponting. Beneath this it says BBC Scotland News at 7pm, 6th August.

ALT Screenshot of BBC Radio 4 Today. Beneath this it says BBC Radio 4 Today Program, 7th August.

ALT Photo of Sian Leary, from DecodeME patient and public involvement, next to the quote: "Having been on the Patient and Public Involvement Steering Group for the past 5 years, I want to celebrate this moment, but also to acknowledge the intense suffering pwME continue to endure. This study gives each of us validation that too often has been missing from healthcare professionals and close ones. We are a significant step closer to identifying the causes of ME, and to finding treatments."

ALT Photo of Andy Devereux-Cooke, PPI member and Co-Investigator, next to his quote: "DecodeME shows the incredible level of support that the ME/CFS community can give to research that involves them on a deep and meaningful level. Without the community, we could not have achieved all that we have"

ALT Genetic results webinar. Join us on Zoom or Facebook, Thursday 14th August 2025, 15:30-16:30 BST. Photos of the DecodeME management team.