Joined January 2015
- Tweets 10,089
- Following 1,151
- Followers 2,875
- Likes 9,972
438 Photos and videos
6 Aug 2024
I'd go further: this adds to the increasing evidence showing breast is NOT part of Lynch.
That said, when breast cancer does occur in women with Lynch it tends to loose mismatch repair (so a potential target for immunotherapy) and be medullary in type. doi.org/10.1093/jnci/djad153
🆕 Cancer risk estimates for Lynch syndrome:
▶️ Large population-based cohort: @uk_biobank
▶️ 830 carriers of pathogenic or likely pathogenic MMR gene variants
▶️ Results suggest that Breast Cancer is not an LS-related cancer
📌 bit.ly/3WgBA7t
👤 @Doctor_IMF
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4 Jul 2024
Well done, in more ways than one by the look of it!
@DrAnnAger & I got married 41y ago on Tuesday. Had to get a mate (later the deputy CMO for Nigeria) to take the cardiac arrest bleep @addenbrookes at 4am so I could get some kip before picking my suit up. Those were the days ...
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28 May 2024
📣 Are you conducting/planning research in to #LongCovid?
🌟Book a slot with our newly launched Research Involvement Consultancy!🌟
Ensure your study is relevant, robust and keeps the patient voice at the centre.
More info.: tinyurl.com/longcovidRIC
#PatientInvolvement
ALT ARE YOU CONDUCTING RESEARCH INTO LONG COVID? Ensure your study is relevant, robust and keeps the patient voice at the centre LONG COVID SUPPORT Research Involvement Consultancy "Long Covid Support were critical to the success of our international project" - Dr. Tim Nicholson Contact us: Research@longcovid.org www.tinyurl.com/longcovidRIC www.longcovid.org Long Covid Support is a registered charity in England and Wales (1198938)
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7 Apr 2024
The proudest moment of my professional life. To win #teamscirnce @AACR 2024 is beyond amazing. I cannot thank @ProfEmmaCrosbie, Prof Evan’s and the team everything. So proud to have impacted the care of #lynchsyndrome carriers. We do it for the patients. @FBMH_UoM @EdinUni_CRH
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22 Mar 2024
@CaPP3 @kevinjmonahan @neilajryan @Doctor_IMF @lauramongar @TMSnowsill @kohut_kelly @KellyElizaLloyd @derm_scientist if I have missed you off my list I apologise but feel free to comment below 🙈🥂🍾🙈
Thanks to everyone involved in Lynch Syndrome genetics 🧬 ( @dee_laah )
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22 Mar 2024
We just want to do a shout-out and say a huge ‘thank you’ to our fantastic Trustees & Members who were involved in this work - @ruairidhm, @Know_HG, @JoD66, Mike Ormerod & @Doctor_IMF.
We know when you have #LongCovid how much work like this takes out of you, so thank you all.🙏
21 Mar 2024
🧵Our new macroeconomic impact report on Long Covid in the UK reveals #LongCovid could cause job losses across the UK economy, with the service sectors, women and low-income households experiencing most of the effects.➡️bit.ly/4anCzIx 1/7
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25 Mar 2024
@LynchSyndromeUK well done & thank you for another fantastic conference on Saturday at U of Warwick. An inspiring gathering of dedicated people with #lynchsyndrome, researchers and clinicians with shared goals to improve knowledge, care experience and outcomes for families.
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27 Mar 2024
Our microclots methods finding traction! @dbkell
Amyloid-Fibrinogen Aggregates ("Microclots") Predict Risks of Disseminated Intravascular Coagulation and Mortality
PDF: ashpublications.org/bloodadv…
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21 Mar 2024
Maybe @vaughangething and @WelshGovernment will now sit up, take notice and do something, such as providing medical Consultant-led #LongCovid clinics. If they don't then they will be discriminating against those disabled by #LongCovid
@covidinquiryuk
@long_covid
20 Mar 2024
🧵OUT TODAY: New economic analysis reveals Long Covid could be a long-term drag on economic growth and add pressure to already strained NHS 📊🔍 1/8
Find out more here: bit.ly/3PtysTs #LongCovidAwareness #LongCovid #PublicHealth #EconomicInactivity
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17 Mar 2024
There was a deliberate, concerted effort on Friday to poison public perception through the media. Even if corrections/retractions are made, the damage is already done. LC advocates don't have journalists in our pockets like these people do. We need scientists/Drs to speak up.
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16 Mar 2024
Appalling. A disgraceful, reprehensible misrepresentation of the facts on #LongCovid
@long_covid
15 Mar 2024
Shame, shame, shame on @guardian for publishing such headline & on #LongCovidAwarenessDay of all days.
Study DID NOT find it’s time to stop using the term #LongCovid which shouldn’t be between quotation marks.
Ask yourself in whose interest this dismissal & stigmatisation is in.
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16 Mar 2024
It is all the more curious after @Telegraph ran this article quoting my part in the @covidinquiryuk impact video. Did someone feel threatened?
telegraph.co.uk/news/2024/02…
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15 Mar 2024
Today is #LongCovidAwarenessDay. My promise to patients who are desperate for acknowledgment and care: we will not stop until we have accessible diagnostics and accepted treatments. #noplaceforminimizers
whn.global/scientific/spectr…
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15 Mar 2024
It's #LongCovidAwarenessDay. Why not listen to the latest @EBNursingBMJ podcast by two of our trustees - @MichaelaBarnard and @alitwy: ebnbmj.podbean.com/e/reflect…
#ConfrontLongCovid #CareForThoseWhoCared
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13 Mar 2024
Re lack of testing capacity in 🏴 & premature discharge of elderly.
The @covidinquiryuk should look into what happened to the negotiations with Roche by Gething that fell through. He said then wasn't the time to ask questions. Now is.
#WalesLive
@long_covid
@cymru_inquiry
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13 Mar 2024
📣🚨 From our charity Advisor @zalaly:
“The world must not turn its back on people suffering from #LongCovid.
Long Covid is a global health crisis.
Addressing Long Covid is not only a moral imperative, it is an economic imperative.”
#ConfrontLongCovid
#LongCovidAwarenessDay
ALT Image of SARS-CoV-2 virus particles crashing into the earth. Next to this is the Long Covid Awareness ribbon, our Long Covid Support logo, website address www.longcovid.org and text: “The world must not turn its back on people suffering from Long Covid. Long Covid is a global health crisis. Addressing Long Covid is not only a moral imperative, it is an economic imperative.” Dr. Ziyad Al-Aly Clinical Epidemiologist, Researcher & Long Covid Support Advisor #ConfrontLongCovid Long Covid Support is a registered charity in England and Wales (1198938)
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5 Mar 2024
Please sign this petition for more investment in our speech and language services.
#InvestInSLT
petition.parliament.uk/petit…
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11 Mar 2024
🙏
I'm the original subject in the first study by Prof Cummings on the effect of #LongCovid on language & cognition.
Cummings, L.
Int J Language Studies
15(3), 1-24. ISSN
2157-4898
researchgate.net/publication…
@RCSLT
@CUSystemsImmu
@long_covid
8 Mar 2024
Always interesting to hear about Prof Cumming work. Just occurs to me we haven't heard of any one else investigating language difficulties in Long Covid... Is Prof Cummings the only one?
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We've just published our latest long covid story - Diana’s Story - Click the link to read all the detail #LongCovid
shh-uk.org/dianas-story/
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5 Mar 2024
Great initiative to help with #LongCovid 👍🙏
@long_covid
In today’s blog we set out some of the things we are doing for healthcare workers living with Long Covid in the UK. We're committed to providing comprehensive support and resources–read the blog to find out more! bit.ly/3Igq1a3
#CareForThoseWhoCared #ConfrontLongCovid
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