EMBARC is a pan-European network committed to promoting clinical research and education in bronchiectasis.
Joined April 2014
- Tweets 836
- Following 259
- Followers 1,225
- Likes 1,497
46 Photos and videos
EMBARC retweeted
23 Nov 2021
Would a definition by any other name smell as sweet?🌹🤦🏻♂️
ROSE: radiology, obstruction, symptoms and exposure – a Delphi consensus definition of bronchiectasis - COPD overlap by the @EMBARCnetwork Airways Working Group.
Now published in @ERSpublications;
openres.ersjournals.com/cont…
1
37
101
EMBARC retweeted
25 Nov 2021
Favourite stat of #BTSWinter2021 so far - 1 Bronchiectasis diagnosis for every 17 COPD #Notararedisease but so often neglected…
Even in severe cases or >3 exacerbations a year sputum still only sent in 50% cases
@EMBARCnetwork @FionaMosgrove
7
27
EMBARC retweeted
27 Feb 2021
@EuropeanLung @EMBARCnetwork #Bronchiectasis2021 patient conference presentations a brilliant resource for patients and healthcare professionals and will be available on @EuroRespSoc.
27 Feb 2021
Beautiful slide from Josje Altenburg showing the common symptoms of bronchiectasis
lots of patients asking "am i alone in feeling fatigue and chest pain"?
You are not alone @EuropeanLung @EMBARCnetwork #bronchiectasis2021
1
16
27 Feb 2021
Wonderful presentation
Dont forget to post your questions- our EMBARC researchers and clinicians are answering them all in the chat!
27 Feb 2021
Thank you, Dr Josje Altenburg for explaining what can be done to fight the vicious circle faced by people with bronchiectasis when it comes to symptoms and treatment.
#Bronchiectasis2021
2
8
EMBARC retweeted
27 Feb 2021
Bronchiectasis PAG member Barbara Crossley @crossb and Dr Pieter Goeminne are co-chairing the next session on ‘Treatment and self-management of bronchiectasis’ starting in 5 minutes! #Bronchiectasis2021
Don’t forget to post your questions in the Q&A!
1
4
9
EMBARC retweeted
27 Feb 2021
Beautiful slide from Josje Altenburg showing the common symptoms of bronchiectasis
lots of patients asking "am i alone in feeling fatigue and chest pain"?
You are not alone @EuropeanLung @EMBARCnetwork #bronchiectasis2021
8
26
EMBARC retweeted
27 Feb 2021
First bronchiectasis patient conference going well! Some incredible questions coming in from the patients! @EuropeanLung @EMBARCnetwork
#bronchiectasis2021
2
14
EMBARC retweeted
27 Feb 2021
The first panel discussion of #bronchiectasis2021 and there is nearly 100 questions already!
Brilliant talk and clearly a huge desire for information
@AriettaSpinou @MichalShteinbe1 @EuropeanLung @EMBARCnetwork
1
10
EMBARC retweeted
27 Feb 2021
Awesome start to #Bronchiectasis2021 as the 1500 participants tell us where they are from!
amazing to see participants from Europe, but also Canada, Saudi Arabia, Cambodia, Japan, India, Mexico, South Korea and many many others
Welcome to all!
@EuropeanLung @EuroRespSoc
5
17
EMBARC retweeted
27 Feb 2021
We are live! 🎥
ELF Chair Kjeld Hansen and Bronchiectasis Patient Advisory Group (PAG) member Bridget Harris are opening the #Bronchiectasis2021 Patient Conference.
Tweet with #Bronchiectasis2021 and follow this thread for updates!
1
6
23
EMBARC retweeted
27 Feb 2021
The talks from #bronchiectasis2021 are recorded and can be accessed through the @EuroRespSoc respiratory channel
@EuroRespSoc @EuropeanLung @EMBARCnetwork
7
16
27 Feb 2021
Introduction from Kjeld Hansen and Bridget Harris on behalf of Bronchiectasis patients
"we want you to gain the knowledge you need"
"no question is a stupid question!"
Hoping for a lot of questions as we get through the day
#bronchiectasis2021
27 Feb 2021
We are live! 🎥
ELF Chair Kjeld Hansen and Bronchiectasis Patient Advisory Group (PAG) member Bridget Harris are opening the #Bronchiectasis2021 Patient Conference.
Tweet with #Bronchiectasis2021 and follow this thread for updates!
1
4
27 Feb 2021
Looking forward to a fantastic day of professional and patient talks with lots of questions and answers
Thanks to @EuropeanLung and our patient advisory group for organising this first meeting
#Bronchiectasis2021
27 Feb 2021
Starting soon! 🕙
We are really excited about hosting the #Bronchiectasis2021 Patient Conference with @EMBARCnetwork, today at 10:00 CET.
If you are joining, don’t forget to tweet updates with #Bronchiectasis2021
It’s not too late to register! 👇👇
bronchiectasis-patient-confe…
1
4
27 Feb 2021
Ready to go for #Bronchiectasis2021
27 Feb 2021
Sun is out in Scotland, coffee is brewing. Getting ready for the #Bronchiectasis2021 patient conference. @EMBARCnetwork @EuropeanLung
3
11
27 Dec 2020
EMBARC is proud to be partnering with @EuropeanLung to host this patient-physician conference on Bronchiectasis
Created by patients, for patients.
If you are a person with bronchiectasis, a carer, a parent or a health professional this virtual meeting is for you
@EuroRespSoc
22 Dec 2020
SAVE THE DATE!
Are you affected by #bronchiectasis? Would you like to hear patient-focused talks from experts?
We are pleased to announce our first Bronchiectasis Patient Conference with @EMBARCnetwork on 27 February.
Register your interest!
📝 europeanlung.org/en/news-and…
9
18
EMBARC retweeted
13 Nov 2020
People in Tayside - please consider participating in a new vaccine trial taking place at Ninewells Hospital
👇
13 Nov 2020
NHS Tayside and @Dundeeuni are looking for volunteers to participate in a clinical trial studying an investigational vaccine against COVID-19. Find out more and how to get involved here tinyurl.com/y6af4fv7
1
26
43
EMBARC retweeted
13 May 2020
A substudy of the EMBARC bronchiectasis registry is enrolling patients with bronchiectasis and confirmed or suspected COVID-19 infection
Visit the EMBARC website for more details and help us understand the impact of #COVID19 on #bronchiectasis
bronchiectasis.eu/Contents/I…
7
14
EMBARC retweeted
2 Oct 2020
Seroprevalence of SARS-COV-2 Antibodies in Scottish Healthcare Workers medrxiv.org/cgi/content/shor… #medRxiv
1
10
23
EMBARC retweeted
28 Sep 2020
Did you know 500,000 patients are diagnosed with Bronchiectasis and there are 70,000 new patients diagnosed each year? #NTM #Bronchiectasis #chroniclungcondition #lungdisease #COPD
.
.
.
#Bronchiectasis #Bronchiectasisinfo #bronchiectasiscantstopme #bronchi #bronchiectasie #b ...
7
9