MS Patient|Advocate|Writer -Eclectic lover of music, art, books & positivity. Always learning. BRAND AMBASSADOR-please pm
Joined April 2017
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- Followers 906
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220 Photos and videos
#MS #MultipleScclerosis #RRMS #Neurology #FINDACURE
“…Identifying patients at high risk of developing MS before symptom onset could revolutionize patient care and treatment strategies.”
25 Aug 2024
A groundbreaking study reveals potential diagnostic markers for multiple sclerosis years before symptom onset.
patienttalk.org/groundbreaki…
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29 Jul 2024
Researchers at the University of Edinburgh have used 3D printing technology to create artificial blood vessels.
These gel-like tubes, which closely resemble human veins, could revolutionize heart bypass surgery and improve patient outcomes worldwide.
This technology also paves the way for personalized medicine in cardiovascular care, allowing for custom-made artificial blood vessels for individual patients.
The artificial vessels are as strong as natural ones and flexible enough to integrate seamlessly into the human body.
They can be made in various sizes, from 1 to 40 mm in diameter, making them suitable for different vascular surgery applications.
Next, the researchers plan to test these artificial blood vessels in animal models. If successful, they will move on to human trials.
#science #Medical #3dprint #TechNews #3Dprinting #MedTwitter #Biotech
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The presence of lesions in a brain circuit associated with memory in stroke patients are a likely cause of memory problems in those with MS. multiplesclerosisnewstoday.c…
#MS #MultipleSclerosis #NeuroScience #KnowYourIllness
#Stroke
#MemoryLoss
#advocate4innovations
#FindACure
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27 Jan 2023
This could be a breakthrough for folks with multiple sclerosis. Propionic acid protects nerve cells and helps them regenerate – Patient Talk patienttalk.org/this-could-b…
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#MS #MultipleSclerosis #RRMS #DMT #GenericDMT #babysteps #FindAnMSCure #neuroscience #BigPharma I’m in the USA and use CVS Specialty Pharmacy for my DMT. CVS immediately msgd me when the generic version became available.
15 Oct 2022
The supreme court ruled to allow generic versions of the MS drug gilenya (fingolimod) reuters.com/legal/us-supreme…
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18 Sep 2022
As you kick off your #FallsPreventionAwarenessWeek action this week, use NCOA’s tools and resources on how to increase awareness around falls health and injury prevention—all conveniently gathered in one place for easy reference. #FPAW2022
bit.ly/3TpOXQv
#MS #MultipleSclerosis #ALS #FindACure #Neurology #USArmy #BrainHealth #NeuroScientists || Harnessing the Glymphatic System to Improve Brain Health | Houston Methodist Leading Medicine Blog houstonmethodist.org/leading…
#MultipleSclerosis #KnowYourIllness #CareOptions #SelfAdvocate Long Term Care Options for Younger People Living with #MS (video) nationalmssociety.org/Progra…
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#MS #MultipleSclerosis #RRMS #DMD #Fingolimod #Gilenya #BigPharma #Knowledgeispower
Novartis loses in patent appeal over multiple sclerosis drug reuters.com/business/healthc… This could save some of us A LOT of money! For me, about $25,000.00/month!
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#MS #MultipleSclerosis #RRMS #PPMS #DMTs #MSmeds #FindACure There is NO EXISTING CURE for MS.With Disease Modifying Therapies (DMTs)we can try to slow the speed at which MS damages our brains and spinal cords.The $$$ to stay on meds($20,000-$30,000aMONTH)is unattainable for me!
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#MS #MultipleSclerosis #RRMS #KnowYourIllness #advocate #FindACure Make sure your doctor is experienced in treating your illness & is aware of new treatment options.
11 Jun 2022
Read this twice. "Time to first treatment and risk of disability pension in relapsing-remitting multiple sclerosis" pubmed.ncbi.nlm.nih.gov/3568…
#MS #MultipleSclerosis #SwitchingMeds #Gilenya #Mayzent #Ocrevus #Zeposia #Ocrevus #Kesimpta #Rituximab
I questioned whether this switch was safe while weighing whether to get a vaccination which, at the time, required me to suspend my DMD. Ty Dr. B!
18 May 2022
Should you allow a "washout" when transitioning from an S1P Receptor modulator (gilenya, mayzent, zeposia) to a B Cell-Depleting drug (ocrevus, kesimpta, rituximab)? This observational study says a "washout" is unnecessary and increases risk. pubmed.ncbi.nlm.nih.gov/3558…
FaceOfMS retweeted
26 Apr 2022
Extended interval tysabri? People taking Tysabri every 6 weeks (compared to every 4 weeks) had 4 times as many T2 hyperintense lesions on MRI after 72 weeks (0·20 (95% CI 0·07–0·63) in the once every 6 weeks group and 0·05 (0·01–0·22) in the once every 4 weeks group)
26 Apr 2022
NEW ONLINE: the NOVA study investigators report results of a randomised trial comparing natalizumab once every 6 weeks with once every 4 weeks in patients with relapsing-remitting multiple sclerosis #MSAwarenessWEEK
thelancet.com/journals/laneu…
ALT Progressive leukoencephalopathy scan. Credit: ZEPHYR/SCIENCE PHOTO LIBRARY
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#MS #MultipleSclerosis #Neurology #RRMS #PPMS #KnowYourIllness #EducateAdvocate #FindACure #GetMovingForHealth #MSResource Wow! Thank you Dave Bexfield. Wonderful $$$🆓🆓🆓$$$ comprehensive resource for improving your MS health via exercise. Activemsers.org/fitness
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#MS #MultipleSclerosis #Neurology #RRMS #PPMS #KnowYourIllness #EducateAdvocate #FindACure
Do you have smouldering MS? , by @GavinGiovannoni gavingiovannoni.substack.com…
FaceOfMS retweeted
12 Feb 2022
Some MS doctors argue for "deescalation," switching to less-effective drugs as people with MS get older to reduce risk. They argue oral drugs are just as good as infusibles for those ≥45 years. (authors include Dr. Brandi Vollmer and Dr. John Corboy) pubmed.ncbi.nlm.nih.gov/3514…
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#MultipleSclerosis #MS #RRMS #Neurology #KnowYourIllness #SelfAdvocate #InvisibleDisease #FindACure New #PeopleMagazine feature on #CNN #JohnKing CNN’s John King’s MS Journey.
apple.news/Ad48Tb0EWRDK2khv_…
FaceOfMS retweeted
19 Jun 2021
We had to buy a new van, I had to transfer in the old one and that time has come and gone. My lord, was that expensive! $35,000 for an 8 year old van. Ya think the companies that customize these vans make a good living? @jugheadsblog
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FaceOfMS retweeted
10 Jun 2021
AMEN! READ THIS! "Long-term disability trajectories in relapsing multiple sclerosis patients treated with early intensive or escalation treatment strategies" please RT! pubmed.ncbi.nlm.nih.gov/3410…
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