University of Manchester project looking at whether a Data Trust could give patients control of sharing their GP data to improve health research.
Joined April 2022
- Tweets 41
- Following 86
- Followers 50
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4 Photos and videos
Pinned Tweet
19 Dec 2022
We look forward to sharing the results of our study in the new year but for now here are some amazing graphics produced by the very talented @AmberAmberson from our focus groups conducted with @PatientsAssoc
@OfficialUoM @uomsoss @BioethicsUoM
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5 Dec 2024
Our blog post for Understanding Patient Data as part of their countdown to Christmas is available here 🤩
In it we highlight the need for a wide ranging health data education programme to enable individuals to have the control they want over their health data.
@BioethicsUoM
4 Dec 2024
Countdown to Christmas 3/15: New guest blog! 📰
Catherine Bowden and Sarah Devaney from the University of Manchester write about their work with members of the public exploring a new General Practice Data Trust model for data for research.
@GPDT_Project understandingpatientdata.org…
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GP Data Trust retweeted
21 May 2024
What a day! Fantastic discussions of empowerment in data decisions, legal structures giving legal effect to the control people want, fiduciary duties addressing vulnerabilities and the need for this conversation to continue and grow! Now for a well earned drink!
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GP Data Trust retweeted
21 May 2024
A fantastic lively discussion this morning beautifully captured by @AmberAmberson @GPDT_Project and Brixham Data Trust
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GP Data Trust retweeted
21 May 2024
Really excited for this round table event today discussing all things #DataTrusts
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GP Data Trust retweeted
11 May 2024
We are pleased to share our Spring Newsletter!
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GP Data Trust retweeted
14 Feb 2024
As part of an exciting research project, we are looking to speak to leaders working on health data in Integrated Care Systems for a one hour interview.
More information in the link below - please do share with your network and get in touch if interested! linkedin.com/feed/update/urn…
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GP Data Trust retweeted
19 Dec 2023
🚑Interested in #healthdata? 🎟️Join our seminar with Dr @FabioGomes_Go, Consultant Medical Oncologist at @TheChristieNHS on 24 Jan to explore the use of health data from The Christie🏥: eventbrite.co.uk/e/dr-fabio-… @FBMH_UoM @UoMSciEng @uomhums
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GP Data Trust retweeted
24 Oct 2023
📰Read the latest #Digitober case study from @GPDT_Project @UoMPolicy @OfficialUoM "General Practice Data Trust pilot study - listening to our people" ⬇
greatermanchester-ca.gov.uk/…
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26 Sep 2023
Our letter published in the Guardian last week in response to their article on the relationship between patients and their data. It's a great read and reflects the findings coming out of our study.
Trust is the key to healthcare data sharing | Letters theguardian.com/society/2023…
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28 Jun 2023
Interested in the technical side of how a GP Data Trust could ensure health data is shared in line with patients' wishes? This animation is for you!
Thanks to the very talented @AmberAmberson 🤩
drive.google.com/file/d/138N…
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GP Data Trust retweeted
Check out "Digital Trust and Society Forum 2023" eventbrite.co.uk/e/digital-t… @Eventbrite
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GP Data Trust retweeted
28 Feb 2023
It's important to recognise when projects or research have used patient data.
Patient advocates @useMYdata developed a citation & tested it with patients.
We encourage everyone to use it 👀
understandingpatientdata.org…
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GP Data Trust retweeted
15 Feb 2023
Report’s conclusions emphasise the importance of transparency. We support this – it’s fundamental to embed transparency within all uses of patient data. Our Transparency Principles, written by #usemydata Members – 'Say what you do, do what you say' - bit.ly/3YOSLNh
31 Jan 2023
The first report from our project is now available here:
patients-association.org.uk/…
A big thank you to everyone who contributed 😊
The analysis of our interview data continues and we look forward to sharing more results in the near future 😃
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31 Jan 2023
The first report from our project is now available here:
patients-association.org.uk/…
A big thank you to everyone who contributed 😊
The analysis of our interview data continues and we look forward to sharing more results in the near future 😃
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31 Jan 2023
A great blog explaining our project and some of our initial findings 🤩
@BioethicsUoM @uomsoss @PatientsAssoc
27 Jan 2023
Read our blog from guest author Sarah Devaney @uomsoss about work with @PatientsAssoc on the General Practice Data Trust pilot @GPDT_Project exploring trustworthy data stewardship practices that empower people to set the terms of their health data use: bit.ly/3HfYMLw
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GP Data Trust retweeted
21 Dec 2022
Interesting pilot study, exploring potential ways that patients might have more control over how their GP data is used, for research & planning. Project work to date is captured in these sparky infographics – from which the standout theme is the essential need for transparency.
19 Dec 2022
We look forward to sharing the results of our study in the new year but for now here are some amazing graphics produced by the very talented @AmberAmberson from our focus groups conducted with @PatientsAssoc
@OfficialUoM @uomsoss @BioethicsUoM
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19 Dec 2022
We look forward to sharing the results of our study in the new year but for now here are some amazing graphics produced by the very talented @AmberAmberson from our focus groups conducted with @PatientsAssoc
@OfficialUoM @uomsoss @BioethicsUoM
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19 Dec 2022
A big thank you to everyone who took the time to complete our surveys, speak with us in interviews, and attend our focus groups. The response was amazing! You gave us lots to think about and we really appreciate your contributions. 😊
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