🇦🇺 Simon Callaghan from Australia, BBA Advisor @LarisaYarovaya, and John Marsh of @useMYdata at the @APPGBlock Roundtable held on 13 May 2026.

Richard Stephens (Executive Group Chair, @UseMYData) will be at The Festival of Genomics and Biodata this January, where he’ll discuss how we can leverage evidence and patient perspectives for policy and practice in #cancerresearch. More info: hubs.la/Q03SYHF70 #FOG2026

A great time at @useMYdata #NPaDD today, made lots of new connections and plenty of information to take back to inform my patient advocacy work and Frontier Science Scotland’s patient data public engagement. Always good when the panel answers your question 🙋🏻‍♀️

How to involve people in their data choices ? (🧵1/3) Discussion with members of public and healthcare policy professionals. #NPaDD @useMYdata

We are so pleased to see high interest from researchers in our datasets, and all the benefit they provide to research projects at today’s #NPaDD 📌Find out more how to access our datasets: bradfordresearch.nhs.uk/conn… @useMYdata @CityOfResearch @docjohnwright @BTHFT

“For the public, the NHS will feel different: it will be digitally enhanced and patient centric” Ming Tang, Chief Data and Analytics Officer, @NHSEngland #NPaDD @WYpartnership @useMYdata @DHSCgovuk @CityOfResearch @NIHR_ARC_YH @NIHRresearch @NHSSYICB @ConnectedBfd

We are at the National Patient Data Day in Leeds today! Looking forward to seeing you all @useMYdata #NPaDD

We are looking forward to seeing you at @useMYdata #NPaDD day in Leeds today!

We presented Onion AI to a group of respected UK Health Charities….. We were thrilled to receive such positive feedback! Some of the highlights included: Lots of talk about how they can see Onion AI helping with patient empowerment They loved the user interface and experience But most of all they were excited about the use of this kind of technology within the healthcare space. Thanks to all the charities involved - we really appreciate your time & feedback! @useMYdata @britishthyroid @AorticDissectCT @HeartValveVoice @TheBrainCharity @RareBeacon #OnionAI #MedX #HealthEducation #AiInHealthcare #HealthTech

Well done Ann & thank you for being METUPUK NI patient advocate & driving this message in NI whilst we drive this issue with #NAoMe & the audit for the UK & Wales... It takes working together to make that difference & we have highlighted this important work of course. Thank goodness things are moving on as @abcdiagnosis has been trying to get answers for years. #datasaveslives @AggarwalOnc @useMYdata

Yes, the population of NI is 1.9million if that helps.

@HDR_UK #Midlands Webinar Alert @C_Carrigan presents #useMYdata. Discover what @useMYdata is and how it can help. Fri @ 12.30pm. Sign up: hdrmidlands.org.uk/data-gran… #datasaveslives

At the #BigCancer52Conversation our expert panel discusses where next for progress on health inequalities for rare and less common cancers @YLvsCancer  @frankthedoc1  @nhskmca  @useMYdata  @AstraZeneca UK @GileadSciences

@ONS @adr_uk @useMYdata @HDR_UK

It's time for a panel discussion with Yvonne Adebola @useMYdata , Mariana Pinto da Costa, Kate Evans @ukfuturehealth, @EBeierl and Vaibhav Narayan about opportunities and challenges of using patient data in industry partnerships.

🗣️ All people newly diagnosed with metastatic #breastcancer should be discussed within a breast multidisciplinary team (MDT) meeting 👉 See our report and your organisations data buff.ly/4dcBZye @METUPUKorg @ICPVtweets @forcateam @UseMyData @MacmillanCymru

📢 JOIN US on the 10th September @ 7.30pm For our first CRANE Q&A for patients/public with CLAPA! Find out: 🔸 Who we are 🔸 What we collect 🔸 How we use your data You can submit questions in advance via the following link 👉 clapa.formstack.com/forms/q_… @CLAPACOMMUNITY @UseMyData

Today in Weekly News: a fair healthcare system, help develop the NHS App, share your story with @Pers_Care_Inst, take @LondonAssembly dentistry survey, @useMYdata plan National Patient Data Day, & support @candsalliance's #ShowUsYouCare campaign buff.ly/3YU2bKs

Patient advocates @useMYdata highlight the advantages for patients of sharing medical data and their grassroots work. Join us during Patient Partnership Week to explore how data can improve patient care. #PatientCare #DataSharing buff.ly/3SXVLGr

📢SAVE THE DATE 🗓️ 24 June 2025 📍Leeds UK The UK’s first NATIONAL PATIENT DATA DAY ℹ️ Agenda set by patients for patients and the public 📈Stakeholders from across the patient data world bit.ly/3WtjIaI #NPaDD2025 #useMydata