Sharing my new paper on #longCovid, #MECFS, welfare reform politics and the risk of history repeating itself. Situates the PACE trial, psych lobbying of the state ref ME etc. in its wider (bio)political context. #disability #benefits

However safe this space feels for #pwME & LC for many reasons some will always feel far more comfortable not sharing the specifics of what theyre going through & the degree to which they're suffering here in a public space Thinking of those all suffering who are quiet & private

A few peeps asked if I could unpack some of my academic papers on disability-affirmative psychotherapy as an emotional support for ppl who choose it … … I’ve sought to do so in this blogpost, with focus on #MECFS healthcarehubris.com/post/ps…

The #MECFS Research Roadmap Report has been published. It is a a cross-sectional, multidisciplinary discussion of current ME/CFS research, organized by the @NIH. ninds.nih.gov/sites/default/…

Last night we had a brilliant @FestOfDebate @citizen_network on hosted by @SHU_AWRC What is Health? Jack Czauderna (my hero) explained what the Peckham Experiment can teach us about the link between community and health. @EmmaLatimer3

How could the same facility that rushes people to the ER to save their lives actively kill someone just down the hall?  This is beyond psychologizing physical illness, it seems like these medical staff do not see the humanity in Severe ME/CFS patients; As if we are so sick and decapacitated already that they see some version of the word "invalid" and death does not seem like a loss of human life to them.   1. Carla cannot drink enough water to stay alive nor tolerate an NG tube at home 2. Carla is stuck in NHS care with no other choice or options for care 3. NHS staff are not giving her access to fluids with the same procedure they do within minutes in the ER to non ME/CFS patients This is not simple neglect, this is not malpractice, this is manslaughter at best and murder at worst. #SaveCarlasLife #Dontletmedie #BringMillieHome @NHS @NHSuk @DHSCgovuk @CommonsHealth #mecfs #SevereMECFS #LongCovid #pwME

“Disability cuts: Work isn’t the pull Sunak thinks it is”. A response in @Freedom_Paper to recent welfare reform announcements & some context around the current world of work. Disabled people contribute - waged or not. Please RT #WorkIsntWorking freedomnews.org.uk/2024/05/1…

#NoToAS Liz Carr documentary Better off Dead? Airs on BBC1 9pm Tomorrow Tuesday 14th May 2024 bbc.co.uk/programmes/m001z8w…

Connecting people & connecting struggles. #SolidarityInAction

#FundDisabilitySupport #HandsOffWhaikaha Please show solidarity to disabled New Zealand activists as they ramp up resistance against the New Zealand Government against cuts to disability support We are totally with disabled allies in New Zealand RT dpac.uk.net/2024/05/464030/

RT @amethystarlight: It’s doggie booster day! My service dogs wear a PM2.5 valved masks inside their airflow muzzles. I have Common Varia…

This has been in the stacks for a while, but with a few updates, it's ready to go. Explore with us the intersection of the brain retraining methods such as the Lightning Process, the Gupta Program and the Biopsychosocial model applied to ME and Long Cvd. open.substack.com/pub/longco…

When you get #MECFS you also typically suffer a catastrophic loss of trust in the healthcare system. The safety net you thought was there doesn't exist and you keep on falling and falling. #wato

❓📣Who are the academics and researchers living with energy limiting conditions working in social sciences, Disability Studies, medical humanities or related fields? I know there are many of you out there! Please reply if this is you And RT to get the word out 🙏

Sunak’s misleading sick note numbers The PM implied that 1.35 million were off work because of depression or anxiety. That’s not true More than 1 million of them – had depression or anxiety as a secondary condition, rather than the reason for which they were signed off Link ⬇️

Britain is sicker and poorer than it used to be. Sunak’s response? Attack disabled people | Frances Ryan | The Guardian theguardian.com/commentisfre…

‘conditions that could be framed as psychological or psychosocial in nature, and thus amenable to psychosocial interventions, could be exempted from welfare provision and health insurance pay-outs.’ #ME ⁦@HealthHubris⁩ Brilliant piece on #BPS 👇 healthcarehubris.com/post/su…