We run urine organic acid testing on almost every child who comes through our clinic.
Autism. PANS. PANDAS. Thousands of cases over the years.
 Different triggers. Same pattern. The same marker keeps flashing red.
5-HIAA.
Raised in over 80% of them. That’s serotonin turnover in overdrive. 
Not excess. Exhaustion.
The brain burning through its calm and sleep chemistry to survive inflammation. Parents describe the same picture before they ever see the results: wired at night, soaked in sweat, startled by sound, panicking over small changes, refusing food, trapped in rituals, raging one moment and inconsolable the next, exhausted but unable to rest. Then we test.
And the numbers tell the story their child’s body has been shouting. It’s a simple urine test - non-invasive, quick, clear.
But it shows exactly how the nervous system is coping under immune fire.
 When we reduce inflammation, repair the gut, and restore the missing cofactors, that number drops - and children start to stabilise. This is what objective data can do.
Evidence that the chaos is chemical, not character. #PANS #PANDAS #Autism #FunctionalMedicine #Neuroinflammation #RootCause

Thanks Lee for raising the urgent issues of #Tourettes in the @SeneddWales . People with Tourette syndrome face significant barriers to accessing a diagnosis & care. Theres much work to be done to ensure individuals with TS receive equitable care - the postcode lottery must end!

Lee Waters asked the Welsh First Minister in the @SeneddWales to do more to support those living with #TouretteSyndrome. The First Minister confirmed that the lack of @NICEComms doesn't help. The postcode lottery needs to end @Eluned_Morgan @WelshLGA m.youtube.com/watch?v=B-IzCs…

#PansPandashour #PansPandasawarenessday

To all medics out there Can we normalise believing parents The ones who know their child The ones who’ve watched the light go out The ones who said “something changed overnight” and were told there’s nothing you can do The evidence is not missing You just keep dismissing it ‼️Parents and caregivers ‼️ If this was your experience Add your voice below 👇 Every story makes it harder to ignore #PANDAS #PANS #Autism #BelieveParents

A child changes - sometimes overnight, sometimes over weeks. Panics in the car. Refuses food. Can’t sleep. Clings to you all day. Terrified of noises. Wetting themselves. Obsessively tapping or blinking. Parents are told:
“It’s autism.” “It’s FND.”
“It’s sensory.”
“It’s behavioural.”
“It’s anxiety.”
“It’s your parenting.” No MRI. No EEG. No bloods. No immune workup. Just a label. A leaflet. A waiting list. No one asks: Why did this start after strep? After a virus? After antibiotics? After mould exposure? After a tick bite? No one asks: What changed in the brain? This is how PANS, PANDAS, encephalitis, metabolic disorders, and autoimmunity get missed. They needed medical investigation.
They got a behaviour chart. #Neuroinflammation #functionalmedicine

💚 See how much courage, collaboration, and care went into this campaign. HUGE thanks to all those who took part 💚 I am beyond proud, please share to enable us to spread the message far and wide.

This is our most ambitious campaign yet and we are extremely proud of it. We are aiming to challenge misconceptions and create a space where people with Tourette’s can feel seen and understood—not judged. The time for change is now. 💚

April 1st: The only day of the year when people pause for critical thought instead of automatically accepting what they read on the internet!

New government guidance on digital mental health technology. Does your product qualify as a medical device? What’s its risk class? Find out what this means for you. 🔍 Insights from Matt Williams at HIOTV. 📖 Read more: healthinnovationoxford.org/n… #MedTech #HealthInnovation

😔💔

🚀 SMEs: Ready to scale your medical devices, diagnostics, or digital health innovations? Apply for NIHR i4i Connect Call 9 funding! 🛠️ We can support you with tailored guidance. 📅 Apply 18 Feb–18 Mar 2025: healthinnovationoxford.org/o… #HealthInnovation

Calling all charities, non-profit organisations & community groups! How can @RoyalHolloway students support your organisation with research skills, for FREE? Submit your research proposal before the next deadline of 31 Jan! forms.office.com/Pages/Respo… @surreyca @volsupportns

Please invite your MP to attend the upcoming Parliamentary Neuro Reception hosted by @NeuroAlliance . I will be in attendance highlighting the problems people with Tourette’s face in accessing a diagnosis and treatment. Invite your MP 👉 buff.ly/3DJ6jod

Are you passionate about finding out what really matters to people and communities? We are looking for a creative, collaborative, clear thinker to join our team. Find out more from the tweet below

"The analysis of nearly 200 children with PANS found a substantial proportion with "subtle, systemic inflammation," raising "the possibility that the psychiatric symptoms reflect a brain response to a global process," according to Jennifer Frankovich, MD, of Stanford University in Palo Alto, California, and colleagues, writing in JAMA Network Open. They noted a heightened risk of arthritis in their cohort and concluded that PANS "may be part of a multisystem inflammatory condition rather than an isolated psychiatric or neuroinflammatory disorder." medpagetoday.com/pediatrics/…