Joined September 2015
- Tweets 1,532
- Following 579
- Followers 981
- Likes 9,571
223 Photos and videos
Liam Galvin retweeted
May 14
@ILFA_Ireland calls on Government, HSE and relevant stakeholders to prioritise lung transplantation as a matter of urgency. This includes sustained investment in transplant services, ongoing donor awareness campaigns, & transparent reporting/accountability ilfa.ie/blog/organ-donor-awa…
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Liam Galvin retweeted
Today is #WorldAsthmaDay! 💙 ELF provides free, reliable information about #Asthma in 9 languages to support people living with the condition around the world.
Learn more: europeanlung.org/en/informat…
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Liam Galvin retweeted
Huge congrats Sarah Forde for reaching the finals of #ENGAGE2026! Sarah presented "A Faulty Switch: How One Cell Trips the Lung Circuit" to a packed house. Well done to Sarah and her supervisors on their rare disease research.
ALT A pamphlet in the foreground and the presenter screens in the background
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Liam Galvin retweeted
Today is Alpha‑1 Awareness Day 💙
Learn more about alpha-1 antitrypsin deficiency (#AATD), a rare genetic lung condition and help raise awareness. Earlier understanding can lead to earlier diagnosis and improved support.
🔗: europeanlung.org/en/informat…
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Liam Galvin retweeted
Mar 27
The next online ILFA Patient Information Day will take place on Tuesday, 31st March at 2pm. Please register via the link below.
us02web.zoom.us/webinar/regi…
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Liam Galvin retweeted
European Respiratory Journal: Fan-to-face therapy is a simple, feasible, low-cost, low-resource nonpharmacological approach to reduce exertional breathlessness during exercise training in adults with chronic lung disease bit.ly/4oMpcbX
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Liam Galvin retweeted
RDCTN and @UCDMedicine were delighted to host the inaugural PH-ILD Forum in collaboration with @UnivParisSaclay and Royal Brompton Hospital/@imperialcollege. The meeting brought together global experts from 14 countries!
ALT A group of people facing the camera standing in front of two blue and purple screens
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18 Nov 2025
Great news for the patient community
18 Nov 2025
Approved today: the first ever approved therapy for bronchiectasis in Europe
Congratulations investigators, patients and Insmed
Science changes lives
European Commission Approves BRINSUPRI™ (brensocatib) as the First and Only Treatment Approved for Non-Cystic Fibrosis Bronchiectasis in the European Union - Nov 18, 2025
investor.insmed.com/2025-11-…
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Liam Galvin retweeted
24 Oct 2025
🚨Free educational opportunity: apply now for the ERN-LUNG Academy 2026
We are calling on medical professionals across the EU to apply for the opportunity to develop their knowledge of rare respiratory diseases.
Apply by 30 November, 2025 – learn more: bit.ly/3L6KjqY
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Liam Galvin retweeted
28 Sep 2025
The first patient-centered studio session at #ERSCongress! 💙
Co-chaired by patient representatives Helen Parks and Steve Jones, this busy session explored why many patients struggle to access pulmonary rehabilitation globally.
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23 Sep 2025
My thanks to MEP @JerkovicRomana & the European Respiratory Society for this timely event on "Scaling up EU Prevention policies for Respiratory Health" so important for the #pulmonaryfibrosis & wider #Respiratory Patient community #CurePF
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Liam Galvin retweeted
2 Jun 2025
We are pleased to share the positive topline results from the Phase 2b CORAL Trial of Haduvio in Patients with Idiopathic Pulmonary Fibrosis Chronic Cough.
Join our conference call today, June 2nd, at 8:30 a.m. ET.
Read the press release: ow.ly/MCzh50W2spG
$TRVI
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4 Jun 2025
RT @PilarRiveraOrt1: Dear ILD community,
You are cordially invited to this webinar organized by @RespirEffect (REG) tomorrow June 5th at 4…
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Liam Galvin retweeted
2 Jun 2025
Fantastic news for all our patients with IPF who suffer with cough! An overall 43% reduction in cough counts, similar improvement in patient reported cough and benefits seen in 2 weeks. We look forward to the phase 3 study!
2 Jun 2025
We are pleased to share the positive topline results from the Phase 2b CORAL Trial of Haduvio in Patients with Idiopathic Pulmonary Fibrosis Chronic Cough.
Join our conference call today, June 2nd, at 8:30 a.m. ET.
Read the press release: ow.ly/MCzh50W2spG
$TRVI
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Liam Galvin retweeted
18 May 2025
Great to see publication of the first positive phase 3 trial in patients with IPF. This represents an important step forward in the treatment of this terrible disease. #cureipf
Presented at #ATS2025:
In the FIBRONEER-IPF phase 3 trial, nerandomilast slowed disease progression in patients with idiopathic pulmonary fibrosis as compared with placebo. Full trial results: nej.md/4mgWcIU
@atscommunity
ALT A bar chart showing the change from baseline in forced vital capacity at week 52 in the overall trial population
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25 Apr 2025
Great session on "Enhancing Patient Advocacy through Evidence Based Practices" led by @anmari_russell at the @EU_IPFF 's 1st European PF Patient Advocacy Forum #CurePF
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23 Apr 2025
Preparations underway for the 1st European PF Patient Advocacy Forum - 4 days of learning & collaborative discussions led by the European #PulmonaryFibrosis Federation @EU_IPFF #CurePF
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10 Apr 2025
Attending the 2nd Irish Rare Disease Clinical Trial Network Conference representing @ILFA_Ireland and the @EU_IPFF - kicking off with sessions on ERN Registries
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24 Mar 2025
Delighted to meet so many patient advocates attending the 9th Annual @ErnLung Board meeting whilst representing @EU_IPFF & the @EuropeanLung foundation
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