Haemochromatosis International - organisations supporting & representing people around the world with the genetic predisposition to store too much iron.
Joined January 2019
- Tweets 215
- Following 142
- Followers 347
- Likes 217
62 Photos and videos
12 Jun 2023
Good work advancing knowledge of #hemochromatosis genotypes & disease Mitch Lucas! @HaemAus @IrishHaemAssoc @IronOutCanada @ironoverloadUS
8
467
12 Jun 2023
Thanks for your ongoing research in #hemochromatosis @JaniceLAtkins @lcpilling @d_melzer @ExeterMed. Looking forward to reading the paper. @HaemAus @IrishHaemAssoc @IronOutCanada @ironoverloadUS
11 Jun 2023
Post menopausal women with the #haemochromatosis C282Y homozygous genotype have increased risks of liver and osteoarthritis (compared to those without HFE mutations)
@JaniceLAtkins @ExeterMed @eshgsociety @IronMattersInt #eshg2023 #ironoverload
ALT Janice by her poster
1
6
1,258
Short video where Dr Paul Adams advisor to @IronOutCanada talks about #hemochromatosis #haemochromatosis
2
8
600
Thank you @tdgarden home to @celtics & @NHLBruins for lighting up red during #WHW2023! @RedCross can use blood from people with #hemochromatosis who meet the eligibility requirements of other donors. Find out more @ hemochromatosis.org.
1
6
319
Shining red lights on #hemochromatosis in the USA this week. Tonight @TowerLightsCLE & June 6 @tdgarden home of the Boston @celtics. #WHW2023 #lightentheoverload #toomuchiron
2
5
21
2,486
Thanks @GalwayCityCo & Sligo for taking part in the international Light Up Red campaign in #WHW2023. Please keep the spotlights on the IHA’s call for a National Strategy on #haemochromatosis for Ireland which has the highest rate of haemochromatosis in the world.
Galway & Sligo City Halls light up red for World Haemochromatosis Awareness Week 2023! #WHAW2023 Hundreds of public & iconic buildings, bridges and monuments all over the world shining a spotlight this week and next on the symptoms of haemochromatosis #sligo @GalwayCityCo
1
7
316
Many thanks @AytoLeganes
For joining the international ‘Light Up Red’ campaign to raise awareness of #hemochromatosis in #WHW2023. Your sites look fabulous in red!
3 Jun 2023
🔴#Leganes se sumará, en este 3 de junio, a la Semana Mundial de la Hemocromatosis, iluminando de rojo las fuentes ornamentales y la Plaza Mayor.
👉Se trata de una enfermedad rara que sufre uno de cada mil españoles.
2
8
266
Thank you @MADRID for lighting up red to raise awareness of haemochromatosis during #WHW2023. La Fuente de Cibeles is a real beauty in red.
3 Jun 2023
📢Este sábado 3 de junio iluminamos de color rojo 🔴 la Fuente de Cibeles con motivo de la Semana Mundial de la #Hemocromatosis.
2
13
561
Congrats Team Exeter @JaniceLAtkins @d_meltzer @lcpilling & Mitch Lucas for creating this excellent resource for people with #haemochromatosis #hemochromatosis & those who care for them. Haemochromatosis International member organisations appreciate your work. #WHW2023
1
3
11
580
Haemochromatosis International retweeted
Haemochromatosis, or iron overload, is Australia’s most common genetic disorder. It’s easy to test, simple to treat, but tragic to ignore.
To find out more, visit haemochromatosis.org.au/
#WHW2023 #lightentheoverload #RCPA #pathology #medicineispathology @HaemAus
1
3
14
702
Haemochromatosis International retweeted
1 Jun 2023
Many thanks @healthgovau for raising awareness of #haemochromatosis and #ironoverload this World Haemochromatosis Week 🩸
This week is #WorldHaemochromatosisWeek📅
#Haemochromatosis (iron overload disorder) is an inherited condition, the most common in Australia. Too much iron is a problem, if undetected & untreated it can cause organ or tissue damage.
💻haemochromatosis.org.au
2
8
262
25 May 2023
And so much more to learn! Thanks @lcpilling for starting up conversations with casual acquaintances about #hemochromatosis. Let’s all have more conversations about #haemochromatosis during #WHW2023 June 1-7.
25 May 2023
My blood made the 2hr drive up the M5 to Gloucester Royal Hospital 🩸
@GiveBloodNHS - the easiest way to save a life!
Added bonus for me is a wonderful conversation with the nurses about #haemochromatosis every time. Always learn something new!
@IronOverloadUK @IronMattersInt
ALT Screenshot of a map showing the car directions from the donation center in Exeter to the NHS Blood and Transplant manufacturing centre in Filton - where they ran all the standard tests and process it into a form that can be given to a patient in need - then on to Gloucester Royal Hospital. A 2 hour and 12 minute car journey, apparently. Or 36 hours walking.
1
157
20 Apr 2023
Don't delay! Last day to send in your entry is April 30. Images will be on show in the virtual gallery during #WorldHaemochromatosisWeek #WHW2023 June 1-7 Voting for the People's Choice Award will be open then.
For more info go to haemochromatosis-internation…
4
5
294
14 Apr 2023
Register now for the long anticipated Ninth BIOIRON Congress, the leading international conference for clinicians & researchers in #ironmetabolism #irondisorders #ironmatters #bioiron2023 #chiesi #cslvifor #ionispharma #regeneron #discmedicine #resonancehealth
ALT https://aapevents.eventsair.com/bioiron2023
1
4
10
555
Get clicking this holiday weekend & submit your pic by April 30. For more info go to haemochromatosis-internation…
1
7
6
827
23 Mar 2023
Could unrecognised hemochromatosis have contributed to the early death of this genius? @BeggTristan making Beethoven’s genome publicly available for iron researchers will help many others at risk of serious health problems from hemochromatosis. Thank you!
cosmosmagazine.com/history/s…
97
12 Dec 2022
HI is delighted to announce the appointment of two new independent trustees to the Haemochromatosis International Board. Welcome Dr Melissa Yssel and Paul Johnston!
haemochromatosis-internation…
6
Haemochromatosis International retweeted
24 Nov 2022
Dr Dianne Prince & @olynykjohn at AusIron 22. Di presented a poster on Australia's first patient registry for haemochromatosis. This national patient registry project is a collaboration between Haemochromatosis Australia, @qimrberghofer @edithcowanuni and @QUT #haemochromatosis
1
8
15
17 Oct 2022
Excellent presentation by A/Prof Ken Sikaris on blood tests for iron status. Reference ranges may differ a little from country to country but the explanation is very clear.
lnkd.in/g5J-3Bed #pathologyawareness #ironstatus #anaemia #hemochromatosis #ironoverload #ironpanel
1
3
6