It’s coming up to 5 years my eye sight is worse I need reading glasses for everything now. I was prescribed an anti depressant 9 months ago and it has helped I have lost 3 stone in weight which has helped with the joint and muscle pains also I’m not as tired & rarely crash now

Yale Medicine: 'Antibodies From Long COVID Patients Provide Clues to Autoimmunity Hypothesis' 'Iwasaki’s team isolated antibodies from blood samples obtained from the Mount Sinai-Yale Long COVID study' "I am very excited by this research.." - Dr. Sanders yalemedicine.org/news/antibo…

We thank Chair of UK #CovidInquiry Baroness Hallett for her 1st report on Mod. 1. Whilst we consider it, we highlight one of her comments: “It was widely believed UK was 1 of the best prepared countries to respond to a pandemic. This belief was dangerously mistaken” #LongCovid

4 years today I went for my Covid test and began my long covid journey. My eye sight still blurs I have 1/2 the energy joint pains still come and go but the crashes are fewer I’d say I’ve aged an extra 10 years but I have improved slowly don’t give up stay positive

🚨#BREAKING Pandemic experts express concern over avian influenza spread to humans 📌 Dr Jeremy Farrar, Chief Scientist at the WHO, said that the virus has an extremely high mortality rate among humans already infected with it.

In UK, the opportunity to put in funding bids for #LongCovid immunotherapy trials was back in 2021 when @NIHRresearch last had a LC funding round. Lack of ambition meant those bids weren't made. The ship has now long sailed & NIHR are no longer bothered about funding LC research.

Here’s my speech on #LongCOVID (more or less) at #LCDC: “Hello everyone, nice to see you here at the Lincoln Memorial for such a worthy cause. I can't help but feel a sense of camaraderie, knowing that we're all in this together, especially after I just recently passed my four year anniversary of Long COVID. I’m frustrated with how long I’ve been sick, but may I assure you, my immune system is more annoyed. Unfortunately, I’m not new to chronic illness. I suffered from Chronic Lyme Disease for 11 years where I was passed around from doctor to doctor, was gaslit, faced inconclusive testing, and took treatments that didn’t solve my malady. Diagnoses such as ME/CFS & Fibromyalgia based on my symptoms, were given to me. Sound familiar? This story was one that I would hear time and time again while managing an integrative chronic illness centric clinic. I would go on to recover and started playing in 2 basketball leagues, working out, and working long hours only for my excellent health to come to a screeching halt in March of 2020, when I contracted SARS COV 2. These past 4 years have been a relentless battle, and it continues today. In fact right now I have a kidney stone & need to take a prescription, so I can keep my head out of an inflammatory vice grip. There were many times when I thought I would not make it. I experienced horrific neurological issues where I couldn’t control my limbs, had to focus to make sure I was breathing, and couldn’t drive. I’m sure I had Guillain Barre Syndrome. There were also spells of vomiting, insomnia, I put my keys in the fridge, and couldn’t walk more than 5 minutes without severe PEM. I faced 170 symptoms. There are tens of millions in the United States and more around the world who have or had Long COVID. I’m far from alone. This is unacceptable. I’ve lived through Chronic Lyme and saw what the chronically ill had to endure firsthand. We don’t want another situation similar to Chronic Lyme and how it’s called Post Treatment Lyme Disease Syndrome. Vagueness is never the answer for the chronically ill. The onus should not be thrust back on to the patient instead of where it should be, with poor testing and treatments that don’t find and address our root causes. Long COVID is unique and needs to be dealt with as such. Each day that passes it seems more likely Long COVID largely involves COVID & spike protein persistence. Persistence needs to be throughly explored. Especially by the NIH, and that is not happening right now. Priority #1 should be repurposed antivirals & immunotherapies. At the Long COVID Foundation we are working on bringing Awareness, Advocacy, & Action. Being here today is a step towards bringing awareness to Long COVID, but unfortunately there are many who aren’t even aware of the term, never mind the life changing capabilities of the disease. LCF is advocating for improved testing, trials, and treatments. All avenues need to be explored, but given COVID's persistence, we want to ensure that this receives necessary attention and is not overlooked. There currently isn’t a commercially viable test for COVID Persistence. The trials being run are utterly insufficient. And the treatments are not good enough for Acute COVID, or Chronic COVID. We need novel antivirals developed for COVID yesterday. Excess COVID long term illness and death may not go away without it. LCF is also working to promote safer environments from airborne pathogens, which includes COVID. Schools, hospitals, and other public areas should have proper air filtration systems installed. Systems that should save districts and businesses money in the long run. Why isn’t the government pushing for these common sense passive participation win win things? Mitigation of COVID needs to be a priority! The children need to be protected! (Continued below)

Japan: Dangerous strep bacterial infections on pace to hit new record high Rapidly progressing and known for their 30-70% fatality rate, acute hemolytic streptococcal bacterial infections are spreading in Japan at a quicker pace than in 2023.. mainichi.jp/english/articles…

I did an FOI request to UKHSA requesting the research underpinning their guidance that children shouldn’t be tested for SARS-CoV-2, and that they only need to isolate for 3 days following a positive test. They responded. Let’s have a look at their response and the guidance:

Health as a Luxury: When Greed Takes over Health Systems | ENDEVR Docume... youtu.be/Zd_sfeUxoso?si=gchs… via @YouTube

25,000 hospital beds lost over last 10 years with a growing & aging population. You cannot treat people if you have nowhere to put them theguardian.com/society/2022….

This is essential public health messaging. 🚨Every public health body in every country in the world should be producing messaging like this🚨 🔥👇

Spain Mask Update: Spanish regions have announced the reintroduction of rules making the use of face masks compulsory in health facilities: Valencia, Catalonia, Aragon, Murcia require masking. uk.news.yahoo.com/spanish-re…

This tremendously exciting paper is now published: Exercise in #LongCovid induces severe tissue damage & skeletal muscle necrosis, metabolic disturbances, myopathy, & tissue infiltration of amyloid-containing deposits. Patient-Led Research Collaborative helped fund this study!

If you are a close match for a criminal on blurred cctv you could have police knocking your door the neighbours won’t un-see that theguardian.com/technology/2…

Check your sell by dates if your shopping in Asda I have been violently ill for most of the night I bought seafood sandwich filler yesterday. Ate it for lunch when I became ill I checked it and it was 2 days out of date.went in store to warn them & food poisoning is worth £20 😂

How did you get your MCAS under control? I don’t have traditional symptoms like allergies but I’m convinced my mast cells are a factor. Do you take meds?

My new blog post, on the lasting impact of being disbelieved when severely ill. A 🧵 “For most of my life, I have lived under the shadow of other people’s narratives about me and my illness.” (1/5) alifehidden.com/2023/12/13/r…

Be kind to those who have nothing at this time of year. Many of us are a couple of pay checks away from not paying rent/mortgage. An extra item in your trolley for the food bank box by the checkout or a hot coffee for a homeless person might not be much but it helps

These guards may have been sacked but only because a member of public filmed this disgrace & it’s bad publicity. where was the manager obviously complicit in this man’s treatment dailymail.co.uk/news/article…