Joined December 2019
- Tweets 300
- Following 1,158
- Followers 791
- Likes 821
14 Photos and videos
Pinned Tweet
6 Dec 2019
Follow, if you want to be part of coordinated online activism for ME awareness.
I will push our hashtags, retweet polls (like Bill Gates movie list), encourage the community to write comments under some tweets, ...
#MEcfs #pwME #ME #myalgicE #millonsmissing
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22 Jan 2021
.@Flying__Doc ich finde es sehr erfreulich, dass Sie über #LongCovid sprechen. Vielleicht möchten Sie in dem Kontext ihr Wissen zu #MECFS aktualisieren? Da waren vor ein paar Monaten leider noch wichtige Lücken zu erkennen. Das wäre vermutlich interessant x.com/dg_mecfs/status/135153…
19 Jan 2021
Die @ChariteBerlin und @TU_Muenchen führen mit Unterstützung der Dt. Ges. für ME/CFS am 10. Februar eine Online-Fortbildung über ME/CFS für Ärzt:innen durch. Es können 3 Fortbildungspunkte erworben werden.
ℹ️ facebook.com/dg.mecfs/posts/…
#MedTwitter #Twankenhaus #MECFS #LongCovid
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MEcfs together retweeted
10 Jan 2021
Hey @elonmusk , a great way to help is by donating to @OpenMedF or @polybioRF . Even small amounts would make a big difference! #MECFS is the worst chronic disease with at the same time lowest governmental funding. Please help us!
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MEcfs together retweeted
1 Dec 2020
📢📢📢📢WICHTIGE UMFRAGE❗️❗️❗️❗️
„Patientenbedürfnisse neu denken - Alltag mit Erkrankung sichtbar machen”
Bitte mitmachen und klarstellen, wie katastrophal die Lage für uns #pwME ist!
Auch retweeten!
#MyalgicE #MECFS
👉hih2025.limequery.com/621447
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22 Nov 2020
Für Mitglieder der @gwup ist kritisches Hinterfragen der gemeinsame Nenner. Mal schauen ob das hier auch für Seine eigenen unwissenschaftlichen Ansichten gilt, oder ob der Stolz und die Emotionen dies nicht zulassen. Let's see: @RemindMe_OfThis in 2 weeks.
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MEcfs together retweeted
21 Oct 2020
Please help Walker. He‘s about to have a craniocervical fusion. This is a major surgery with a brutal recovery, and Walker needs funds to support his healing on the other side: safe housing for #MCAS and pain management. $4,500 and he’ll meet his goal. RT! gofundme.com/f/help-walker-f…
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MEcfs together retweeted
19 Oct 2020
A quick illustrative explanation of how 30 years of psychiatric monopolisation of ME/CFS has left post-viral illnesses in the predicament they are in today:
#millionsmissing #longcovid #health #medtwitter #teamGP #MedStudentTwitter Credit: @MillionMissCan
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MEcfs together retweeted
18 Oct 2020
From, note, the 'Femail on Sunday', 1993: the casual torture of a 13 y.o. boy (Ean Proctor) with ME by psychiatrists. "Treatment included being thrown in a cold swimming pool to see if he could save himself, and being taken on a ghost train to frighten him out of his condition."
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MEcfs together retweeted
12 Oct 2020
I miss my brother René endlessly.
I am so sad that he lost the fight against #MyalgicE.
He hoped to get well again until the last day.
Pls sign this petition for research and treatment:
change.org/p/manfred-lucha-p…
12 Oct 2020
❗️TRIGGER ALERT. Another patient with severe #MECFS has passed away. 26-year-old René Mebus from Crailsheim, Germany, was BSc in mechanical engineering and involved in the voluntary fire brigade before he became ill. He died on June 30. Rest in peace.
let-me.be/download/57/the-me…
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MEcfs together retweeted
14 Oct 2020
1) It seems like there is some good news from Germany.
Two federal agencies, namely the Federal Ministry of Education and Research (BMBF) and the Federal Ministry of Health (BMG) have announced initiatives for ME/CFS.
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MEcfs together retweeted
27 Jul 2020
Das ist der persönlichste Text, den ich je geschrieben habe. Aber es geht nicht um mich, sondern um meine Freundin und andere #MECFS-Kranke, für die es bislang keine Heilung gibt. Die nur hoffen können - ausgerechnet durch #Corona, @PNN_de @Tagesspiegel
pnn.de/chronisches-erschoepf…
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MEcfs together retweeted
26 Jul 2020
Saw comment by a #LongCovid person who said they don’t go on Twitter coz the #LongHauler tweets have been “hijacked by the #ME lobby, & they’re fed up with it”.
Another kick in the guts for those with #MyalgicE. All we’re doing is trying to help & advise so they DON’T GET #ME!
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