NW Children & Young People’s Palliative Care Network brings together representatives of babies, children & young people with palliative care needs.
Joined September 2018
- Tweets 1,297
- Following 242
- Followers 284
- Likes 31
22 Photos and videos
Pinned Tweet
NW Children’s Palliative Care Network launched a short animation, explaining children’s palliative care to professionals & families, to co-incide with Children’s Hospice & Palliative Care week “What is children’s palliative care?”@Tog4ShortLives
youtube.com/watch?v=uefrUHOv…
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NW Children’s Palliative Care Network retweeted
20 Mar 2024
Children’s hospice services help seriously ill children and young people, and their families, to deal with the emotional and physical challenges they face. Download our free resource to find out how your local children’s hospice can help.
togetherforshortlives.org.uk…
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NW Children’s Palliative Care Network retweeted
21 Mar 2024
We've been joining in with the #WorldDownSyndromeDay celebrations at Alder Hey today. Check out the #LotsOfSocks that we've snapped across the hospital! 🧦 📸
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NW Children’s Palliative Care Network retweeted
22 Mar 2024
A brilliant read from our friends at @SpcialNdsJungle 👇
22 Mar 2024
NEW POST: EHC Needs Assessments 2023: Who’s asking for them? SNJ's @captaink77 has FOI’d councils and found, it’s mostly NOT parents, “sharp-elbowed” or otherwise… specialneedsjungle.com/ehc-n…
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NW Children’s Palliative Care Network retweeted
20 Mar 2024
Wonderful training giving access to fabulous resources for people who train others in #TenderConversations.
Recommend @RealTalk_EOL
20 Mar 2024
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NW Children’s Palliative Care Network retweeted
20 Mar 2024
‘Bereavement and pupils with SEND’ is a new, free-to-access online resource developed by us in collaboration with @LGfl for education professionals working in mainstream or SEND settings. To access the free resources: ow.ly/7b5750QXAHh
#neurodiversityweek
#SEN #SENCO
ALT A support worker in a school for SEND pupils helps a young person with a paper based task at a desk. Alongside the title 'Bereavement and pupils with SEND' are the logos for Child Bereavement UK and London Grid for Learning.
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NW Children’s Palliative Care Network retweeted
21 Mar 2024
We’re delighted that our animation ‘Remembering someone special who has died’ won Gold in the People’s Choice in the £2.5-£5m charity income category at @smileycfa Charity Film Awards 2024. The film aims to encourage conversations and to be helpful to families and their children who are missing someone. Thank you to everyone who voted!
📽️👉ow.ly/RsVM50QYJvL
#Remembering
#CFA24 #CharityFilmAwards #CharityFilm
ALT A digital animation of a young person sat on the floor with a caring adult, together they are looking through items kept in a memory box in the child's bedroom. Next to them is a gold trophy with the Child Bereavement UK logo on the plaque. Text reads, 'GOLD in the People's Choice Award' alongside the Charity Film Awards Logos.
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NW Children’s Palliative Care Network retweeted
21 Mar 2024
And this one won Neonatal Nurse of the year!! She wont big herself up but i will, we @MaimunaMushabe & I couldn’t do our job without her. She truly cares and leads by example. She not one to moan 😉
@MSEHospitals @EoENeonatalODN @dawnmpatience @BAPM_Official @DianeSarkar
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NW Children’s Palliative Care Network retweeted
21 Mar 2024
When a child dies from a life-limiting or life-threatening condition many families are plunged into financial difficulty. Our Butterfly Fund provides a one off grant of £300 to help ease the burden.
Find out more about how to refer here: togetherforshortlives.org.uk…
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NW Children’s Palliative Care Network retweeted
26 Jan 2024
As the five leading children’s charities, we’ve joined forces to make children’s voices heard in the upcoming election. We want to see safer, happier and healthier childhoods right across the UK.
Take action. Sign the petition:
bit.ly/42c2yzL
#ChildrenAtTheTable
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NW Children’s Palliative Care Network retweeted
24 Jan 2024
Our Deaf Children Today survey is here and we need you!
Tilly tells us how we supported her and her daughter Ada, and why it’s vital for families to share their experiences in the survey.
Let's empower every deaf child and young person. Take our survey: nationaldeafchildrenssociety…
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NW Children’s Palliative Care Network retweeted
24 Jan 2024
Parents, if your child finds it difficult to open up to you, here are some things you could say that might help:
1/ You can talk to me, I’m here for you.
2/ If you need to talk to someone else, that’s okay too.
3/ If you talk to me about what is worrying you, I can do my best to help.
4/ Even if I don’t understand, know that I want to.
5/ We’re going to get through this together.
You could also see whether other forms of communication like writing a letter or texting would make it easier for your child to let you know what’s going on. Remember that you know your child. You can tell when it isn't the right time or they aren’t in the mood to talk.
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NW Children’s Palliative Care Network retweeted
25 Jan 2024
Bereaved cohabiting parents who lost their partner between 9 Apr 2001 and 8 Feb 2023 may be eligible for backdated Widowed Parent's Allowance or Bereavement Support Payment
Those eligible have 2 weeks left to claim, up to 8 Feb 2024
More information: gov.uk/government/news/berea…
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NW Children’s Palliative Care Network retweeted
24 Jan 2024
During December 2023, @alderheyED ranked 2nd nationally for waiting times, seeing & treating 85% of our children & young people within 4 hours. The national NHS target stands at 76%, with our A&E ranking 1st in the North-West region 🙌 A massive well done to the entire team!
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NW Children’s Palliative Care Network retweeted
25 Jan 2024
When someone is in the last few days of life, there are some signs which might look distressing. Most of the time, the person is not in any pain - they’re just a normal part of dying.
This article explains what the signs are, and what they mean 👇
hospiceuk.org/information-an…
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NW Children’s Palliative Care Network retweeted
25 Jan 2024
This worrying report shows that a third of councils expect fewer places SEND nursery places to be available from April. It is imperative that government and local authorities work with child care providers to ensure that children with SEND needs get the access they need.
25 Jan 2024
"We have to improve the way it is funded, otherwise children will continue to be turned away." @DingleyCEO bbc.co.uk/news/education-680…
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NW Children’s Palliative Care Network retweeted
23 Jan 2024
We welcome the focus on child health inequalities in the Welsh Government’s Child Poverty Strategy 2024.
But the strategy comes up short as it lacks clear targets and a way to monitor the strategy’s delivery robustly and transparently. (1/2)
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NW Children’s Palliative Care Network retweeted
26 Jan 2024
We’re pleased to partner with Settld. Settld offer a free online notification service to simplify the administration after someone has died, helping take away added stress at what is already a very difficult time.
For more information visit: ow.ly/YS9450ORQzi
ALT A person sitting at a desk using a touchscreen tablet on a stand with the Child Bereavement UK logo and Settld logo.
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📢URGENT DEADLINE APPROACHING
Time is running out for cohabiting parents to claim back payments of bereavement benefits. Claims MUST be @DWPgovuk by 8 Feb to get amount owing. Please retweet to help find the 000s of families still to claim. More info: childhoodbereavementnetwork.…
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NW Children’s Palliative Care Network retweeted
28 Sep 2023
Why is the C-POS study important? A systematic review led by @LucyCoombes7 found there is currently no 'ideal' outcome measure for use in paediatric palliative care. The C-POS study aims to develop the first valid tool for use in the UK. Full article: doi.org/10.1177/026921631664…
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