23 Photos and videos
New Zealand MND Research Network retweeted
31 Aug 2023
Hello SLTs/SLPs and all interested! We are running a free webinar on Apple free voice banking with a focus on what you should know for your clients, who it is better for and what issues may be. Ask any questions, discuss. All welcome & free fegister here mnd.eventsair.com/aac-traini…
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31 Aug 2023
In this webinar Dr Alan Stanley will outline the principles behind providing the best possible care for people with MND (pwMND), and future treatment avenues. Targeted at MDT members caring for pwMND, but everyone welcome to attend. Register & more info@ bit.ly/3Ple9Yu
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New Zealand MND Research Network retweeted
31 Jan 2023
The U.S. FDA will hold a public meeting in March for advice regarding approval of the investigational therapy tofersen for the treatment of ALS caused by SOD1 gene mutations. buff.ly/3kRyckw
#ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
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Meet our renowned experts in ALS at PACTALS 2023.
Join us in Kuala Lumpur, Malaysia on 14-16 September 2023.
@AmmarAlChalabi
@MeritCudkowicz
@genge_angela
@nervecentrals
@Seung Hyun Kim
@Gen Sobue
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New Zealand MND Research Network retweeted
17 Jan 2023
Pain in #ALS is often not recognized enough. A few years ago, we @kingsmnd @AmmarAlChalabi created leaflets about #pain for people with ALS & for health care professionals used in specialist clinics & @mndassoc. Both leaflets received the endorsement of the Royal College of GP
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New Zealand MND Research Network retweeted
13 Jan 2023
This new technique could provide valuable insights into the MND disease process that we can't obtain currently;
Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases
lesturnerals.org/mature-lab-…
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New Zealand MND Research Network retweeted
6 Jan 2023
🚨 New blog! 🚨
Today's blog delves deeper into whether signs of #MND #ALS can be detected before symptoms appear. Observing changes within the body before symptoms occur could help lead to earlier diagnoses and treatment of the disease.
Read more ⬇
mndresearch.blog/2023/01/06/…
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New Zealand MND Research Network retweeted
9 Dec 2022
It's so great to see more researchers utilising King’s #ALS Clinical Staging system in clinical trials. Get in touch if you want to use the system in your research. Also we developed an online staging course part of @TRICALS_cureALS here is the link elearning.elevatehealth.eu/l…
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New Zealand MND Research Network retweeted
9 Dec 2022
✨ It’s the final day of the 33rd International Symposium on #ALS #MND! ✨
We hope you have had a productive Symposium so far and enjoy the final day. Don’t forget if you missed a session you can watch on-demand until 8 March 2022!
#alsmndsymp🌐
ALT A man and woman in the tv studio set of the 33rd International Symposium on ALS/MND
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New Zealand MND Research Network retweeted
7 Dec 2022
The #clinicaltrial session happened at #alsmndsymp yesterday. 💊
We know the #MND #ALS community are eager to hear updates from trials, so we have put together an overview of the 4 trials discussed at the session yesterday on our blog.
Read here ⬇
mndresearch.blog/2022/12/07/…
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New Zealand MND Research Network retweeted
6 Dec 2022
Open-label extension data of Tofersen #alsmndsymp Most data already available in NEJM paper. Surprising large differences between clinical endpoints (e.g. ALSAQ-5 & EQ5D vs ALSFRS-R), confirming the limitations of using scales like the ALSFRS-R in multidimensional disease?
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The @NZMNDResearch Summer 2022 Newsletter is available now. Click on the link to read the latest news stories from New Zealand. #mnd #als
bit.ly/3UztWCz
New Zealand MND Research Network retweeted
1 Dec 2022
Registered for #alsmndsymp? Going to be on the go next week? Make sure you download the FREE Symposium app! 📱 You can watch live sessions, browse the agenda and more all on your iPhone/Android!
App Store 👉itunes.apple.com/us/app/the-…
Google Play 👉
play.google.com/store/apps/d…
ALT Download the mobile app for the 33rd International Symposium on ALS/MND. Includes QR codes for the App store and google play
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29 Nov 2022
Check out this ALS TDI article: How to Find, Read, and Understand a Research Paper – Even if You’re not a Scientist als.net/news/how-to-read-a-r…
New Zealand MND Research Network retweeted
24 Nov 2022
Come and work with our team at Sheffield aiming to end MND. An exciting tenured Grade 9 senior research fellow linked with NIHR. jobs.shef.ac.uk/sap/bc/webdy…
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25 Nov 2022
Register now to attend this free satellite meeting on 6 Dec. Highlights include recent developments in ALS clinical trials, with specific focus in relation to precision therapy, new trial, diagnostic and functional approaches, as well as trial updates.
17 Nov 2022
Have you registered for the #alsmndsymp satellite meeting hosted by @wfneurology? The meeting will highlight recent developments in #ALS #MND clinical trials on 6 December at 10am (GMT). 🔬🧪
Register now ⬇
brainandmindcomms.sydney.edu…
24 Nov 2022
Congratulations to @kyrah_thumbadoo, a PhD student studying UBQLN2 neuropathology and X-inactivation in #MND at the University of Auckland 👏
24 Nov 2022
Our PhD student @kyrah_thumbadoo was the overall winner today and took home the Hilary Halloway prize at the BIRU annual imaging competition @FMHS_UoA. Job well done!! Proud supervisors: @EmmaLScotter @MDragunow @VDieriks
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24 Nov 2022
Symposium Blogathon: Focus on... Plenary Speakers (Part 1) mndresearch.blog/2022/11/03/…
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New Zealand MND Research Network retweeted
24 Nov 2022
We have some 230 people coming to the Alliance Meeting and 440 to the Allied Professionals Forum including the largest contingent of people living with ALS/MND attending in history. You can still join us at pheedloop.com/EVEOHKCATAZOQ/… #ALSMNDWithoutBorders #ALS #MND
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