Joined January 2019
- Tweets 410
- Following 57
- Followers 212
- Likes 240
221 Photos and videos
Thanks to @TheACMG for highlighting the progress on coverage for #medicalnutrition at this morning’s session on Hot Topics in Washington DC and Impacts to Medical Genetics at #ACMG2026. Calling all providers to share their stories at nutritionequity.org
1
10
Thank you to @RepRutherfordFL for your floor speech on behalf of HR6982 - the Medical Nutrition Equity Act & your leadership on the bill. It's #TimeForMNEA. This bill will ensure better care and treatment for thousands with #GI & #metabolic disorders youtube.com/watch?v=k_Q1ldbg…
1
3
5
200
A week ago today we were on the Hill to meet with #MNEA Champions @RepMcGovern and @RepRutherfordFL. Their dedication and yours will make #medicalnutritionequity a reality for those with #IEM and #GI conditions. It's #TimeforMNEA. Share your stories at nutritionequity.org
1
2
4
526
Thank you to our amazing advocates and their communities! @AAAAI_org @aaf_info @APFEDorg @flokhealth @GlobalLiver #GMDI @MitoAction @NASPGHAN @NPKUA_Info @NECPADOrg @RareDiseases @SIMDtweets @UMDF
2
2
219
Advocates for #medicalnutrition for #GI and rare #metabolic conditions are on Capitol Hill today. It’s #TimeforMNEA and to pass the Medical Nutrition Equity Act. Join us by sharing your stories at nutritionequity.org.
2
6
148
Thank you @RepMcGovern for advocating on the House floor today for the 2.7 million Americans with gastrointestinal or inherited metabolic disorders who rely on #medicalnutrition. It's #TimeforMNEA
30 Jan 2024
I introduced the Medical Nutrition Equity Act with @RepRutherfordFL so families impacted by inherited metabolic diseases or gastrointestinal conditions can access the specialty food and formula they need to live their lives to the fullest. Congress should pass it NOW!
8
12
810
Last mth, 33 organizations endorsed a request to @CMSGov to include Medical Nutrition as an Essential Health Benefit (EHB) the ACA. #MedicalNutrition is the primary & sometimes only treatment for certain inherited metabolic & GI conditions. 1/2 bit.ly/mednutritionehb
1
10
18
1,810
Significant gaps & inconsistencies in state coverage of #medicalnutrition exist; the ongoing formula shortage shows medical nutrition’s essential nature. These & more reasons in our statement qualify medical nutrition as an essential health benefit: bit.ly/mednutritionehb
2
7
569
URGENT ACTION ALERT / DEADLINE 1/31!
nutritionequity.org/takeacti…
For everyone who uses medical nutrition, cares for someone who does, or has patients who require medical nutrition, please act now:
Tell CMS that Medical Nutrition should be an Essential Health Benefit Under the ACA
1
12
19
2,453
Please @LeaderMcConnell, @SenSchumer, @SpeakerPelosi & @GOPLeader, don't let Congress go home without addressing the need for #medicalnutrition legislation. Our community needs passage of the #MNEA before year's end. nutritionequity.org/wp-conte…
1
2
128
TY to @joniernst and @SenBooker for your comments in support of the #MNEA S2013/HR378 in today's hearing on #foodasmedicine. Passing this legislation before year's end is imperitive to achieve equity for those who rely on #medicalnutrition. #MNEAFinishLine
5
13
Today, we get personal: Share this image on your timeline and
- Tell the world why #medicalnutrition is important to you
- Tag your legislators & thank them or ask for their support
- Ask your friends and family to get involved at nutrtionequity.org/takeactio… #MNEAFinishLine
4
6
Thousands rely on medical nutrition as their primary medical treatment. Let's get the #MNEA Across the Finish Line! Congress has just a few short weeks to pass legislation in this session. Urge them to do so NOW at nutritionequity.org/takeacti… #mneafinishline
2
7
12
Thank you @SenJohnBarrasso for your co-sponsorship of the #MedicalNutritionEquityAct (S2013) in the 117th. With your help, we'll achieve #MedicalNutritionEquityNow.
1
5
The #formulashortage showed #medicalnutrition is necessary for thousands to survive & thrive. Our crisis of access won’t end when supply resumes. Save the date 9/28 for #WHConfHungerHealth & bring #MNEA S2013/HR3783 to the table. #MedicalNutritionEquityNow NutritionEquity.org
2
18
34