Researcher, policy wonk, data champion. Mother, citizen of the world, lover of the great outdoors. Happiest up a hill or on a bike.
Joined September 2014
- Tweets 1,103
- Following 469
- Followers 209
- Likes 3,075
212 Photos and videos
30 Jan 2025
Son has continuous cough since early Nov. Can't get to sleep. Barely tolerated in classroom on few days he's there. GPs at wits end, referred to #paediatricrespiratory @OUHospitals. Appointment end July! #NHS that's way too long to wait for a young person missing school.
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Anne Pinney retweeted
30 Jul 2024
Are you a family carer of someone with a severe learning disability? You can connect with others who understand through our various peer support options provided at the CBF:
challengingbehaviour.org.uk/…
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Anne Pinney retweeted
15 Jul 2024
Challenges of parenting children born before 24 weeks of gestation
onlinelibrary.wiley.com/doi/…
Good articles, challenges for children & families.
Generalisability of this Swedish study for 🇬🇧/🇺🇸 tho? Family and social support was good, support economically & at school widespread
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7 Jul 2024
So happy to have run my second half marathon this morning in 1h53. Much more importantly, raising over £4000 for MND Association Oxford Care Centre, in memory of our dear Mum. Thank you so much to all who sponsored us, you can still donate at justgiving.com/page/catherin…
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23 Jun 2024
Up at 6:30am to beat the heat on last long training run (22km) for half marathon on 7 July. Fund-raising with family for the outstanding Oxford #MND Care Centre who supported my Mum and us with such kindness. Thank you for any support you can offer. justgiving.com/team/catherin…
ALT my amazing much-missed mother
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10 Jun 2024
We are running a half marathon on 7 July in memory of my amazing mother. Please help us to raise funds for the Oxford MND Care Centre who supported her and our family with incredible kindness through our long, painful journey with #MND. Thank you. justgiving.com/team/catherin…
ALT my mother and son enjoying a special moment in the sunshine together
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28 Apr 2024
Lockdown habit that kept going. German and now Mandarin (much harder).
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Anne Pinney retweeted
12 Apr 2024
Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk
11 Apr 2024
@BAPM_Official have released the draft Framework for Perinatal Palliative Care for consultation, important reading and a chance to give feedback to the authors
bapm.org/resources/palliativ…
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5 Mar 2024
Spare 90 seconds to watch & share this great little video with a very important message, from children and young people missing out on school due to unmet special needs.
4 Mar 2024
Parents are blamed by the government for absent children when in fact we are fighting to get our children to school. If anyone wants to know why we fight so hard - watch this #WeCanLearn @education4all23 @DCPcampaign @bphillipsonMP @helenhayes_
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Anne Pinney retweeted
19 Feb 2024
Congratulations to @samthesparrow for receiving this prestigious award. She is such a powerful champion of children in care and care leavers ⬇️
A gorgeous speech from Samantha Morton who is awarded the BAFTA Fellowship 👏 #EEBAFTAs
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Anne Pinney retweeted
13 Dec 2023
Please take a look at our new Enhanced e-learningcourse, complementing the ‘Introduction to Neonatal Palliative Care’ course. Adapted from our textbook ‘Neonatal Palliative Care for Nurses’ @duncan_CNSE @gso_jones @KathEvans2 @MckeonCarter @louisewlowe @petty_julia @EmilyHarrop9
The International Children’s Palliative Care Network releases today its newest e-learning course entitled, Neonatal Palliative Care: An Enhanced Course.
Find more information about the new course here ow.ly/uJRt50QihgI
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Anne Pinney retweeted
8 Nov 2023
3 x ⬆️ in babies born 22 weeks cared for in UK NNUs
3/10 admitted survive to discharge
Implications for resources to deliver best care & support parents and staff.
@ImperialPaeCH
@ImperialSPH
@Imperial_PCPH
Read @imperialcollege news coverage ⬇️
imperial.ac.uk/news/249374/n…
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Anne Pinney retweeted
8 Nov 2023
Impact of revised @BAPM_Official
extreme preterm framework: risk based approach to provision of survival focused care for babies born at 22 weeks’ gestation in England and Wales 2018-2019 vs 2020-2021.
Published @BMJMedicine today ⬇️ bmjmedicine.bmj.com/content/…
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Anne Pinney retweeted
18 Oct 2023
NEW: Risk factors of secondary school exclusion
In our latest post, we identify three variables associated with exclusion in secondary: history of exclusion/suspension at primary, involvement with Social Care, and economic disadvantage.
Read more ➡️ bit.ly/490JMhK
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Anne Pinney retweeted
My recent report has highlighted some of the distinct challenges that children with SEND face in their daily lives.
Ahead of the Government's Disability Action Plan, I have made a series of recommendations with key changes that I would like to see.
childrenscommissioner.gov.uk…
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6 Oct 2023
Great report from @ChildrensComm with much evidence from YP themselves. Clear recommendations on need for early ID, better data, access to advocacy, ICB focus on school attendance, more school nurses, mental health nurses, LD nurses, health visitors ... childrenscommissioner.gov.uk…
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6 Oct 2023
Been working hard on these data challenges for several years with @CDC_tweets @TrueColoursTrus @BlogSenco @KarenHorridge. Great to see @ChildrensComm highlighting importance of better data to improve services for disabled children, young people and their families.
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6 Oct 2023
Wise words @Rachel_deSouza: I want to see an overhaul of how we think and talk about disabled children’s experiences: it is not the job of one department, or one funding pot.We must consider what every child needs to fulfil their potential and feel pride in what they can achieve.
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