Supporting patients & caregivers in mgmt of chronic conditions. Follow us for lived experiences, health info, tips. INFORM, ENGAGE, EMPOWER ! Founder @ap_mittal
Joined July 2014
- Tweets 9,621
- Following 1,429
- Followers 1,537
- Likes 4,665
768 Photos and videos
What is common to these people?
1. They all have lived experience of cancer either as survivors or caregivers of someone diagnosed with cancer
2. They have dedicated time & energy to learn skills to contribute effectively as patient advocates.
#NationalCancerSurvivorsDay 1/
1
2
54
PARC is a joint program by @CancerGridIndia & @PatientsEngage. We are grateful to the faculty and guest patient advocates who volunteered their time and expertise. Esp. support of @cspramesh, @ManjuSengar7 @docpriyar Dr Girish
More about PARC here patientsengage.com/news-and-… 3/
1
50
The icing on the cake was the opportunity to participate in CReDO. This experience not only helped the patient advocates put their learnings into action but also helped researchers understand the value of the voice of the patient in the design of the research.
cc: @ap_mittal
1
13
PatientsEngage retweeted
#Cancer patients across #India are scrambling for two life-saving #chemotherapy #drugs as a #shortage of #Cisplatin and #Carboplatin begins to disrupt treatment schedules, with some hospitals reporting only one to two days' supply left. Doctors at #AIIMSDelhi, #privatehospitals and #cancercentres across the country warn that prolonged shortages could affect outcomes for patients undergoing curative #treatment. Hospitals are reporting dwindling stocks, while patients and their families are being forced to search pharmacies and distributors in an effort to procure the medicines.
"The situation is pretty serious. We have barely one or two days' supply left at the hospital. Patients are frantically searching and trying to arrange the drugs themselves," said @drshyam_aggarwa , Chairman, Medical Oncology, Sir Ganga Ram Hospital. The medicines are used in the treatment of several common cancers, including those of the lung, ovary, cervix, breast, oral cavity, oesophagus, testis and gallbladder. @timesofindia
18
234
341
25,822
PatientsEngage retweeted
Ian Tannock’s advice to future oncologist. A must-listen. youtu.be/gk3wX6281YE?si=QDn2…
1
11
28
2,377
PatientsEngage retweeted
24 hours after a missing persons complaint was lodged with J8 Neelangarai, the FIR is still awaited.
Others missing on 27th are listed on @tnpoliceoffl missing persons portal, but Janarthanan, a young disabled adult, at risk w/o seizure medication, isn't.😡
🆘 @SandeepRRathore!
ALT Chennai Purple Alert - Missing at Risk Adult Janarthanan, Young Adult With Intellectual Disability has been missing in Chennai from April 27 2026, 6.45 pm. Janarthanan got separated from his mother on the streets of Vetuvankanni, near Neelangarai, East Coast Road (ECR) Chennai. He is a high risk person as he is prone to seizures and needs his medication. 23 years old, 5'8" height, front teeth are broken/chipped. Wearing black shorts and black t-shirt. Understands Tamil and can respond (speech not very clear) Likes trains, especially MRTS. Family used to live in Mandaveli and he is used to taking the MRTS train. Police complaint given at Vettuvankeni police station. Prone to seizures! Needs his medication Please contact 9884153020 or if you have any information More information and updates on this link: https://bit.ly/MissingAtRiskAdult #PraveensProtocol
3
208
PatientsEngage retweeted
Outrage over UN–Nestlé partnership - The Lancet thelancet.com/journals/lance…
Why this partnership is troubling. @PhilBakerNZ says “Nestlé sits at the centre of a global network of front groups that actively lobby against the adoption of policies that seek to protect and promote healthy diets”.
Hundreds of scientists across the world have called to end this partnership of United Nations University (UNU) Institute for Water, Environment and Health (INWEH) with Nestlé.
@TheLancet reached out to Nestle and University-silence
@UN Principles?
2
12
17
774
PatientsEngage retweeted
Apr 22
On the lack of compelling evidence that medical AI is improving patient care, and what to do about it, a @NatureMedicine editorial nature.com/articles/s41591-0…
43
383
1,054
149,250
PatientsEngage retweeted
Apr 18
If there was one article you want to read as a clinician?
Read this
Via @jenna_taglienti - an absolutely stunning write in @JAMA_current
"Medicine can have extraordinary meaning. But it cannot substitute for being present in your own life. The world may need us as physicians.
But the people who love us need us as ourselves.
And that is the role no one else can fill."
Brilliant - and much love to you
'Time is Finite"
jamanetwork.com/journals/jam…
20
238
704
72,785
PatientsEngage retweeted
Apr 13
The @SRFmentalhealth Sujit John Research Fellowship
Those interested in more details may write to sjresfell@scarfindia.org.
5
3
768
PatientsEngage retweeted
Mar 27
The National Medical Commission (NMC) has directed all medical colleges and hospitals to restrict the use of stem cell therapy to a limited set of approved diseases, warning that any violation will invite legal action. The advisory follows a recent judgment by the Supreme Court of India, which came on a petition arguing that stem cell therapy, still experimental, was being promoted as a “treatment” or “cure” for Autism Spectrum Disorder (ASD) in clear violation of existing laws and guidelines. #ASD #stemcell #autism #NMC @timesofindia
5
28
62
3,405
Word 18 of #WordOfTheWeek series is Seizure.
Seizure is a very poorly understood term. It is not one symptom. It can present as different symptoms.
If you found this useful check out our website for more infomation patientsengage.com/
#HealthLiteracy #epilepsyday #seizure
1
74
In our Lived and Leading podcast @nandita_venky & @ashna_ashesh emphasized:
Importance of listening, community partnership, lived experience as expertise, working with policymakers to shape policy to #EndTB
Don't miss
youtube.com/live/eEcZ2BALPlA…
#WorldTBDay #LivedExperiencesMatter
2
3
110
PatientsEngage retweeted
Mar 23
India’s drug regulator has launched a nationwide crackdown on unapproved #FDC drugs, flagging circulation of at least 90 such medicines and directing states to take immediate action against their manufacturers, marketers and distributors.
1
10
21
1,417
PatientsEngage retweeted
Mar 18
A fundamental shift in clinical trial design to include pregnant and breastfeeding women is needed to make up for the “significant evidence gap” surrounding medication use in these groups, experts say
bmj.com/content/392/bmj.s523…
2
11
21
3,670
Patient advocate Ms. Beth Emery, JD, delivered a powerful challenge. She asked investigators a question that has stayed with me:
“Are you demanding more evidence for de-escalation than you demand for adding a new therapy? And if so, why?”
#CommonSenseOncology
Forgotten Lessons From South Africa: My Oped in @ASCOPost ascopost.com/news/march-2026… @ASCO @SABCSSanAntonio @OncoAlert Are you demanding more evidence for de-escalation than you demand for adding a new therapy? And if so, why?”
1
35
Join us 18th March 7pm IST as @ap_mittal speaks with @nandita_venky & @ashna_ashesh TB survivors on the journey into advocacy, challenges they continue to see & how community partnership is essential to achieve the goal of TB elimination
#LivedAndLeading #PatientAdvocacy #EndTB
1
1
1
101
Or you can catch the livestream on
youtube.com/@Patientsengage
15
PatientsEngage retweeted
Mar 11
The government has issued an advisory cautioning pharmaceutical companies against the use of surrogate advertising to promote #GLP-1 drugs, amidst growing concerns of rampant misuse by gullible consumers.
@TheEconomicTimes share.google/DLem2HY4PCdcKOl…
10
15
2,576