Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐
Joined November 2020
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Feb 25
People who have #depression are not addicted to our antidepressant medication.
People who have #ChronicPain are not addicted to our pain medication.
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Patients with Power retweeted
Jan 28
“We all have the same 24 hours”
As a chronically ill/disabled person I have a lot less usable hours than a healthy/abled person. And of those that are usable they’re still not as usable as they used to be when I was overall healthy. Lots of pacing/resting.
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Jan 26
WHAT DO WE HAVE TO DO - go on a meds strike💊 and hurt big pharma - where the power's at 💰 - so they pressure the government on our behalf🏛️??
To start treating sick people as human beings and enforcing clinicians to meet their basic job requirements and ethical codes? (listen to patient, treat with respect, stay up-to-date in field etc...)
Obviously we can't all stop taking our meds but I mean, appealing to compassion has not been working...
⚡️ #NEISvoid #disability #pwME #DoNoHarm
Jan 25
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Jan 25
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Doctors often don't go by the book when it comes to treating patients. They like to cut corners. They usually don't see the consequences of the corners they cut off. #ChronicIllness #Disability
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7 Dec 2025
Argh when people suggest you do something and follow it up with "It's just 15 minutes a day - everyone can find 15 minutes"
If I took 15 minutes out of every day for all the things I'm supposedly able to find 15 minutes for, I'd have no day left!
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6 Dec 2025
Here's the most recent retaliation:
I needed an urgent biopsy. My GP was away so I had to see a random. I wrote a few sentences beforehand to read out to describe symptoms etc. He interrupted me before I could finish, and I just asked for him to let me finish.
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6 Dec 2025
After asking to finish speaking, he suddenly refused to examine me and wrote a referral that would not be taken seriously by anyone. "She worries she has #cancer" - but didn't include any of the red flag symptoms or signs.
He tried to hide it from me, then refused to change it.
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4 Dec 2025
Doctors have power over their patients. Some are responsible with it, many abuse it. It's not just carelessness and being overworked.
Let's be real for a second: There's nothing to stop people with high functioning #narcissism or psychopathy from becoming doctors. They're protected by the assumption that people become doctors because they want to help people.
In my experience, I've found some to just like the power trip.
⚡#ChronicIllness #ChronicPain #DoNoHarm #spoonies
2 Dec 2025
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4 Dec 2025
Urrrgh every time! 😆😭
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Patients with Power retweeted
3 Dec 2025
“Please do not confuse the #opioidcrisis with those living in #chronicpain. Please do not do chronic pain sufferers the disservice of removing a lifeline. It’s a death sentence for some and a life sentence to greater misery for the rest.” buff.ly/3s1nlV9 #opioidhysteria
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1 Dec 2025
It's horrific the way that doctors cover for each other, using medical jargon to hide the truth.
And the way that for medical concepts, a doctor's word holds so much weight and a non-doctor's has next to none. Anything you say as a non-doc has to be verified by a doc likely to cover for his mates.
29 Nov 2025
Thank you for your comments. We accept that Addison's disease can be difficult to suspect without abnormal electrolytes or pigmentation but Robbie had both & it was suspected.
It is untruthful for doctors to claim AD is difficult to diagnose when the difficulty is to suspect it!
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