We are a student organization at Northeastern University that aims to increase awareness for rare diseases and provide support to those in need.
Joined October 2017
- Tweets 60
- Following 195
- Followers 250
- Likes 16
7 Photos and videos
31 Jan 2020
This week we welcomed Mike Miller of the Huntington’s Disease Society of America! Thank you to everyone who came to our first speaker event of the semester! instagram.com/p/B7_sF0xAWre/…
RARE Northeastern retweeted
7 Jan 2020
Out now! Download the official poster for #RareDiseaseDay 2020 now available via rarediseaseday.org/downloads. Share it today to show your support for the rare disease community!
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6 Jan 2020
Marking our return to Twitter with an important PSA: We’re at Curry Crossroads today until 6pm selling insomnia cookies! 🍪🍪🍪
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6 Jan 2020
Update: THIS FUNDRAISER WILL BE MOVED to a later date due to an unforeseen cookie emergency!
RARE Northeastern retweeted
9 Jul 2019
BBC News - 'Amazing' gene-silencing drugs reach NHS
bbc.co.uk/news/health-489079…
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RARE Northeastern retweeted
9 Jul 2019
Your patient experience is your expertise and the role of the FDA Patient Representative® is an equal part of the important equation. Learn more about the FDA Patient Representative Program® youtu.be/F4yxgzGVRXg
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RARE Northeastern retweeted
11 Dec 2018
The Power of Public Awareness & #SocialMedia Exemplified - Rarest of Blood Found Following Unprecedented Global Search theepochtimes.com/donor-foun… #IoT #ITRTG #IT #advocacy #SciComm #MedEd #tech #blood #technology #awareness #BigData #RareDisease #inspiration #hematology #cancer
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RARE Northeastern retweeted
11 Dec 2018
Did you know that your organisation can support Rare Disease Day 2019 by becoming a friend today? >> rarediseaseday.org/become-a-…
#RareDiseaseDay #ShowYourRare
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RARE Northeastern retweeted
#OpenEnrollment ends on Saturday, December 15. Learn more about this critical time in choosing a 2019 #healthinsurance plan in webinar recording from #NORD policy department here: ow.ly/71c450jUPoX
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10 Dec 2018
Join RareNeu at @NUafterHOURS tonight for a free musical performance by TEGA. All proceeds will be going to @SCDAAorg to support sickle cell disease! Succulent fundraiser at 7, concert at 8 🎤🎼🎉
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RARE Northeastern retweeted
16 Oct 2018
Patient Affairs Staff works closely with #FDA medical product centers to find ways to include your voice as patients, caregivers, and advocates. #NORDSummit go.usa.gov/xPXQD
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RARE Northeastern retweeted
1 Jul 2018
Did you know.... The average #raredisease patient waits four years before receiving a correct diagnosis. That's why we call it 'diagnostic odyssey'.
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RARE Northeastern retweeted
29 Jun 2018
About 80% of #RareDiseases have a genetic cause. Learn about basic #genetics in our Genetics 101 infographic! raremark.com/articles/geneti…
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RARE Northeastern retweeted
1 Jul 2018
What is Stiff Person Syndrome? Despite being rare there are many sites where you can get information. ispub.com/IJN/7/ @lizblows @DrPas84Ele #stiffpersonsyndrome #sps #oneinamillion #tinman #raredisease
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RARE Northeastern retweeted
Retweet for #WednesdayWisdom: 30 Million Americans are living with #rarediseases and more than half of those individuals are children.
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30 Mar 2018
We had a great time hearing from the Executive Director of @targetcancer this week! #rarecancers #rareresearch #raredisease
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6 Mar 2018
Our members celebrated Rare Disease Day the best way we know how - spreading awareness to other students! #RareDiseaseDay #PatientDriven
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