Joined April 2009
18 Photos and videos
Sandi Frear retweeted
We thank House Appropriations Committee Chair @TomColeOK04 (R-OK), Ranking Member @rosadelauro (D-CT), and Subcommittee Chair @Robert_Aderholt (R-AL) for including a $100 million increase for the @NIH in the FY27 LHHS bill. This funding bill improves upon the president’s budget proposal in other meaningful ways, and we recognize the significance of these incremental improvements. But for American patients and the economy, incremental improvements won’t drive the progress we need or even ward off failure. To stop heartbreaking diseases like ALS, cancer, and Alzheimer’s, we must make more than tentative progress. Going bold isn’t optional; it’s the only path forward to the health, prosperity, and security that Americans deserve. Read more in our latest statement: researchamerica.org/press-re… #FundNIH #HealthResearch #MedicalInnovation
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🚨 Louisiana providers: Beginning 1/1/2027, newly-enacted SB 465 will shorten insurer claim response times and reduce the recoupment/retroactive denial period from 18 to 12 months. A win for providers that means faster decisions, greater payment certainty, and less admin burden.
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Sandi Frear retweeted
Amazing results being achieved in lupus by CAR-T therapy A scientifically genius method of engineering our own immune cells to treat cancers or auto immune conditions Absolutely brilliant work by colleagues at @uclh 👏👏👏 THAT'S science.THAT'S medicine. You love to see it
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Sandi Frear retweeted
✅ Join us this (Saturday) morning 09:45 at #EULAR2026 together with George Bertsias & Marta Mosca for the PLENARY session about the treatment of #Lupus - is T2T doable in #SLE? - What is the current SOC for SLE? - What are the MOST PROMISING new and future alternatives?
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Sandi Frear retweeted
We appreciate you spreading #LupusAwareness
#Lupus ends with us.” Wearing @LADAOrg wristbands help create an impact as LADAinc.org shares facts to empower awareness & #Rheum advocacy.
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Sandi Frear retweeted
🏆 Congratulations to all recipients of the @eular_org Awards at #EULAR2026! 👏 A well-deserved recognition of outstanding contribution, commitment and leadership within the rheumatology community. 🦋 Inspiring to see this excellence celebrated today
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Sandi Frear retweeted
High deductibles and hidden fees are driving up costs for healthcare and medications. #TXLege, please stand with patients and hold health insurers and PBMs accountable to improve affordability and access.  #PrioritizePatients #TX4HealthAccess @DanielAldersTX @RepJamesFrank
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Sandi Frear retweeted
What a beautiful day on Capitol Hill. #RheumAdvocacyConference26
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Sandi Frear retweeted
“Non-pharmacological interventions are not extras.” Our Chair @Jeanette_Lupus reminds us what people with lupus live with every day. In our Swiss Knife Survey, 84.9% reported fatigue, 72.8% joint pain and 62.6% muscle pain. doi.org/10.1016/j.autrev.202… #EULAR2026
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Sandi Frear retweeted
We are grateful for #Lupus and #Arthritis Patient Experts like you sharing your story.
with @ACRheum professionals shared why #Rheum matters to patients on Capitol Hill. #RheumAdvocacyConference26 Grateful to @LADAOrg for supporting collaboration that empowers this #Lupus patient/advocate.
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Sandi Frear retweeted
On June 17 at noon ET, join us for a free live CME webinar that will help you navigate these difficult discussions with honesty and compassion. buff.ly/xvaYGZi
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Sandi Frear retweeted
It was great catching up with Chairman Ken Hagan to discuss the challenges facing our region and the important work underway to position our community for continued growth and future success. I appreciate his leadership and commitment to strengthening our economy, improving infrastructure, and enhancing the quality of life for residents throughout the region.
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Migraine & Headache Awareness Month begins today! This month is a crucial opportunity to highlight the real and often invisible challenges faced by people living with headache disorders. Join us in the #PathToBetterDays campaign. We've teamed up with other organizations to amplify awareness, and ensure that people living with headache diseases feel seen, supported, and understood. Learn more here: migraineheadacheawarenessmon… Thank you to @CoalitionCHAMP for bringing us all together. 💜 #MigraineAwareness #HeadacheAwareness
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Sandi Frear retweeted
✅ and this is the start of the #SLICC group meeting at #EULAR2026. Moving forward ⏩ the care of #lupus patients 👍 We have an incredible panel of international #SLE experts in the room today 🌍🌎🌏
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Sandi Frear retweeted
Grateful to @LADAOrg for supporting me and the @ACRheum #RheumAdvocacyConf26 *amplifying the patient voice” #Rheum matters!
Enjoying @ACRheum ‘s #RheumAdvocacyConference26 because California doctors, OTs, Fellows and people living w/ #lupus care about #Rheum matters!
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Sandi Frear retweeted
Absolutely thrilled to see Mary McGowan join this important conversation! I am joining 💜 @LADAOrg @LupusMI @LupusNE @Lupus_Chat @CaringForLupus @UMassLupus
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We're counting down the days to #EqualResearchDay on June 10! Join SWHR for a webinar about women’s participation in clinical trials. Register now and save your spot: ow.ly/bcKM50YV99i #SWHRtalksWomenHealth @StopSarcoidosis @CTTI_Trials @WomenHeartOrg
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Sandi Frear retweeted
There is strength in numbers… With @ACRheum & @ACRheumDC -collaborating matters. @LADAOrg understands the importance of “amplifying the patient voice” together with @CSROAdvocacy @AWIRGROUP & others orgs. #RheumAdvocacyConference26
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Sandi Frear retweeted
We are honored to have you represent #LADAorg! #LupusWarrior 💜
at the @ACRheum ‘s #RheumAdvocacyConference26 “amplifying patient voices” representing @LADAOrg - as a person living with #Lupus & other #Rheum diseases. #LupusAwarenessMonth
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Sandi Frear retweeted
Thank you @carrainc for being such a great pediatric research organization and partner! 💜
💜We're proud to feature this important research partnership between @LADAOrg and CARRA during #LupusAwarenessMonth. Read our blog ➡️ carragroup.org/blog/lada-par… #lupus, #pedsrheum
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Sandi Frear retweeted
We need innovative #lupus research initiatives that include cross-sector collaborations, public-private partnerships and robust basic, clinical and translational projects that will enable scientists to investigate disease pathogenesis and physiology, identify biomarkers, design better clinical trial methodologies, prevent complications, develop precise diagnostic measures and safer, more effective treatments, and ultimately eradicate this devastating disease. #LupusAwarenessMonth #LupusAwareness
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