Joined November 2022
- Tweets 1,860
- Following 337
- Followers 295
- Likes 43,752
274 Photos and videos
Trisha retweeted
Jun 12
Promising news for the lupus community! 📰
An exciting step toward more targeted treatments and, potentially, better outcomes for people living with lupus.
bbc.co.uk/news/articles/c4gy…
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Jun 11
Thank you for all you do to raise funds & awareness for #lupus. No child should be limited by any illness. 💜
Our Lupus campaign to support @LupusOrg is just over halfway to goal—a grant we hope to issue this month!
Please help us fully fund this incredibly important Pediatric Lupus Research today and give from the heart:
whitefeatherfoundation.com/c…
💜
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Mary McGowan with Foundation for Sarcoidosis Research @StopSarcoidosis joins us to discuss the Ignore No More campaign, stopsarcoidosis.org/actnow/, featuring patient experiences to drive change.
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Trisha retweeted
Late yesterday, the U.S. House Appropriations Committee voted to increase Fiscal Year 2027 funding for #lupus programs at the HHS, providing a total of $19 million for lupus programs at CDC and OMH.
Read more about this victory in our advocacy update: buff.ly/z4NQ5sH
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Jun 7
Bringing hope to many in the #lupuscommunity - Bravo @andreafava 💜💁🏻♀️👏 @LADAOrg @UMassLupus @Lupus_Chat @LupusNE
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Jun 7
Jun 6
Great turnout and discussions at #EULAR2026 for Karen Salomon-Escoto’s poster presentation on the CARE tool for inflammatory arthritis risk assessment.
Exciting to see so much interest in improving early recognition and referral pathways in rheumatology! #UMassRheum
#Rheumatology
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Trisha retweeted
Jun 6
Opening this PARE session, our Chair, Jeanette Andersen, highlights why the patient voice must be part of conversations on next-generation treatments.
Innovation in RMDs is not only about what is scientifically possible. It is also about what patients need & value
#EULAR2026
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Trisha retweeted
Jun 4
Oral GLP1s now coming to the market-Peptide based (can be given only on empty stomach),
Non peptide based (can be given anytime). Know about s/e and contraindications.
May have Rheumatic diseases indications soon. Imp for rheumatologists to be familiar.
#EULAR2026 @RheumNow
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Trisha retweeted
Jun 5
“Always ask if they want to participate in clinical trials. Don’t decide for them”- powerful words from Marloes van Onna.
Older adults may face additional barriers, but excluding them by assumption is not the answer.
But what else can we do? 👇🏻
#EULAR2026
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Trisha retweeted
Jun 5
Watch out! 👀
Our Chair, @Jeanette_Lupus, will be on @eular_org TV talking about #LupusGPT, our patient-led AI tool designed to provide reliable lupus information in many languages.
We’ll share the interview link as soon as it’s available.
youtube.com/@eularorg/videos
#EULAR2026
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Jun 5
We know this is a “suffer in silence” “soldier on” time for women w/rheumatic disease - Thanks for highlighting the need for better messaging & care 💜@LADAOrg @LupusMI @LupusNE @SandiFrear @Lupus_Chat @LAlupusLady
Jun 5
Menopause should be part of routine rheumatology practice.
Sharon closes this 🔝 talk with clear messages for clinical care:
-Ask routinely
-Recognise menopause as a modifier of RMD experience
-Address inequalities
-Support women through a holistic, culturally responsive MDT approach
#EULAR2026
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Trisha retweeted
✅ #EULAR2026 is truly an EXCEPTIONAL EVENT, not just because of the very high level of the talks but because of the possibility to meet truly exceptional colleagues to shape the future of #Rheumatology. Here with Sandra Meisalu, President of the Estonian Society of Rheumatology.
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Jun 4
Jun 4
“Non-pharmacological interventions are not extras.”
Our Chair @Jeanette_Lupus reminds us what people with lupus live with every day.
In our Swiss Knife Survey, 84.9% reported fatigue, 72.8% joint pain and 62.6% muscle pain.
doi.org/10.1016/j.autrev.202…
#EULAR2026
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Jun 4
OMG! I was counting the days until their release on Tuesday. I have never been so excited to sit in my drs waiting room this am #summerreading ☀️📖💁🏻♀️💜
What a week to be a fan of both Ann Patchett and Maggie O’Farrell, can’t wait to get stuck into these 📚
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Trisha retweeted
Jun 3
🏃♀️ According to @lupusreference et al., physical activity could improve fatigue, depression, HRQoL, strength and function in SLE.
Yet only 11% to 29.8% of people with SLE met WHO PA recommendations.
Lifestyle may help fatigue, but is it that easy?
#EULAR2026
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Trisha retweeted
Myasthenia gravis…
*Is a rare, neuromuscular, autoimmune condition
*Causes muscle weakness
*Can make it hard to see, swallow, breathe, and walk
*Can affect anyone, regardless of age, gender, or ethnicity
Learn more at
myasthenia.org/understanding…
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Jun 1
Absolutely thrilled to see Mary McGowan join this important conversation! I am joining 💜 @LADAOrg @LupusMI @LupusNE @Lupus_Chat @CaringForLupus @UMassLupus
We're counting down the days to #EqualResearchDay on June 10!
Join SWHR for a webinar about women’s participation in clinical trials. Register now and save your spot: ow.ly/bcKM50YV99i
#SWHRtalksWomenHealth
@StopSarcoidosis @CTTI_Trials @WomenHeartOrg
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May 28
It is no day at the beach with #lupus -I enjoy water sports & a good book - hat, rash guard, umbrella & very short visits help #photosensitivity ☀️💜🏖️📖#lupusawarenessmonth #Horsebay
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