Joined July 2024
- Tweets 4,211
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- Followers 122
- Likes 13,737
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Pinned Tweet
Ok. So now let’s cut the #ALS BS! Act for ALS is ONLY to give access. Dont oversell it “HUGE strides towards ending ALS”. That’s unfair immoral to pals cals to ALWAYS grossly overstate everything! Shameful ! Let’s actually see what the report said below 👇👇👇
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ScienceMatters retweeted
Feb 12
Does that "police officer" really believe that or is he just parroting what his bosses are telling him to say or is he just a pussy that's afraid to be called out for "politically incorrect" speech? In either case, he's not fit for the job.
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5 Oct 2025
#als #mnd @bsw5020 @iamalsorg @alsassociation question! Read this. Do you actually know of Scleroderma, IPF, PAH, Amyloidosis, Ehlers-Danlos syndrome, GPA? Most of us Clueless. I am. So are the masses about #ALS. Same reaction as you now. Rare=unknown. ZERO way to change that!
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16 Sep 2025
16 Sep 2025
Sadly (thankfully ) it’s rare. #ALS strikes 1-2 out of 100k yearly. ALZ strikes ~150 per 100k per yr! Thats 9,900% more frequently than ALS!! 😳😳 Some pals say that the population must not be led to think it’s rare bc they donate. I find deceit abhorrent no matter the disease.
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15 Sep 2025
15 Sep 2025
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
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2 Sep 2025
2 Sep 2025
I hope @iamals takes stock after 5 years of ACT4ALS or renewal in 2027 (?) to see how many EAP drugs were approved. My educated guess. Zero. ALS gets $200My in research. Pittance. ALZ gets ~3.5By! 16x more! ACT is what pals “want” but isn’t what ALS “needs”. It needs research $
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ScienceMatters retweeted
2 Sep 2025
I hope @iamals takes stock after 5 years of ACT4ALS or renewal in 2027 (?) to see how many EAP drugs were approved. My educated guess. Zero. ALS gets $200My in research. Pittance. ALZ gets ~3.5By! 16x more! ACT is what pals “want” but isn’t what ALS “needs”. It needs research $
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31 Aug 2025
This. Is. Beautiful…. Pride ! @PrabhdeepReform bless you! UK is a beautiful country.
29 Aug 2025
🇬🇧 Our flag is our pride.
I had the privilege of serving this great nation in the British Army. On Civvy Street, I continued my service by standing up for our communities—fighting against draconian policies like the ULEZ expansion, Food Poverty, Cost of living Crisis, Net Zero Fantasy. 👉fight2survive.org
No lefty, so called liberal, or anyone else needs to tell me why I hoist this flag!!!
I earned it. I served it. I stand proud with it and I’ll always defend it.
#BritishArmy #ProudBrit #UnionJack
@TiceRichard @Nigel_Farage @Towler @reformparty_uk
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31 Aug 2025
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24 Aug 2025
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13 Aug 2025
I’m very selective to who I give kudos to in #ALs #MND world. But kudos! Love Dr Rothstein btw. Kudos bcuz for decades most in ALS “community” keep repeating same old “what” BUT NEVER the “Why”. 🙏
13 Aug 2025
Announcing Champion Insights: a remote study on why elite athletes and military face higher ALS rates. At home steps and one blood draw. Data flows to Neuromine to speed discovery. Learn more 👉 answerals.org/2025/08/13/uni…
#ALS #AnswerALS #ALSTDI #AugiesQuest #OpenScience #EndALS
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9 Aug 2025
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29 Jul 2025
What else are they gonna say they need to be funded they need money and they can’t go around being doing gloom but the reality is this type of talk was heard. 10 years ago 15 years ago some 20 years ago and what counts are #als results not process. Enuf lipstick on a pig
27 Jul 2025
We asked #ALS researchers how they're feeling about the future of #ALSResearch. The overwhelming answer: optimism and excitement about progress with real-world impact. The Annual Meeting Impact Report drops tomorrow. 📩 Sign up now to get it first: bit.ly/3GGRGTT
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