@SickleCellMN profile picture
SickleCellMN @SickleCellMN

Improving quality of life for individuals and communities affected by sickle cell disease. *We do not monitor this inbox.

Joined September 2014
  • Tweets 9,088
  • Following 2,291
  • Followers 1,964
1,321 Photos and videos
🩸 Behind every blood donation is a family like this. For many living with #SickleCellDisease, every #transfusion represents hope and more family moments. To the donors who help make those moments possible: thank you. ❀️ #DonateBlood #SickleCellMN
1
13
✨ Join us for a #ChildrensMN #SickleCell #FamilyFunDay πŸ¦• at the #ScienceMuseum of MN! 🎁 REGISTER & CHECK-IN to receive a πŸ’³ gift card! ⚠️ Must be an active SCD patient/family at #ChildrensMN πŸ”— loom.ly/wkdDwhY πŸ’™ #SickleCellMN #ScienceIsCool
1
67
UNITED BY BLOOD, CONNECTED BY PURPOSE Worldwide #warriors & #advocates rise w/one voice on #WorldSickleCellDay 2025❀️🌏 πŸŽ‰ Register for this FREE global event on #June19 and meet #sicklecell #warriors from around the world! πŸ”— tinyurl.com/register2025wscd #GASCDO #SickleCellMN
50
πŸ† Today, @RaeBlaylark, Founder & Executive Director at @sicklecellmn, received the #DrCharlesDrew Achievement Award πŸ‘πŸΎ πŸŽ‰ Join us in congratulating Rae on 20 years of #bloodbanking advocacy! #advocacy#education#partnership#SickleCellMN#BloodDonorsMatter#DonorDiversity
0:47
1
1
67
Sickle cell disease: time to act on the most neglected global health problem - The Lancet Haematology thelancet.com/journals/lanha…
46
We have 3 new followers from Kenya πŸ‡°πŸ‡ͺ, and more last week. See fedica.com/!SickleCellMN
User report

ALT User report
1
53
We're a small #communitybased #patientadvocacy org ❀️ We depend on YOU our family friends neighbors & co- workers, to help us πŸ™πŸΎ #GTMD is a perfect opportunity to help us fulfill our mission 🀲🏾 Give today and support tomorrow's future! #SickleCellMN πŸ’° givemn.org/organization/Sick…
43
We're a small #communitybased #patientadvocacy org ❀️ We depend on YOU our family friends neighbors & co- workers, to help us πŸ™πŸΎ #GTMD is a perfect opportunity to help us fulfill our mission 🀲🏾 Give today and support tomorrow's future! #SickleCellMN πŸ’° givemn.org/organization/Sick…
42
Join #DrRashidaDavis for OUR FINAL 2024 Smart Wellness Workshop! βœ… November 13 πŸ“† 6 PM CST, via Zoom ✨ πŸ”— bit.ly/smartwellness 🌿 #SmartWellness #MentalHealthAwareness #Wellbeing #Resilience #SickleCell #WellnessWorkshop #smartwellness #sicklecellmn #healtohear
1
1
52
Sharing Our Voice: Representing United States in the Middle East πŸ‡΄πŸ‡² SickleCellMN is honored to be in Muscat, Oman sharing our voice and representing America from a global stage in the Middle East.
0:45
1
3
72
Sharing Our Voice: America's Representation in the Middle East πŸ‡΄πŸ‡² We are honored to be in Muscat, Oman sharing our voice and representing America from a global stage in the Middle East.
44
Join #DrRashidaDavis for our FINAL #SmartWellnessWorkshop β˜‘οΈπŸ“† May 8 - Support Systems β˜‘οΈπŸ—“οΈ July 10 - Healthy Coping β˜‘οΈπŸ—“οΈ Sept 11 - Medical Gaslighting βœ…πŸ—“οΈ Nov 13 - Emotional Intelligence Register: πŸ”— bit.ly/smartwellness #sicklecell #sicklecellmn #healtohear
1:12
32
We have 10 new followers from India, Kenya, and more last week. See fedica.com/!SickleCellMN
User report

ALT User report
2
43
Interview study about your experience of fatigue in #sicklecelldisease #pyruvatekinasedeficiency #alphaorbetathalassemia For more info please contact the Clarivate study team at fatigue@clarivate.com #sicklecell #pkd #thalassemia #agiospharmaceuticals @agiospharma @agiosmedical
2
1
137
πŸ“’ Calling All Immigrant Professionals! Looking to take your career to the next level? Join #AfricanBridgeNetwork for a Fireside Chat πŸ—“οΈ Date: Mon Oct 28, 2024 πŸ•’ Time: 4:00 PM - 5:30 PM CDT πŸ”— Register: eventbrite.com/o/african-bri… #ImmigrantProfessionals#CareerGrowth#Networking
35
We're just going to leave this right here... πŸ˜†πŸ˜œ πŸ“Ή: @healthwithscotty (IG)
0:08
1
47
❀️ Today is #WorldMentalHealthDay and a reminder that #mentalhealth is just as important as #physicalhealth. πŸ—£ Let’s advocate for #holisticcare that addresses better physical, mental, and emotional health for our #SickleCellWarriors. #BreakTheStigma #SickleCellAwareness
1
1
2
92
SickleCellMN retweeted
ASH
@ASH_hematology
7 Oct 2024
Food Deserts, Limited Access to Transportation Linked to More Complications Among Preschool Children with Sickle Cell Disease. Read more about this new study, published today in @BloodAdvances: ow.ly/VkCC50TFJy8 #SickleCell #SCD #SDOH
1
2
10
1,750
SickleCellMN retweeted
SCDAA@SCDAAorg
8 Oct 2024
Join us at SCDAA’s 52nd Annual National Convention from Oct. 23-26 for an essential conversation on LGBTQIA issues. The Lonzie Lee Patient Advocacy Symposium will bring together advocates from across the country to share their unique sickle cell stories!
1
1
2
73
SickleCellMN retweeted
Sickle Cell Consortium@SCCConsortium
8 Oct 2024
Join the Children’s National Sickle Cell Family Education Symposium β€” "Sickle Cell Unlocked: Conquer College & Career with Confidence"! Oct 12, 2024 7-10 AM PST / 10 AM-1 PM EST Virtual & In-Person For young adults with SCD navigating college & careers. Register Now!
5
7
343
Load more