The FNIH values our partnerships with amazing people like Parkinson’s advocate Dr. @SoaniaMathur, who shares her insights and lived experiences to support our Accelerating Medicines Partnership® for Parkinson’s Disease and Related Disorders. brainandlife.org/articles/mo… @PdAvengers

Here's a free ebook on 'What Parkinson's Feels Like'. It's a collaboration with Parkinson's Europe & many people from around globe including: @plantsbloke @DaveClarkTV @RichelleFlan @SoaniaMathur @Florenc44206536 @Giffordtweet and many others parkinsonseurope.org/2024/11…

“Parkinson's like an unwelcome guest who's still in my house when I return & have to look after them. They try holding me back as I do my best to face the challenges that are inevitable.” Illustration inspired by : Richelle Flanagan, diagnosed @ 46. Soania Mathur MD, DX @ 28

“... By working together, we aim to leverage genetic insights and biomarker-driven development to accelerate the availability of effective treatments for people living with Parkinson’s disease.” Carole Ho, MD Chief Medical Officer of Denali Therapeutics -- Parkinson’s disease affects nearly one million people in the U.S. and 8.5 million worldwide. Early and accurate diagnosis is challenging due to similarities with other neurological disorders, and available treatments can only manage symptoms, not offer a cure. Today the FNIH is proud to announce the launch of the Accelerating Medicines Partnership® in Parkinson’s Disease and Related Disorders (AMP® PDRD). This public-private partnership aims to identify and validate biomarkers that will differentiate Parkinson’s disease from related disorders, leading to earlier diagnoses, more timely interventions, and better treatment options. Read the full press release here: fnih.org/press-release/the-f… @NIH @NIH_NINDS @NIHAging @US_FDA @ASAP_Research @C2NDiagnostics @CurePSP @GSK @GSKUS @sanofi @SanofiUS @MichaelJFoxOrg #ParkinsonsDisease #Parkinsons #NeurologicalDisorders #FNIH #BridgestoBreakthroughs #AcceleratingMedicinesPartnership #PublicPrivatePartnership #AMP

Privileged to have been part of a panel at the @WHO launch of the toolkit for their Intersectional Global Action Plan on epilepsy and other #neurological disorders. Great resource for policy makers and others! who.int/news/item/08-07-2024…

#Parkinsons is a 24 hour disease, there is no real reprieve from the symptoms. Managing those nocturnal and sleep symptoms is impt for quality of life. Thought I would share my personal experience unshakeablemd.com/post/can-t…

This is a very special and beautiful moment #Parkinson

“You know, as a mom, it is so hard, you know, not being able to do all the things that I want to be able to do for my children.” A heart felt discussion between @SoaniaMathur, @omotolathomas8, @katshill1966 and myself on living with PD this #MothersDay michaeljfox.org/podcast/real…

We are thrilled to share this news! For Love and Life: No Ordinary Campaign, the inspiring documentary about the founding of I AM ALS, will begin streaming on @primevideo on May 28th!! #ForLoveAndLife @primemovies @amazonmgmstudios

Loved speaking with other women with #parkinsons as we navigate life and advocate for advances to meet the unmet needs of women in our #PD community michaeljfox.org/podcast/real… & collaborating with pioneering med professionals like @DrISubramanian movementdisorders.onlinelibr…

What an amazing conference! Together, we can achieve so much progress. Thank you, Soania, for your wisdom and support. I’m so optimistic that our children will not live with Parkinson’s. ⁦@SoaniaMathur⁩

Had the privilege & pleasure of speaking with Dr. Brian Goldman and Jennifer Warren for the podcast White Coat Black Art about living with the impact of #YOPD #Parkinsons @cbcwhitecoat @NightShiftMD cbc.ca/listen/live-radio/1-7…

Privileged to have the opportunity to speak with @MichaelOkun about #Parkinsons treatments coming down the pipeline. He has the amazing ability to translate complex scientific concepts to easily understandable information. Such a pleasure to get a yearly update!

April is #ParkinsonAwarenessMonth Spent day @ParkinsonCanada w/ #researchers #trainees #PeopleLivingWithParkinsons to help increase #PatientEngagement in #Research @Neuronologist1 Dr. @SoaniaMathur Dr. Kaylena Ehgoetz Martens Dr. @jude_bek @Dr_KarenLee #Parkinson #Parkinsons

Very interesting and productive workshop today @ParkinsonCanada discussing patient engagement with people with Parkinsons, caregivers, and researchers. Lots of good ideas to take forward to help improve the impact of #Parkinsons research @SoaniaMathur @Neuronologist1 @RonBeleno

PD Avengers continue to call for change for #Parkinsons - @CureParkinsonsT are proud supporters - thank you @Giffordtweet @SoaniaMathur @TimHagueSr brilliant leadership as ever.

Our advocate-led paper was just published in the Journal of Parkinson's Disease: Perspectives of People At-Risk on Parkinson's Prevention Research. @JohnPomaRVA @SoaniaMathur @GraceCrottyMD @virginia_gao @sacastillot @KB_Schroeder content.iospress.com/article…

SO looking forward to this webinar & panel discussion with leading experts in PD research - Prof Caroline Tanner; Prof Elena Moro and Prof Aideen Sullivan with @SoaniaMathur as moderator, and myself & Annelien Oosterbaan. Register cureparkinsons.org.uk/2024/0…

Check out the swag shop with Steven Williams and Paqui Ruiz designs from the Spark Art Contest! Sponsored by @AbbottNews worldparkinsonsday.com/swag/ Help Support Spark the Night 2024 on April 11th and get the #sparkart Merch!

Partner in Parkinson's Bernard Coley speaks frankly about the past transgressions against the black community and others which has caused mistrust in the medical community. #BlackHistoryMonth youtube.com/watch?v=GEpGxARd…