Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green

Joined December 2010
735 Photos and videos
Kerry Newnham retweeted
Individual lords and ladies with ME/CFS sympathies can be contacted by patients in advance of this
From Action for ME – House of Lords debate on severe ME actionforme.org.uk/house-of-… “A House of Lords debate on the treatment of, and research into, severe myalgic encephalomyelitis will take place on Thursday 18 June 2026.” oneagleswings.me.uk #pwME #MECFS
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Kerry Newnham retweeted
shades of sea
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RT @HazelOEW: From Action for ME – House of Lords debate on severe ME actionforme.org.uk/house-of-… “A House of Lords debate on the treatment o…
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Kerry Newnham retweeted
The dandelion is said to echo all three: sun in its bloom, moon in its seed head, stars in its drifting seeds. A small flower holding a whole sky. ✨🌼🌙⭐️
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Kerry Newnham retweeted
This needs to be done with ME aka #MECFS too. The CFS part should have been officially dumped at least 11 years ago. After the IOM, now @theNASEM published the report Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness
2015 nationalacademies.org/public…
A disease that affects 1 in 8 women was named after the wrong organ for 90 years. Polycystic ovary syndrome put the ovaries in the title. The bigger story is hormonal and metabolic: insulin resistance, rising androgens, weight gain, a steep climb in type 2 diabetes risk. The cysts were never the main event. That naming error has a cost you can measure in referrals. Call it ovarian and she lands in a fertility clinic first, while the blood sugar and insulin side gets looked at late. May 2026: 56 organisations signed a global Lancet consensus and renamed it Polyendocrine Metabolic Ovarian Syndrome. Metabolic is finally in the name. In medicine, the name is the first diagnosis. This one was wrong for three generations.
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Kerry Newnham retweeted
Early June and one of the best laburnum shows around in the gardens of Seaton Delaval Hall in Northumberland. Grade I listed Seaton Delaval Hall, near Seaton Sluice, is now owned by the National Trust. #engalnd #northumberland #laburnum #june #nationaltrust #photography
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Kerry Newnham retweeted
"The Mail says military leaders are warning Britain is being left defenceless & Starmer & Reeves are putting welfare & net zero above defence priorities" The UK is already the 5th highest military spender in the world (only the US, China, Russia and Germany spend more than us).
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Kerry Newnham retweeted
UK #mecfs petition for better research & care Imo UK research strategy = mainly genetics but falls short on patient calls in Delivery plan consultation re. scope, speed, ring-fenced funding, funding parity, quick wins, & breadth - severe ME, treatments change.org/p/invest-in-me-cf…
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“An experimental treatment that resets a malfunctioning immune system has put the disease lupus into remission in early UK trials. Experts say the approach could potentially treat similar disorders including multiple sclerosis and rheumatoid arthritis.”
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Kerry Newnham retweeted
The Natural History GCSE is Happening!! Additional footafe sourced from Open Planet
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"Sometimes the reason a field is underfunded is not that the question is unimportant. It is that the answer is inconvenient."
A scientist spent 30 years studying an organ every textbook said was irrelevant. In 2026, two papers in Nature proved she had been right all along. The papers were not written by her. Her name is Noel Rose Mackay. She is a thymic biologist who has studied the thymus since the 1990s, at a time when the field was considered a professional dead end. The thymus is a small immune organ behind the breastbone. By the 1980s, medical consensus had settled: the thymus trains immune cells in childhood, shrinks at puberty, and stops functioning meaningfully in adults. Researching adult thymic function was considered a waste of time and grant funding. Mackay and a small number of colleagues disagreed. They published research throughout the 1990s and 2000s arguing the thymus remained active in adults and that its ongoing T cell production mattered for immune health. The papers were published in smaller journals, cited rarely, and largely ignored by mainstream medicine. For 30 years, clinical practice did not change. Radiologists reading millions of CT scans did not measure thymic health. Oncologists designing immunotherapy did not account for it. No clinical guideline mentioned it. In March 2026, researchers at Mass General Brigham used artificial intelligence to analyse CT scans from over 25,000 adults. The AI found exactly what Mackay had argued for three decades. Adults with healthier thymuses lived longer. 50% lower risk of death from any cause. 63% lower risk of cardiovascular death. 36% lower risk of lung cancer. In cancer patients receiving immunotherapy, stronger thymic health predicted a 37% lower risk of cancer progression and a 44% lower risk of death. Two papers. Published simultaneously in Nature. Covered by Harvard Medical School, Mass General Brigham, and dozens of international outlets. The researchers who wrote them work in artificial intelligence and cancer imaging. They were not thymic biologists. They were not looking for the thymus. The AI found it for them. The science that spent 30 years being ignored was correct. It took a machine looking at 25,000 scans without any prior assumptions to confirm what a small group of scientists had been saying for three decades. Sometimes the reason a field is underfunded is not that the question is unimportant. It is that the answer is inconvenient.
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Kerry Newnham retweeted
NEW: Andy Burnham has hinted at a new multibillion-pound spending commitment if he becomes PM, saying that more than 3.5mn women “deserve” compensation over what he regards as a pension scandal Earlier I attended a Makerfield hustings event hosted by @MENnewsdesk, in which Burnham said: “I stick by campaigners that I support. I stuck by the Hillsborough families, I’ll stick by the Waspi women because they deserve some recompense for the unfairness.” Stressing he wouldn’t ditch his longterm support for Waspi women, he said he felt “uncomfortable” that some politicians threw their support behind a cause but then went into government and “didn’t do anything” ft.com/content/1021ae5f-aab3…
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Of relevance to #mecfs
Exclusive: NHS plans to introduce generalist hospital doctor roles into the health service by the end of the decade, according to a leak of the upcoming 10-Year Workforce Plan. By @HMAnderson39.
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Kerry Newnham retweeted
Britain isn’t a high-tax country and middle-earners should pay more. New post on the alternative to cutting infrastructure spending yet again. arguably.uk/p/the-tax-truth-…
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Kerry Newnham retweeted
Researchers including Dr Bo Bertilson, funded by ME Research UK alongside the OMF and the Amar Foundation, have identified that protein signatures in cerebrospinal fluid differ between groups of people with ME/CFS. Read more about the study here: bit.ly/4vxGNYS
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This video offers an impressive visual experience for the timeless classical masterpiece "Canon in D", composed by the genius Johann Pachelbel. The music invites us to experience absolute relaxation as we follow each note dancing in rhythmic motion, helping to dissolve stress and restore inner peace.
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