Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement. Opinions my own.
Joined September 2011
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688 Photos and videos
Pinned Tweet
22 Jan 2025
📢I wrote a letter to folks who aren't convinced about #PatientEngagement in research to challenge some of their thoughts. I hope it gets people thinking bmj.com/content/388/bmj.r133 - 🙏 @bmj_latest for publishing. #PPI #ConsumerInvolvement
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🌎How are research teams engaging patients as partners in different parts of the world?
☑️Check out case studies from Brazil and Australia in this session recording from the #PxP25conference in September: youtube.com/watch?v=LBW8AnKt…
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🚂How do you get research to the people who can learn or use something from it?
Get some ideas here: youtube.com/watch?v=gwdedwRm…
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3/ Check out our latest newsletter here for an update on the PxP funding model: mailchi.mp/pxphub/pxp-next-s…
#PPI #ConsumerInvolvement #PatientEngagement
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1/ We’re undertaking an informal scan of the current status of patient engagement across the globe. This will help us shape the next phase of PxP and determine new goals.
💭Thoughts can be shared directly with our team by emailing: contact@pxphub.org
ALT How has patient engagement changed in your region over the last 3-12 months?
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Dr. Dawn Richards, PhD retweeted
In case you missed it, our #Canadian #Conference videos are up!
We could use some help getting them shared around too. We’re still exhausted and recovering from the conference itself. So any help would be massively appreciated. 💙
Hey everyone. Our #conference videos are up on YouTube. 💙
Please #subscribe to our channel to help us drive traffic and engagement and watch and like our #ICanCME2025 videos.
youtube.com/@icancmeresearch…
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Dr. Dawn Richards, PhD retweeted
A couple of Canadian journalists (myself included) have started a fundraiser for local Tumbler Ridge journalist Trent Ernst. Since the shooting, he's stopped writing. We're hoping to get him some short-term support for these hard times.
Donate here: gofundme.com/f/support-trent…
Heartbreaking to read these reflections from Tumbler Ridge local newsman Trent Ernst. All strength to him as the town he reports in & on daily enters the global spotlight. You can support his hyperlocal journalism (which is so vital and so lacking) here: tumblerridgelines.com/suppor…
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Dr. Dawn Richards, PhD retweeted
Feb 2
My Scarborough people
👀 on the lookout for this kid
His name is Joshua. Last seen yesterday at Midland and Sheppard.
There has been a sharp increase in the number of Black children going missing in Toronto.
Let’s get them home.
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How are patients are changing the research system from within?
youtube.com/watch?v=Wf5vJ9sd…
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Learn more about evidence-based advocacy and using justice-informed, trauma-informed approaches to patient engagement in health research.
🎥Check out this webinar recording from the #PxP25conference: youtube.com/watch?v=-xoHZmA8…
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💭How do you navigate owning your lived experience as one aspect of your identity?
youtube.com/watch?v=F39Ulqbe…
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At #PxP25, we hosted three unique sessions that weren’t recorded for our YouTube channel to create a safe space for open dialogue. Check out the anonymized illustrations from these sessions here, along with other artwork from this year’s conference:
pxphub.org/pxp-2025-artworks…
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📚Read an anonymised summary of attendee discussions here: pxphub.org/journeys-of-impac…
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Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in a way they had never imagined.
🎥Session about different pathways of patient partners: youtu.be/2Rht0OAVSR8
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How can you lay the groundwork for successful patient partnership?
#PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role.
🎥 Watch back: youtube.com/watch?v=EnJ6y6c0…
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17 Nov 2025
📣 Interested in #PPIE, #PPI, #PatientEngagement, #CoProduction in research (or whatever your term is for it) and the concept of power dynamics? Join me and Therese Lane on Nov 25 at 12 pm eastern for a conversation on this- tinyurl.com/4brnknxj - everyone is welcome! 1/2
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17 Nov 2025
We'll be talking about the 4 power themes in this paper researchinvolvement.biomedce…, and sharing some anonymous real examples - including how more equitably share power on research teams that include patient/public members. #PPIE #PPI #PatientEngagement #CoProduction 2/2
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Dr. Dawn Richards, PhD retweeted
15 Nov 2025
Pain Toolkit In Conversation 14th November 2025 youtu.be/fDCjxe8hZKs?si=HeVW… via @YouTube
Pain Toolkit In Conversation 14th November 2025
With ...
Susan Schellinck, OT
Mary Wing
David Flusk Dr.
Mark Kargela PT
Facilitators
Keith Meldrum
Pete Moore
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15 Nov 2025
RT @SFdirewolf:
ALT Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.
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