Musician, Artist, Chairman of FND Action
Joined December 2021
- Tweets 6,548
- Following 1,972
- Followers 2,702
- Likes 11,996
306 Photos and videos
Pinned Tweet
20 Dec 2021
#FND left me housebound for many years, unable to walk or use my arms. The turning point came when I met Prof Mark Edwards & finally received diagnosis & treatment. It’s still a battle but I am starting to play again. I hope my story shows with the right treatment, there is hope.
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Tom Plender retweeted
Jun 6
I talk a lot on here about 'brain retraining' and there is confusion about what that actually IS. It isn't saying your symptoms are 'all in your head.'
Mine weren't! And I'm so well now. This book breaks down how that's been possible.
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No-one hates Functional Neurological Disorder more than the people who have to endure it. Most patients aren’t online arguing ideology. They are trying to survive disabling symptoms, stigma, uncertainty and fractured healthcare whilst being dragged into wider medical battles #FND
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Tom Plender retweeted
May 17
A really impressive collection of neuroimaging and neurophysiological research in FND. Congratulations to the editors and all authors.
Sharing NeuroImage: Clinical (@eic_nic) issue on #FND. Collection includes 12 articles [11 original research papers, 1 review]. Authors from Italy, Germany, Czech Republic, Norway, Canada, Spain, Switzerland, Australia, and the US represented. Editorial by #SelmaAybek, #KasiaKozlowska & I below. Appreciative of the authors contributions! Brain imaging research is thriving in #FND.
sciencedirect.com/science/ar…
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When Functional Neurological Disorder is reduced to belief, suggestibility or “faith-like” treatment, this is the reality being erased. I’ve lived it, doubted it, researched it, and spent years listening to thousands living with it. Don’t reduce our lives to your theory. #FND
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A reminder for anyone who doubts Functional Neurological Disorder: People with #FND live with real symptoms, fear, uncertainty & real impact on their lives. Denying their dx, or using it as a weapon in arguments, only adds to stigma, isolation & harm. They are people, not labels.
It’s a good job we have “FND experts” trying to help people suffering isn’t it. Perhaps one day I’ll be able to convince you how harmful it is to weaponise with this diagnosis.
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May 10
Great video explaining the predictive brain model and #FND
youtube.com/watch?v=0Zjs-7lf…
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Tom Plender retweeted
May 8
I’m with @carlorovelli here. I don’t see a reason to have a ‘hard problem of consciousness’
Lessons here for FND
May 7
“A fierce debate is raging around the slippery notion of consciousness. It retraces a trotted pattern of cultural resistance: We humans are often scared by anything that may disturb our image of ourselves.”
— @carlorovelli
noemamag.com/there-is-no-har…
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Tom Plender retweeted
Apr 29
Much of the medical profession still operates like a closed mediaeval guild. Patient perspective is essential, greater doctor/patient collaboration is the logical way forward - but sadly the 'doctor knows best' patriarchal model is still deeply embedded in medical culture
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Tom Plender retweeted
Apr 27
Patients provide the material for observation and then have to pay in order to access that completed scientific observation which is purportedly produced for patient benefit! Just a sample of the disconnect…
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Tom Plender retweeted
🧵 Excellent multidisciplinary #mindbody event @RoySocMed yesterday. Great updates #FND #IBS #Pain thanks to @jonstoneneuro @DipeshVasant @RonaMossMorris @Tim_R_Nicholson @WilliamMcGeown @Brain_Tinkerer & many more!
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It’s bad enough a doctor describes throwing water on patients and dismisses seizures as not real, but engaging in a mocking conversation about it is not acceptable. This normalises harm and undermines patient dignity and trust. Patients with #FND deserve better @RCHTWeCare
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Tom Plender retweeted
Discussion: "What is it like to be a self model?"
Interlocutor: Susan Blackmore
Host: @mathgrayuk
youtube.com/watch?v=rVVy_f6z…
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Apr 15
A must attend event @RoySocMed if you are a medical professional interested innovative treatment approaches to #FND - such as clinical hypnotherapy, brain/computer interface rehab
@EdinPublishing @jonstoneneuro @Katlab_UCL @wendyburn
Mind-body disorders: Advances in Treatment & Rehabilitation @RoySocMed 27th April. Free for members #FND #IBS #Pain Multidisciplinary meeting #DGBI #gastroenterology #neurology #neuropsychiatry #MedEd programme 👍Important common field of medicine rsm.ac.uk/events/hypnosis-an…
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Tom Plender retweeted
Mind-body disorders -cause immense suffering, disablement & extremely common….what can #NHS do to help? Event may interest @FabNHSStuff @FNDSociety @FNDHopeUK @FNDAction @KH118118 @TomPlender @NielsDetert @GNielsen_Physio @Brain_Tinkerer @BibaStanton @MallamElizabeth @IoPPN_NREG
Mind-body disorders: Advances in Treatment & Rehabilitation @RoySocMed 27th April. Free for members #FND #IBS #Pain Multidisciplinary meeting #DGBI #gastroenterology #neurology #neuropsychiatry #MedEd programme 👍Important common field of medicine rsm.ac.uk/events/hypnosis-an…
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For accuracy, “functional somatic disorder” (FSD) isn’t a recognised consensus clinical category. Labelling #MECFS or #LongCovid this way isn’t evidence-based and risks misrepresenting complex conditions.
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Apr 1
Laura Graham who is a masters researcher at York St John University UK is studying FND. She also has FND herself. She’s doing an international anonymous online survey if you would like to take part here's a link - yorksj.eu.qualtrics.com/jfe/…
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Today matters 💜 FND Awareness Day UK is here. Functional Neurological Disorder affects thousands across the UK, yet many have still not heard of it, or understanding isn't current. Follow FND Action on FB and IG for shared stories. #fndawarenessdayuk #fndawareness #voices4fnd
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