We're In This Together! @RemissionBiome and @RenegadeRes are on a mission to help people manage and recover from ME/CFS and Long COVID. Read more... remissionbiome.org #chronicillness #postinfectious #longcovid #MECFS

10 million Americans undiagnosed with disease that causes fatigue, brain fog and headaches: report trib.al/Zh3xIEs

Food as medicine.

The recording of today's roundtable is now posted to our YT channel youtu.be/cyQqOygkSMo

@WalmartCanada missed this boat. Did you receive an email about the new #Walmart membership that includes Crave TV w/ads? Well don't get your hopes up, unless you're a Bell Canada customer No mention of Bell until you try to activate the new feature. False advertising Walmart!

Did You Know? Interesting. Yawning is one of those things your body does somewhat involuntarily. 🥱 Recent research suggests that yawning plays a key role in clearing metabolic waste and moving fluids in the brain. Waste Clearance: MRI scans reveal that a yawn causes cerebrospinal fluid (CSF)—the fluid that protects and cleans the central nervous system—to move away from the brain, potentially flushing out metabolic waste Temperature Regulation: Yawning is thought to act as a built-in air conditioner. Deep inhalations increase blood flow and draw in excess air, which helps cool the brain and optimize cognitive performance. The old idea that yawning pulls in extra oxygen for your brain has largely been debunked. Why yawning is contagious, however, remains poorly understood.

"She did not stand alone, but what stood behind her, the most potent moral force in her life, was the love of her father." -Harper Lee Love you and miss you Dad 🤍 Thinking of you on your birthday.

💯! Some ineloquent quick first thoughts that popped up to expand on after my kid's bedtime: Listen to hyper responder anecdotes, hypothesize mechanisms that could explain their response, design studies to be able to test those hypotheses. Follow-on research of the outliers in trials. Pool N=1 trials to spot patterns. Have the same participants in multiple trials (or pooled N=1s) try many different interventions and see how they respond to each of them and then again look for patterns. Collect as much data (biomarkers, wearables, detailed subjective measures) as possible to be able to subgroup at the end. Change FDA approval process to encourage subgroup analysis rather than just looking for those averages. All of our @RenegadeRes team members likely have a lot to say. :) Tagging a few @IsabelRamirezRD @KatBoniface @doc4care @ThosVarley P.s. here's an article about one of our projects (@remissionbiome): sciencenews.org/article/pati…

Poster from Dr. Derya showing how to identify mecfs vs general fatigue from other causes Generated by one of the newest models. Straightforward to read and understand. 🔔 good tool for sharing with family and / or practitioners who want to know more. @RenegadeRes

6 Butter Brands to Skip and 4 that are Actually Real #Butter in Canada youtube.com/watch?v=HDIG66uN… #carnivore #keto

It’s funny how chronic illness works. One day you’re googling “why do I feel dizzy?” Next thing you know, you can hold full conversations about medical topics you never thought you’d understand.

1/2 Syringa vulgaris (aka Common lilac), happy to catch a huge bush in bloom, out in the sun, making the colourful backdrop too. Extended landscape crop, below, for you computer users... #MEcfsEgress #Bloomscrolling DailyNaturePics 292

I thought of this because I'm having fun experimenting with @BrainstemMd's new powerful Vagis HRV app, 14 years later, along with blood flow to the brain from @wearlumia. 🧵with more data from my stand testing. I'm going to be doing an 11 part N=1 experiment to try to understand more of the physiology behind my orthostatic intolerance. Disclaimer: @ImmunoFever pointed out that stand testing (NASA lean in particular...this is just supine to standing for 2 minutes) made blood flow to the brain drop like 30-40% in some of her MAESTRO participants. They have nurses supervising in case someone doesn't stay upright.

Eggs for Brain Health! 🍳 New data shows a link between eating eggs and a 47% reduced risk of Alzheimer’s disease. 90% of Americans are not getting enough of the nutrient choline. Choline in eggs (one of the highest sources of choline) is a neurotransmitter essential for memory, mood, and muscle control. Therefore, ensuring adequate choline intake can support cognitive functions and may help in preventing certain neurological disorders along with optimizing health. In this new study, the researchers attribute the potential brain benefits of eggs to the choline in egg yolks. It's been known that the nutrient choline found in egg yolks, is associated with a slower rate of memory decline. This new study is even further confirmation. “Two eggs per day is the goal for meeting recommendations for choline and other key nutrients for brain health,” study investigator Taylor Wallace, PhD, CEO at Think Healthy Group and an adjunct nutrition professor at Tufts University. This level has been shown to be unarguably safe in clinical studies, even in those with diabetes and those with or at-risk for cardiometabolic disease.

You can love someone And not agree with them & You can love someone And not even know them It’s about our shared humanity. The things we have common… Love. Sadness. Heartache. Joy. Love is the part that connects us together. Love people today. Just because. Because we all benefit.

I’ve been playing with @wearlumia blood flow to the brain and @BrainstemMd’s Vagis app tonight doing stand tests. Summary so far: my autonomic nervous system needs to be fired … or at least stimulated 😂

#MECFS patients and caregivers, please fill out this survey to help shape decentralized clinical trials! This survey asks people living with symptoms of ME/CFS (regardless of trigger) — and caregivers and loved ones who support them — to help shape CTN Lite directly: which symptoms and biological systems to prioritize, which treatment categories matter most, and how to measure what truly improves function and quality of life. @OpenMedF docs.google.com/forms/d/e/1F…

Today, we mark #WorldKidneyDay! This year is extra special as we celebrate the 20th anniversary of this global movement 🎉 The 2026 campaign #OurKidneysOurPlanet continues to focus on the prevention and early detection of kidney disease, while bringing planetary health into the conversation. 🎂 Share your WKD anniversary wishes with us: worldkidneyday.org/world-kid… @ISNkidneycare @@ifkf_wka #WorldKidneyDay #OurKidneysOurPlanet #KidneyHealthForAll #WorldKidneyDay20Years

Long COVID and vaccine injury are diseases of autonomic dysfunction superimposed upon a likely backdrop of underlying hEDS or some spectrum of connective tissue laxity. What separates the affected from the unaffected? What separates the mild from the severe? 🤔

"My brain hasn't felt like this in a very long time and it's incredible and I don't want it to go away." 😭 This is the response that many people with Craniocervical Instability (CCI) have when their head is lifted with invasive cervical traction (ICT). Many then have the same experience with cervical fusion surgery and many who meet the criteria for ME/CFS go into total remission. There are hardly any surgeons who have the experience to do this surgery, though, and surgery doesn't work for everyone. It makes some worse. It's risky. I don't think that CCI and/or mechanical issues are causing all cases of ME/CFS. It needs to be studied more! We need to figure out how to prevent this altogether, how to stop it from getting worse, how to treat it with non-surgical options. I think that instant improvement of symptoms in ICT is also a clue about pathophysiology of ME/CFS. I hope that our paper will move the needle forward. x.com/RenegadeRes/status/199…