The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK. Let's make sense of MS.
Joined June 2011
- Tweets 1,843
- Following 1,729
- Followers 2,129
- Likes 1,661
486 Photos and videos
Pinned Tweet
10 Jan 2024
We are currently taking a break from X, but you can find us on lots of other platforms!
We would love to connect with you on LinkedIn, Threads, YouTube, Instagram and Facebook 👋🫂
You can also sign up to our mailing list by contacting: contact@ukmsregister.org 📩
1
3
289
UKMSRegister retweeted
Great to see Rod from @UKMSRegister on this!
futuremedicine.com/doi/epdf/…
1
2
267
UKMSRegister retweeted
The UK Multiple Sclerosis (MS) Register helps research into this condition by gathering data to answer fundamental questions and giving researchers safe access to this information.
Find out more - popdatasci.swan.ac.uk/centre…
@SwanseaMedicine @SwanseaUni @UKMSRegister
@mssocietyuk
3
7
353
UKMSRegister retweeted
15 Mar 2024
It's nearly the end of Brain Awareness week! 🧠
Are you aware of Multiple Sclerosis (MS) and did you know about UK MS Register?
The MS Register is a ground breaking study designed to increase our understanding of living with MS in the UK.
Find out more: bhtresearchandinnovation.org…
2
4
428
UKMSRegister retweeted
📽️Watch MS Register analyst, Sarah Knowles discuss the findings and impact of her new paper on late onset MS, published in Annals of Neurology👉youtu.be/UwEfhkI2AAc?si=dCk9…
#Lovedataweek @UKMSRegister @SwanseaUni @SwanseaMedicine @mssocietyuk @mscymru
5
7
406
UKMSRegister retweeted
✍️@UKMSRegister blog - Late Onset MS
Newly published research by Sarah Knowles found that MS looks different when it develops in the later stages of life.
Read more about the findings of this study here👉popdatasci.swan.ac.uk/uk-ms-…
@mssocietyuk #msresearch #lateonsetMS
4
8
369
UKMSRegister retweeted
15 Dec 2023
The @UKMSRegister is definitely a useful tool if you have MS.
1
2
6
886
UKMSRegister retweeted
Thank you very much to the @UKMSRegister Team for the Christmas card and chocolates. We hope all of the team have a lovely Christmas and New year, and we look forward to continuing to work with you throughout 2024.
1
1
4
250
UKMSRegister retweeted
🎉@UKMSRegister Highlight from the Year!🎉
The Register facilitates recruitment for the 'Octopus' trial,revolutionising progressive MS testing - this is a pivotal moment in global #MS research and could
speed up life-changing results.
mssociety.org.uk/research/ex…
#PDShighlights2023
3
8
341
UKMSRegister retweeted
8 Dec 2023
A lot of questions that require answers but how to #prioritise & rank your #MS #registry questions🤯
💡Everyone wants to ask ALL questions but it's important to assess questions in the core data set
➡️ Are they
🔴 impossible to answer
🟢 easy to answer
🟡 complex, but possible
3
5
402
UKMSRegister retweeted
📢Insights from the latest publication using data from the @UKMSRegister.
Comparing the pathology, clinical and demographic characteristics of younger and older‐onset #MS👉onlinelibrary.wiley.com/doi/… @UKMSRegister @mssocietyuk @SwanseaUni
1
6
303
UKMSRegister retweeted
8 Dec 2023
MSDA @msdataalliance and EMSP now leading on a lively workshop with MS societies from Western Europe on setting up #MS #registries to ensure updated and relevant #data is available for improved care and advocacy and informed #decisionmaking.
#DataSavesLives #MultipleSclerosis
4
7
476
UKMSRegister retweeted
🎉We're @QAPrizes winners!
🏆For our groundbreaking work with the @SAILDatabank!
🌍From vital COVID-19 research to global initiatives, SAIL's achievements offer crucial insights for informed decisions & positive societal outcomes bit.ly/47e782f @SwanseaUni
1
10
26
9,789
17 Nov 2023
Fantastic news! Population Data Science at Swansea University awarded Queen’s Anniversary Prize for world leading databank 🏆
@PopDataSci_SU @SAILDatabank @SwanseaUni popdatasci.swan.ac.uk/popula…
2
9
398
UKMSRegister retweeted
✨Spotlight on Population Data Science Summer Interns✨
To delve deeper into the interns’ motivations, acquired skills, and overall program experiences, we took a moment to catch up with each of them 👉popdatasci.swan.ac.uk/spotli…
@SwanseaUni @SwanseaMedicine @SAILDatabank
1
5
11
1,257
16 Nov 2023
RT @AshleyAkbari: Great to see the fantastic work from the @UKMSRegister @mssocietyuk @SwanseaUni at the @ADRUK2023 @adr_uk 🎉 t.co/…
2
UKMSRegister retweeted
🌟 Spotlight on Excellence 🌟
📽️Unveiling insights from the Summer Intern Showcase Award Winners!
Meet Deepak Pant, the winner of the Technical and Development! 🏆
@g5maniac @SAILDatabank @SwanseaUni @UKMSRegister
youtu.be/OfDpAmdWOcE?si=WtJR…
2
4
5
440
14 Nov 2023
Well done to our intern Deepak who is featured here discussing his internship 👏
It was great having Deepak working with us over the summer months. Before he finished he was able to share his work at the showcase event 👇
This year's summer intern showcase event saw our interns successfully present their summer projects to an audience of academics, government policy advisors, and members of the public.
Read more👉popdatasci.swan.ac.uk/intern…
📽️Watch the video👇
youtube.com/watch?v=heZrfTzO…
@SwanseaUni
2
2
636
UKMSRegister retweeted
This year's summer intern showcase event saw our interns successfully present their summer projects to an audience of academics, government policy advisors, and members of the public.
Read more👉popdatasci.swan.ac.uk/intern…
📽️Watch the video👇
youtube.com/watch?v=heZrfTzO…
@SwanseaUni
1
6
11
2,582
14 Nov 2023
New video podcast from @shiftms focusing on #MultipleSclerosis and women's health, including:
☑️Medical gaslighting
☑️Awkward conversations with HCPs
☑️A lack of research on women with #MS
☑️Changing HCPs
This is the 1st episode in a 6 part series ⏯️youtube.com/watch?v=skfc8gPs…
1
2
314