Bioethicist working on ethical, legal, social issues (ELSI) of genomics, at Harvard's E J Safra Center for Ethics

Joined December 2013
12 Photos and videos
Genomic newborn sequencing holds the promise of benefiting families with children with severe, actionable genetic conditions. Securing this benefit requires navigating ethical, legal, and social implications, which we review in this piece out now in EJHG. rdcu.be/fhE1X

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Part of this tool is a synthesis of the literature for all 59 decision points, organized by empirical work, conceptual work, and suggested and actual solutions adopted for each of the 59 decision points. ga4gh.org/document/genetic-n…
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Great to work with our amazing international, multidisciplinary team, and in particular co-first authors Loren Walker and Gemma Brown
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In this piece we get into the nitty gritty of data sharing decisions as encountered as part of a large project, and then zoom out from there to the importance of data governance (and what that can look like).
Apr 29
📣New from @acflewis & co! 📄Navigating data sharing in research cell.com/ajhg/fulltext/S0002…
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A short piece on navigating the complex ethical, legal and social landscape for integrating genomic sequencing into newborn screening: rdcu.be/e2lT9. This points to a policy tool from the GA4GH, in which we identify 59 decision points implementers face.

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28 May 2025
I'm excited to be speaking at #FOGBoston this June 24th-25th, on inclusivity and trust in genomics. Let me know if you have a question you'd like me to try and answer during my session! Registration is FREE for >90% of attendees, reserve here: hubs.la/Q03cHRdb0 #FOGBoston
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Anna Lewis retweeted
Join @PennGGHE May 14-15 for: "Inclusive Genomics to Promote Health Excellence" ft'ing @egatkinson, Amadou Gaye, Omer Gokcumen, @EimearEKenny, @acflewis, @genetisaur, @EichlerLab, @GeschwindLab, @JibrilHirbo, Charles Lee, @glennis_logsdon & @mashaals tinyurl.com/3xvdsxhe
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Anna Lewis retweeted
We're excited to hear from @acflewis (Research Scientist and Associate, @harvardmed and @BrighamWomens) at #FOGBoston! Anna will join a roundtable discussion into building inclusivity and trust in #Genomics. Register now: hubs.la/Q03g4Wzf0
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Anna Lewis retweeted
How population stratification makes environments look like genes. A short 🧵:
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Anna Lewis retweeted
I am proud to share our latest paper📜 “The multi-scale complexity of human genetic variation beyond continental groups”, just pre-printed on @biorxivpreprint! Link Here ➡️biorxiv.org/cgi/content/shor…

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Anna Lewis retweeted
12 Nov 2024
📊 The GA4GH Diversity in Datasets policy framework encourages research teams to consider what types of genetic diversity and what range of non-genetic factors are needed for their project. Read the press release here: bit.ly/4hNGP8E
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Anna Lewis retweeted
15 Oct 2024
Who should be allowed to compete in the women's categories of elite sports? Just out in American Journal of Bioethics @bioethics_net, @acflewis and I offer an approach to this Q w/respect to female athletes with differences of sexual development. OPC here: tandfonline.com/doi/full/10.…
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9 Sep 2024
What do we mean by diversity in data in genetics, and how should we achieve the benefits it is designed to bring? Piece in Nature Genetics out today, summarizing a new GA4GH policy framework. A thread. rdcu.be/dTpfu

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9 Sep 2024
Delighted to have worked with an international group on this, including @M_Raven_Adams, @blueyedgenes, @aimelumaka, folks at @engageWCS, and many others
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