Unfortunately, the childhood cancer research matter is not yet moot.
@elonmusk, please help. I know you care about children. Please contact me — we can fix this.
— none of our bills were in the final CR
— Gabriella Miller Kids First Research Act passed after a Senate UC. It had passed the House months ago. The result is a total of $63m for funding.
— the Give Kids a Chance Act went to a UC in the Senate and the UC failed. Now companies won’t do studies of cancer cocktails for kids. Cost=0
— The PRV program expired last night at midnight. The PRVs had resulted in over 65 new drugs for kids with cancer and other severe illnesses. Companies lost a source of no dilutive capital for drug development for kids with cancer and other rare life threatening illnesses.
Cost=0
— Innovation in Pediatric Drugs Act did not pass. Now, companies that fail to complete pediatric post market studies do not face the financial penalties that they would if the failed studies are for adults.
Cost =0
— the Accelerating Kids’ Access to Care did not pass. As a result, kids on Medicaid who have cancer or other medically complex illnesses still can’t cross state lines to seek treatment, even if that treatment is better or even life saving. Cost is quite low because the Medicaid expense is in one state or another.