4 Dec 2024
Thanks again to the Cystic Fibrosis Trust for the outstanding clinical researcher award. The trophy has arrived safely in the post!
qub.ac.uk/News/Allnews/2024/…
@IPFdoc @NickHartGSTT @nigelhart @DrNeilK @CF_Foundation @cftrust @cochranecfgd @CFAware @questionCF @QUBelfast
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19 Apr 2024
Great to see the James Lind Alliance refresh for Cystic Fibrosis getting a shout out from @Paula_Sommer at #CFGI24. Research priorities for CF jointly agreed by people with CF and clinicians. @CFAware @questionCF @cftrust @CF_Foundation
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16 Feb 2024
Calling parents, children and young people who have been seen in a hospital emergency department. The James Lind group for children's emergency medicine want to know your research priorities. Take the survey! @questionCF @RCPCHPresident redcap.liverpool.ac.uk/surve…
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30 Nov 2023
Thanks to Belinda Cupid for a great article on the use of apps in cystic fibrosis care including CF Tummy Tracker! cysticfibrosis.org.uk/news/u…
cftummytracker.org
@questionCF
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3 Nov 2023
Great plenary talk from Luke Hoffman at #NACFC2023 emphasising the importance of better antibiotic therapy to patients with cystic fibrosis. @cftrust @CF_Foundation @questionCF @CFAware
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11 Oct 2023
Start tracking your tummy symptoms now to help the #CF community with gastrointestinal issues! Only 15 spots left, so go to Cftummytracker.org to register on our app @CFAware @questionCF
Thank you to all participants and @cftrust @CFAustralia @CF_Foundation
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3 Oct 2023
Brilliant day facilitating the @cftrust research conference. So many talented researchers working in true partnership with the CF community. Also great to see how the @LindAlliance @questionCF refreshed priorities are shaping the research agenda #ukcfc
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18 Aug 2023
Said "au revoir" to Nottingham colleagues this week after 27 years in the city. Thanks to the best research group in the world for the kind gifts (including crocheted lungs) and the aeroplane cake! @ebChildHealth @CFAware @questionCF @ThoraxBMJ
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3 Aug 2023
1. Addressing tummy symptoms that matter to YOU!
Cystic fibrosis (CF) is not just about the lungs! Tummy symptoms are increasingly recognised as having a big impact on people with CF.
tandfonline.com/doi/full/10.…
@questionCf @CFAware
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30 Jun 2023
A big thank you to the CF Trust for supporting the GRAMPUS-CF Strategic Research Centre! @CFAware @questionCF @ebChildHealth @cftrust @CF_Foundation cysticfibrosis.org.uk/news/t…
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27 Jun 2023
Thanks for the feedback. Most of this is pre modulator. We have work ongoing to record symptoms quickly and easily in the modulator era. cftummytracker.org
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26 Jun 2023
Think i have all those symptoms within a day. Gotta love the CF gut. 😂
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26 Jun 2023
Great to see this systematic review of gut symptoms in cystic fibrosis published open access today. Flatulence, bloating and fatty stool are the major culprits! tandfonline.com/doi/full/10.…
@ebChildHealth @questionCF @CFAware
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9 Jun 2023
Not the meds? Dr Helen Love warms up her audience with a programme of stretches prior to her giving a great talk at #ECFS2023! @questionCF @cfaware @ebChildHealth
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9 Jun 2023
Kudos to Florence Lockwood, medical student at UoN, for a beautiful explanation of faster orocaecal transit time in cystic fibrosis during ETI treatment @ECFS2023 Part of the GIFT-CF 3 study. @ebChildHealth @CFAware @questionCF
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8 Jun 2023
Great talk on multisystem MRI scanning by Alex Yule from the University of Nottingham at #ECFS2023 @questionCF @cftrust @ebChildHealth @CFAware
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8 Jun 2023
Thanks @AlanRSmyth for presenting the @questionCF priority refresh poster & adding many links to the newly published poster! I’m so sad to be missing #ECFS2023 in #Vienna but enjoying reading everyone’s Twitter posts. Poster 089 if anyone wants to visit.
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8 Jun 2023
Hot off the press:A refresh of the top10 research priorities in #cysticfibrosis thorax.bmj.com/content/early… Great work from @questionCF @cftrust @UoNresearch @LindAlliance @nicrowbotham highlighting patients', carers' &clinicians' CF priorities 5 years after their 1st prioritisation
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8 Jun 2023
Published this week! Our refresh of the JLA top 10 research priorities in cystic fibrosis. Thanks to everyone who took part! @questionCF @cftrust @ebChildHealth @CFAware @ThoraxBMJ #ECFS2023 thorax.bmj.com/content/early…
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7 Jun 2023
Very pleased to see our latest @questionCF paper online just in time for #ECFS2023
Collaboration between @LindAlliance @UoNresearch @cftrust & most importantly the #cysticfibrosis community
A refresh of the top 10 research priorities in cystic fibrosis thorax.bmj.com/content/early…
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